Smooth and silky! I have AU (Alopecia Universalis, I grow no hair anywhere) and have had some form of Alopecia my whole life. These days I try to live my life with purpose, kindness and compassion. I know that growing up with AU has made me a more sensitive and caring person. The fact that I am bald doesn't deter me in any way. The fact that I have no hair is just one of the reasons that I am special, I have accepted it and am happy to help others going through the same thing. I am Happily AU Naturel!
Having this condition is not really as bad as it seems, honestly. I am so used to now I don't know what I would actually do if I did grow hair! The thought of shaving my legs scares me, the extra maintenance and upkeep, oh the horror! Being soft and smooth has its benefits! I choose to mostly wear wigs and I have a lot of fun with it. I've completely embraced the my versatility and I like to be chameleon like. Day to day I am a redhead, and I wear a colour that is very close to my bio hair. I do like to spice things up with different colours and styles. Long and dark one day, short and brown another, curly and blonde, you get the idea. Sometimes it looks great, but next to my shockingly pale skin I think the red is the best. I haven't really got the nerve to wear my bald look out in public (mostly due to the fact that I have big ears!) but do so often around the house especially for strenuous exercise.
I know there are fellow alopecians on here with lots of questions about my wigs and just whats the deal with them?! No mystery, just find something that suits you and work with it. Do research, inform yourself, shop with a trusted friend, and most importantly don't get discouraged! Look outside the box and trust in yourself! You are the most important person in your life, so give yourself break! Remember that CONFIDENCE CAN BE FAKED! All you have to do is hold your head high (bald, covered, with a wig whatever) and SMILE! You'll start to beleive it and so will others! I guarantee that your positive energy will be contagious! I'm happy to answer any questions and help in any way that I can!
A bit more about me, I am a second generation Canadian Leathersmith who owns and runs my own business. I wouldn't have it any other way! I'd like to get a chance to explore more of my artistic side when I get a little spare time. I love to paint, do sculpture, work with reclaimed materials and recycle stuff into art. While I am not musical myself, I really enjoy a whole range of music from all over then world. I like to sew, and do anything that keeps my hands and brain busy. I think its important to honour our heritage (I am a mixture of Scottish, Polish and German decent). I thinks its very important to keep the dying crafts alive. My grandma taught me to crochet and my nana taught me to knit, both of which I love to do. In addition to that I have my own strange style of embroidery and beadwork. I like to doodle and scribble down poetry. I try to continuously educate myself, I'd be afraid my brain might turn to mush otherwise! All outdoor pursuits are of interest to me, specifically I most enjoy: Canoe back country camping, hiking, biking, gardening, sailing, and snowboarding. I practice Yoga and meditate often. I like to exercise to blow off stress. I enjoy walking my Portuguese Water Dog. I'm concerned about the state of our planet and try to implement "green" alternatives whenever I can. I try consume as many organic foods as possible. I'm a big fan of the "Slow Food" movement. I like to garden and love spending time in the forest. I am a vinyl junkie and have a huge LP collection - I just love the warm sound of records! I'm a pinball junkie, I admit it. I really enjoy a nice glass of red wine or single malt scotch. Friends tell me I'm just one of the guys.
~~~~~~ I am Happy, I am Healthy, I am Whole and Complete ~~~~~~
Hi, and thank you very much! Yes, I wear wigs & have been for 8 years now. Funny, I've never really taken any bald pics of myself, but I literally just told my boyfriend that I need him to take some of me so that I can post some on here!
Thank you for your nice comment. I agree that the artwork is much better than any hairdo!!! I hated wearing wigs, they were too itchy and hot for me. I love how you can wear blonde or red and look gorgeous!!! I hope you had a good weekend.
Hey Orbit! Love your name!!! Anyway, can I ask you what kind of wigs you wear? They are gorgeous!! Alos, I noticed in your "about me" section, that you do alot of outdoor activities, like canoeing and snowboarding, biking etc. Does wearing a wig hinder you in any way? I would be afrain of it falling off. Thanks fo rany onfo yo ucould share. :)
wow.. you remind me so much of myself...im definitely an outdoorsy person too... and im totally "one of the boys'.... i actually have more guy friends than i do girls... your name rocks!...
