Comment

Comment by Rita - Canada on November 17, 2013 at 8:38am

I have been holding off on trying Rogaine and I presume all that are using it are doing so with the 5 percent foam. My derm suggested I try it. Has anyone in the U.S found it online at a more reasonable price & if so, could you share the website, please & thanks.

Comment by Debs on November 17, 2013 at 8:08am

I agree with you Jean, I thought of your post about your Chinese medical practitioner yesterday when the derms talked about the microneedle rollers.  I have just ordered one online for £25.  Am going to also buy some regaine now and use together. 

Comment by Jean on November 17, 2013 at 7:07am

....there you go - I knew there was something in my Chinese head whacking!!!  Lets hope that the supplements he's given me for my gut are also productive.  Watch this space (although he said that it would be a long job).

Jean

x 

Comment by Debs on November 17, 2013 at 3:05am

MICRONEEDLE ROLLERS - only heard about them yesterday at CARF meeting.  have looked online and increase effectivness of minoxidil (regaine/rogaine) by 5 times efficiacy and if used on its own has proven to stimulate collegen production and hair growth.  Suitable to use on own or with any topical applications.  Very cheap online to purchase.

Comment by Debs on November 17, 2013 at 2:25am

Betty I suggest you contact CARF they are based in the USA and can direct you to a derm with a special interest in FFA.  Yes, you should do something preventative now before the inflammation continues - the sooner the better.  When the condition burns out the doctors don't know if it is the meds or if it would have stopped anyway, however since scarring alopcia is permenant hair loss I think most of us want to try and take some action whether that is diet, drugs, supplements etc..  Please do contact the doctor I have put in my post doing research, I don't see why he would only want DNA from people in the UK.

Comment by Jules UK on November 16, 2013 at 5:47pm

Thank you Debs. That's such helpful information. It's reassuring to think that there are further options for us to try. I will definitely email to participate in the research. X

Comment by Betty on November 16, 2013 at 2:46pm

Thanks Ellen! I would do just about anything to encourage more research.

Comment by ElleMN, USA on November 16, 2013 at 2:42pm

I just emailed from Minneapolis to see if I can participate in the study. Will let you all know when I get a response.

Thanks for the info Debs! You are an amazing note taker!

Comment by Betty on November 16, 2013 at 2:28pm

After much reading over the last 3-4 days, I am soooo confused. Is there or is there not anything that I can really do to prevent this from spreading? It seems many people try different things with some success here or there but is it really the treatment or just their body correcting itself with or without any intervention? I see a lot of value in supplements, etc but some of the treatment options look so scary!

I guess what I am trying to say is should I leave well enough alone for now since I have very little loss (and the biopsy basically removed the spot I had) or is there something preventative I should be doing? I dont want to make it worse but I dont want to just let it happen if there are true treatment options out there. I do know they are VERY individual as far as effectiveness. I am not sure where to go from here. My Derm is as sweet as can be but I am not sure she is equipped to handle this. Maybe I need a specialist but we can't afford to pay anyone right now that isn't part of our insurance (which is very good). How do I know if someone specializes in it? Just print the list of providers and go to their websites? Ack! Lol

Any suggestions? I think I could think a little more clearly if I can stop crying. Lol Plus this is probably just adding to my confusion over being diagnosed with Fibromyalgia two weeks ago (which was a long time coming and kind of a relief to have a diagnosis that FITS after 20 years of being blown off and shuffled around).

You all seems so helpful and supportive and I am happy to be here. TIA for any insight you might have. I know every one of you was and is facing these same questions and hope you can offer guidance.

Comment by Betty on November 16, 2013 at 1:44pm

Debs, thank you for gathering all of that information and sharing. Is the DNA study only being done in the UK? I would be happy to participate but do not know if I would be eligible since I am in the US.

Betty

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