Comment

Comment by Debs on October 15, 2013 at 4:22am

Jean I have used acupuncture a few years ago and it cured me completely of period pain so I am a big fan of chinese traditional medicine. I will be very interested to find out how you get on. If Belinda has done your eyebrows I know you will now look fantastic. XXX

Comment by Jean on October 14, 2013 at 1:43pm

We're off on holiday over Christmas and the New Year, so huge thanks for the advice on Factor 50, Celia. Belinda told me that she had now seen four ladies with FFA within a year, having 'treated' none previously. She also gave me discount as I was having the tattoo on 'medical' grounds. I'm now seeing a Chinese practitioner who feels he may be able to improve my autoimmune system with herbal pills and acupuncture............Watch this space!!
Kind regards
Jean

Comment by Celia on October 14, 2013 at 1:00pm

Jean - you look fab as we used to say a hundred years ago. Just keep positive and take it all in your stride. I must say yet again how having eyebrows albeit tattoed ones makes SUCH as difference. Did you mention to Belinda that you have alopecia - Debs and I both got a discount because of that - great perk !! I went in December last year - I always use Factor 50 on them to help prevent fading, but will have a top up as and when. x

Comment by Jean on October 14, 2013 at 12:14pm

Thanks, Celia - finally managed to send through a photo. It's not on the Members grid......maybe I did something wrong!!

Best wishes
Jean

Comment by Celia on October 14, 2013 at 9:18am

Jean - to post a pic - go into Settings which you will find on the top right hand side of the page where you sign in or out. You then upload a photo from whatever is stored on your computer. If you have Skype - put the webcam on and SMILE - get 'caught on camera' ! You can use that image to put on your profile - then just save it and you will see it to the left of the comment box on the FFA page. Hope that makes sense !

Comment by Celia on October 13, 2013 at 5:45pm

Hi PJ - I take 1 x 400mg capsule of turmeric daily. It's a SOLGAR brand - free from salt, sugar, gluten etc. It's called Turmeric Root Extract (curcuma longa). I also take a supplement for hair, skin and nails which works wonders for my nails. My hair is very fine in texture, not anything like pre-FFA. I had scarlet fever also as a child. My near fatal pneumococcal pneumonia happened 3 years ago at Xmas. I have said before that I think it messed up my immune system - hence the FFA. My diagnosis was early 2012,but no meds or good dermatologist until late 2012.

Comment by PJ - MN, USA on October 13, 2013 at 1:01pm

I do not believe these mites are a factor in FFA. My skin scraping test did not show any mites or anything else unusual. I had to convince the Dr I was seeing at the time to even do the test. I think that something caused our systems to just get out of whack, something that caused us to be more sensitive than the average person. I did see that some people on here had pneumonia as a child. Did anyone else have a major illness as a child? I had pneumonia and scarlet fever. However, I didn't seem to have sensitive skin until I became an adult. Maybe it is still something to do with hormones.

For those of you taking tumeric, how do you decide what brand to buy? What do you look for to know you are getting a good quality? There's so many brands and varying strengths. If I remember right, people were taking 200 mg twice a day.

Comment by Celia on October 13, 2013 at 3:30am

Thank you Ellen and PJ for your comments re: dermovex - sounds interesting/scary. I will ask Dr Harries about this when I go to see him on October 31st. It seems we humans do all have these mite, but whether they are a factor in FFA or not - who knows ? I am going to wash my hair right now...................there seem to be methods of eradicating the mite on Amazon - I assume one would have to have a test for them prior to any treatment - could it be that they really are an added factor in FFA ?

Comment by PJ - MN, USA on October 12, 2013 at 11:54pm

I work in the veterinary field so I have heard of demodex mites on pets. It is found by doing a skin scraping and looking at under a microscope. I did have this test done on my eyebrows. When I first had hairless that was one of my concerns that I got something from being around animals. From my understanding humans always have these mites on them at a low amount and do not usually cause a problem.

Comment by ElleMN, USA on October 12, 2013 at 2:08pm

A little food for thought. In all my research about skin disorders and hairloss, and all the doctor appointments I've had over 20+ years I have never heard of these tiny mites that live in the human hair follicle and sebaceous gland.

http://en.wikipedia.org/wiki/Demodex_mite

Has anyone heard of this? Told they have an increased infestation of it? My hairloss started at a time when my immune system was stressed. I just find this very intriguing.

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