Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Maddy, California, U.S. on December 17, 2013 at 5:03pm

Hi MJ, I do not have any scalp irritation either...just the hair loss. I think the theory behind the Cetirizine is that this is some form of allergic reaction that makes our autoimmune system go haywire...something along those lines. I'm sure someone else can explain that a bit better :). 

Comment by MJ on December 17, 2013 at 5:00pm
Hi all, are you taking the antihistimines strictly to ease itching and scalp irritation or is there another theory behind this? I dont have any scalp irritation and was wondering if this was something I should add to the hydro and clobetasol lotion regime? Does anyone know of others with FFA that dont exhibit outward systems aside from the hair loss? I am new to this! Thanks. MJ
Comment by Polly UK on December 17, 2013 at 3:38pm
I'm still taking 10mg Cetirizine each night and inflammation is much better and the added bonus that I'm sleeping well. I also take 400mg Hydroxychloroquine daily and was prescribed an antibiotic early this month but haven't started taking it yet. I've been given the all clear to carry on with hydroxy following blood tests and will probably hold back on the antibiotics until I've spoken to my derm early in January. I'm sure taking Cetirizine with the antibiotic isn't a problem but would like to check first. Good luck everyone xx
Comment by Maddy, California, U.S. on December 17, 2013 at 2:29pm

Hi Celia, Do you have to drop the antibiotic if you start taking the cetirizine? I am considering to start on it too, but I am also on Doxy, and don't see my dermatologist until late January.  Thank you, Maddy

Comment by Alice on December 17, 2013 at 2:27pm

Brenda, how are you getting along with the zyrtec? I haven't tried it yet but did try claritin, another antihistamine that my husband takes for allergies. It seemed to help the itchy scalp but made my eyes, nose snd mouth very dry, which seems worse than the itching. I've also had the same problem with benedryl, when I tried using it for sleep. I'm wondering if zyrtec is different than these others.

Comment by Celia on December 17, 2013 at 1:39pm

I saw cetirizine in the chemist at around £7 for a month's supply.  It's available on Amazon for just over £1.  I am going to try this even if it means dropping the anti-biotic I am taking. 

Comment by Celia on December 12, 2013 at 5:28pm

I posted on Dec 5th that my GP categorically said that liver and kidney function tests are unnecessary with regard to using Plaquenil but that vision monitoring IS.  I was told by the secretary to my dermatologist that the results of blood tests done automatically go to my GP.  I asked the GP to check and there were no results.  I have requested copies of the test results from the derm as I would like to see for myself how the process works.  My GP had liver and kidney function tests done for me anyway and the results were fine, but I have asked for a printout of these.  I guess I just feel more confident if I know what is going on.

Comment by Annie on December 12, 2013 at 5:11pm

My doctor also ordered blood work me after being on Plaquenil for one month, then again at three months.  I've been taking it for five months, and my blood work has been normal so far. 

Comment by Polly UK on December 12, 2013 at 5:10pm
Thanks Carol for the information. My derm didn't say anything about monitoring so I'm pleased the GP surgery is on the ball. I hope all is ok as Hydroxy seems to be helping.
Comment by Polly UK on December 12, 2013 at 1:22pm
I put in my usual monthly repeat prescription request last week and I received a phone call from a GP at the surgery on Monday to say that as I'd been on Hydroxychloroquine for 3 months I needed blood tests for full blood count and liver function before any more could be prescribed. I had the test on Tuesday and still waiting to hear the results and for all my pills to be released including heart and BP ones! Has anyone else experience of this with Hydroxy? I haven't started to take the Tetracycline drug I was prescribed last week and I'm pleased now that I waited.
I have however been taking one 10mg Cetirizine tablet each night and my inflammation is much better and I'm sleeping well :)
 

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