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Comment by Simone NJ USA on February 11, 2013 at 12:25pm

Thanks for the info, Celia!

Comment by Simone NJ USA on February 11, 2013 at 8:54am

Hi Celia:
Hope you had a great weekend! Do you find that the ratio will turn grey aver time. That's my only concern with tattooing versus using pencil..any thoughts will help..tks

Comment by Alice on February 11, 2013 at 8:33am

Hi, Celia. Elidel hasn't helped my hairline, either, but has helped my eyebrows. I still use pencil to fill them in but can pass for normal w/out it.

Comment by Alice on February 11, 2013 at 8:31am

Comment by Alice on February 11, 2013 at 8:14am

I've been lurking for a while and finally decided to post a comment for the group. I am 61 years old, live in the US and have had FFA for about 1 1/2 yrs.

About 6 mos ago, I talked to my dermatologist about a woman in Greece w/ FFA who was successfully treated w/ Avodart (a prostate med) and Elidel (a cream for eczema). See http://www.dermattikon.gr/magazines/_1/KATOULIS%20EN.pdf.

She gave me some samples of Elidel and it has helped my eyebrows. One was noticeably thinner than the other and now they are nearly the same. I still have some itching and soreness, though.

The next time I went in, my doc had done some research and offered me a prescription for Avodart, but I wasn't ready to go that route yet. She does have one patient taking it, so I plan to ask about that when I go back next month.

I have quite a bit of itching and soreness all over the top of my head but find that tea tree oil helps. It seemed worse when I was using Nizoral shampoo and topical Clobetasol. I think they must have been too irritating.

Has anyone else tried Elidel for their eyebrows or tea tree oil for their scalp?

Alice

Comment by Jules UK on February 10, 2013 at 12:54pm

My hairline is very like this too but not so advanced yet. The inflammation bumps are the same. Although I don't have the bumps at the temples but the hair is still receding from here too.
I have just fallen off the "gluten wagon" - Eve's orchard pudding! Slapped wrist and back on it.
Liz, if you use the Travelodge, book ahead for the best price. The car park also cost £7 for overnight. I really did need a satnav though. X

Comment by Liz on February 10, 2013 at 7:26am

Thanks Jules. I shall stay at the Travelodge :o). I've tried to take a picture of my forehead to show the bumps but it doesnt come out very well. I have no redness or itching and never had had. The bottom of the picture is where my hairline once was.
xx

Comment by Jules UK on February 9, 2013 at 6:19pm

Hi Liz, I stayed at the Travelodge at Salford Quays. It was about 10 mins from the hospital but I needed the satnav! It was clean and modern and only £20! I took my breakfast with me (cheap and cheerful, that's me) so can't comment on the restaurant attached. When do you go? I was impressed with Salford Royal -staff friendly and helpful. Good luck!
And welcome to Simone. X

Comment by Liz on February 9, 2013 at 4:25pm

Hallo again :o) Did anyone who has seen Dr Harries at Salford, stay the night in a hotel? If you did, what one and would you recommend it? xx

Comment by Simone NJ USA on February 9, 2013 at 3:09pm

Hi Susanne;

I started juicing with fruits and vegetables each day and started slowly exercising..I have cut out my red wine, sadly.. ..hardly any sugars...does anyone know if juicing would affect FFA as it is sugar from the fruits. However, it's supposed to be healthy to juice..I still have a not of inflammation going on which I hope will stop soon. Celia, my Derm is giving me corticosteroid injections to halt the inflammation..we will see...has anyone had these & seen a slowing of inflammation?

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