Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

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Comment by Annie on August 12, 2013 at 12:55pm

Terry, I also had problems sleeping with the plaquenil for the first couple weeks. I have been taking it for 6 weeks now, and my body has completely adjusted. I'm happy to say that I'm sleeping as well as I was before I started taking it.

Comment by Annie on August 12, 2013 at 10:51am

Terry, the Rogaine foam needs to stay on your scalp for at least 4 hours. I use the 5% Rogaine foam mornings only. My doctor said the foam only has to be used once a day after the first 6 weeks. I apply it to wet hair on the days I wash my hair and blow dry it as usual. I can't even tell it's there on the first day, but on day two my hair is a little harder to work with because of the foam buildup at the roots. I wash my hair every other day to keep the buildup to a minimum.

Comment by Liz on August 11, 2013 at 3:26pm

Hi Pam. The eyebrows in the photograph are my own. I have the inside bits left, it the outside half thats gone on each one and I colour that in with an eyebrow cil xx

Comment by Pam on August 11, 2013 at 3:18pm

I agree that loads of celebrities use wigs as a matter of course, and we need to think of them as another beauty aid - not feel any stigma or shame about wearing one.
In fact, when my daughters friends come round to our house to get ready for parties/ balls etc they often have hairpieces with them, all types and sizes, as well as their party dresses! These are girls in their twenties, who don`t care at all about everyone knowing they are adding extra hair for glamour!

Comment by Debs on August 11, 2013 at 5:25am

Carol. I agree totally with you. Women today use all sorts of enhancements for their beauty routines and a wig is just another beauty aid. Plenty of celebrity women; Beyonce, Kelly Rowland, Joan Collins and of course Raquel Welch (who even has her own very good brand of wigs) all wear wigs to help them look stunning. We are in very good company. XXX

Comment by Pam on August 11, 2013 at 3:47am

Liz, I thought your eyebrows looked good too in your photo. Have you got any tips for eyebrows too?

Comment by Pam on August 11, 2013 at 3:45am

The wig looks so natural, you look great! Thank you for sharing it with the rest of us, it gives me hope! (Did you go for real hair or synthetic - I can`t tell?).

Comment by Debs on August 10, 2013 at 1:52pm

Beautfil Liz. You have chosen well. XXX

Comment by Liz on August 10, 2013 at 12:29pm

Thank you all for your lovely comments. Pam the wig is an Erica Amore wig. Its a monofilament wig xx

Comment by PamW San Diego, CA, USA on August 10, 2013 at 11:04am
I had to rejoin this group in order to comment. Guess my membership fell off somehow. I am still with you all.
 

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