Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by christiekd on August 14, 2013 at 7:35am

About Benadryl - I sometimes have trouble sleeping as well, so I will break a pink benadryl pill in half and take a half a dose. This is enough to get me through. I also don't feel so bad taking a sleep aid.

For Rogaine - I think that in combination with our other meds, it is beneficial to use rogaine. When you can calm the inflammation with clobetesol, there are hair follicles that haven't burned out yet and scarred over, and the rogaine helps those hairs to grow back.

Comment by Pam on August 14, 2013 at 3:15am

Regarding Rogaine - I have been told that it is not really effective for alopecia? If it was, surely everyone would be using it? I bought some in desperation, but haven`t used it, as my dermotologist said it was unlikely to be of any use. Any feedback on this?

Comment by Alice on August 13, 2013 at 5:59pm

Annie, are you seeing new growth where there has been hairloss along the front and sides, or only where you haven't lost hair yet? Are you using the men's or women's strength. I haven't taken the Rogaine plunge yet but am considering it. Also, does the new hair have the same texture and color as the rest of your hair? The new hairs I sprouted on top while taking spironolactone is drier, grayer, and frizzier than the rest of my hair.

Comment by Annie on August 13, 2013 at 5:24pm

Annie, I started out using the Rogaine on my eyebrows and around my face and above my ears going back about 3 inches about 4 months ago. I was so pleased with the new growth after 6 weeks that I started using it all over my head. My hairdresser says she can see more new hairs sprouting every time I go in for my 6 week cut & color.

Comment by Celia on August 13, 2013 at 6:29am

Hello all - I have been a bit quiet for a while. Enjoying the proper summer we are having in the UK, loving the grandchildren, seeing friends, creating our new garden, working out in the gym, country walks - what more could I want ? !! XX

Comment by Annie on August 12, 2013 at 12:55pm

Terry, I also had problems sleeping with the plaquenil for the first couple weeks. I have been taking it for 6 weeks now, and my body has completely adjusted. I'm happy to say that I'm sleeping as well as I was before I started taking it.

Comment by Annie on August 12, 2013 at 10:51am

Terry, the Rogaine foam needs to stay on your scalp for at least 4 hours. I use the 5% Rogaine foam mornings only. My doctor said the foam only has to be used once a day after the first 6 weeks. I apply it to wet hair on the days I wash my hair and blow dry it as usual. I can't even tell it's there on the first day, but on day two my hair is a little harder to work with because of the foam buildup at the roots. I wash my hair every other day to keep the buildup to a minimum.

Comment by Liz on August 11, 2013 at 3:26pm

Hi Pam. The eyebrows in the photograph are my own. I have the inside bits left, it the outside half thats gone on each one and I colour that in with an eyebrow cil xx

Comment by Pam on August 11, 2013 at 3:18pm

I agree that loads of celebrities use wigs as a matter of course, and we need to think of them as another beauty aid - not feel any stigma or shame about wearing one.
In fact, when my daughters friends come round to our house to get ready for parties/ balls etc they often have hairpieces with them, all types and sizes, as well as their party dresses! These are girls in their twenties, who don`t care at all about everyone knowing they are adding extra hair for glamour!

Comment by Debs on August 11, 2013 at 5:25am

Carol. I agree totally with you. Women today use all sorts of enhancements for their beauty routines and a wig is just another beauty aid. Plenty of celebrity women; Beyonce, Kelly Rowland, Joan Collins and of course Raquel Welch (who even has her own very good brand of wigs) all wear wigs to help them look stunning. We are in very good company. XXX

 

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