Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 600
Latest Activity: yesterday

Discussion Forum

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

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Comment by Debs on September 19, 2013 at 3:30am

Rita, I also use the wigsupport website for all of my wig info. You do need to buy name brand wigs, the ones that Carol has listed, there are some very cheap wigs on the market but I think if a wig costs the same as a pizza it will probably only last as long!... You don't need to spend a fortune on a wig for it to look natural. My preference is synthetics because they bizarrely look less 'wiggy' than human hair wigs. They are not too thick and you don't have to style them. Mine cost Ignite, Jon Renau brand £99 - Julia, Jon Renau brand £145, Stream, Ellen Wille brand £120 - Techno Cut, Gisela mayer brand £140, I have a human hair wig from Raquel Welch that was about £500 that I never wear because it is so difficult to style.

If you want to check out a good range of wigs look at

www.voguewigs.com
www.wigs.com

these online wig stores are in the USA and carry a huge line of wigs. NOTE you don't have to purchase from these sites as you may well find the same wigs cheaper somewhere else, I just suggest looking at the sites to see just how many lovely wigs are on the market.

Comment by Rita - Canada on September 18, 2013 at 7:01pm

Hi all,Its hard to keep track of details I know I've read along the way but those ladies that have purchased wigs,what brands did you feel were of very good quality or do they all have high & low end quality.Thanks.

Comment by Polly UK on September 18, 2013 at 6:58pm
Celia thanks I have replied, hope you get it..

A general question regarding Hydroxychloroquine, has anyone found they're ok taking one tablet a day but feel unwell when taking two?
Comment by Celia on September 18, 2013 at 3:35pm

UK ladies - please check your mail - I am trying to get us together again for lunch and to solve this problem we have - it will only take us a couple of hours................
Suggesting these dates

2,3,4, 9.10.11 October - if you let me know which of these dates you are free then I will try to make a plan to accommodate all. Looking forward to seeing you again ! x

Comment by Jules UK on September 18, 2013 at 3:52am
Thanks, Kath. I did suspect it was unlikely. X
Comment by Kath UK on September 17, 2013 at 4:14pm

Hi Jules - No I don't sleep in my hairpiece. The clips at the back would make it uncomfortable and I'm not sure if acrylic hair would stand up to being rubbed on a pillow all night. I believe there are wigs you can sleep in though. Maybe if you ask wigsupport they could advise you.

Comment by Jules UK on September 17, 2013 at 4:00pm
Hi Kath, are you able to sleep I. Your hairpiece or must you remove it each night? I was told they could stay on for a few days but are they really that secure? Julie x
Comment by Kath UK on September 17, 2013 at 11:16am

Hi Pam - My hairpiece is like a little cap and mixes in with my own hair at the back and sides. It has three patches at the front (one in the middle of my forehead and one each side) which I use wig tape on and there are three little clips at the back which clip into my own hair. It's very secure and comfortable to wear once you get used to the idea. My own hair is cut in a short bob with a fringe which I brush back when I put on the hairpiece and which I can still brush forward so I can wear a headband or scarf if I want a rest from the hairpiece.
My hairpiece is from the Ellen Wille 'Hair Society' acrylic range and the piece is called 'Close'. My own hair is sort of mouse with some grey and some highlights and the hairpiece really matches in very well at the back and sides.
Don't be scared to give your wig a go - even just around the house. Think of it as a new beauty aid! Good luck with it. Hope this helps.

Comment by Pam on September 17, 2013 at 2:43am

Yes, I just need the confidence to take the plunge! Kath, how do you attach your hairpiece? Is it a front hairpiece or a full wig? Have you tried the stick on method?

Comment by Kath UK on September 16, 2013 at 5:30pm

Hi Debs - you look great in your wigs and you're right; nobody could think that you're wearing supplemental hair.
I too wear a lace front hairpiece and can honestly say that it looks as if it's my own hairline. (If I get brave I might post a photo of myself in it - but I'm a good deal older than you are and the camera isn't really my friend nowadays!)
I'd say to anyone thinking of getting a wig to go to a good wig shop, get professional advice and just give it a try.
Your eyebrow tattoos and the eyeliner are very successful too.

 

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