Hey! Love your photos :) I'm originally from TO...where in Ontario do you live? I grew up there, moved to Calgary for a couple of years, then we've been in Vancouver for a year and a half now. All my family is back in Ontario, so I miss them, but my husband and I really like Vancouver so far. Nice to meet you!
Hello! Thank you for welcoming me and for liking my site! I love your wig by the way! I'm always so nervous about wearing wigs without bangs, but it looks really awesome on you! So now I'm going to go try some on!
And I love red hair. I was a dark dark brunette before it fell out, and it's only not through wigs that I can actually have red hair. Definitely one perk in being a baldie!
Thank you for your comment!!!
To answer ur question..... no.... it; isn't a vaccum wig.... just a normal human hair one....... Unfortunately.... it is time to get a new one... have had it for just over two years now.... and shortly after taking that foto (my profile pic).... I decided to have it permed so that I wouldnt struggel with the curls so much!!! UNFORTUNATLY.... not a wize choice.... there were highlights in the wig..... that have now almost all fallen out.... the woman at the wig shop that did the perm, was concerned about this happening.... but in the end.... approved it.... and told me to go ahead...(actually.... what did she care.... she knew i would have to go back soon to get another one cause the perm would damage it).... I sound bitter... I know.... but I feel that she should have told me NOT to have the perm.
In any case.... traveling to south africa in a month for my sister's wedding..... and going to get a new one there...... THEY ARE SO MUCH CHEAPER than here in greece!!!!!
You look GREAT in the pic with your baby... (i;m assuming yours... hee hee) I love how you have the band in your hair.....
No, so far so good as far as they are concerned. Of course, I didn't develop any symptoms until I was in college. Does anyone else in your family have it? I always hear that it runs in families, but I seem to be the first in mine!
Yeah, I've been really lucky. My husband and kids have been great through all of this. My oldest daughter (she's 9) has been especially protective of me. If my 7-year old asks me if I'm going to wear my wig someplace, Becca is like "so what if she does or doesn't.....mommy's beautiful any way!!" She's so funny. And the 3-year old has no clue. She calls my wig my 'hat.'
You know, I did think about passing along my alopecia, but not until after I was pregnant. It's funny, I never considered NOT having kids and never really thought about it. My alopecia was only patchy bald spots at the time that I could easily cover up by changing my part, so it was never a big deal. It wasn't until later on that I've lost so much more. However, when the doctors started talking about breast-feeding...that's when I started thinking about it. I formula fed all the girls. I figured they're already predisposed to getting it just from me carrying them -- I didn't want to double their chances by nursing them too! It's probably a crazy thought, but it made me feel better that I bottle fed them. Right now, they all seem fine, so hopefully they won't have to go through this.
Thank you for the welcome, I find you light, I had my alopecia since my 28 years I work in computers and I like you very sensitive and concerned about our planet, I am divorced and I have 2 boys . See you soon
kastababy
Mar 11, 2008
Roger
Mar 11, 2008
Ashley
Mar 12, 2008
Jennifer
Mar 13, 2008
Sara
Mar 13, 2008
Caroline
Mar 13, 2008
Erin
Mar 13, 2008
brian kirchman
=)
Mar 14, 2008
Jérôme
Mar 16, 2008
Dotty
Mar 16, 2008
Dotty
time to send messages to all your friends, telling them how much you care about them.
Without friends
you would be missing out on a lot.
A friend should be radical;
They should love you when you're unlovable,
Hug you when you're unhuggable,
And bear you when you're unbearable.
A friend should be fanatical;
They should cheer when the whole world boos,
Dance when you get good news,
And cry when you cry.
But most of all, a friend should be mathematical,
They should multiply the joy, Divide the sorrow,
Subtract the past, And add to tomorrow,
Calculate the need deep within your heart,
And always be bigger than the sum of all their parts.
I care about you.
Have a nice day, and
I'm glad we are friends!!! Delete Comment
Mar 17, 2008
brian kirchman
Mar 17, 2008
Susan
Mar 18, 2008
Cheryl, Co-founder
Mar 19, 2008
Susan
Mar 19, 2008
Jennifer
Mar 19, 2008
Katie
Mar 20, 2008
sandra
Mar 20, 2008
Nicole
Mar 20, 2008
Matt
KW is a puzzling place, geographically, but I'm happy to call it home. After seven years, I still barely know my way around, though. :)
Mar 20, 2008
Laura Zinger
And I love red hair. I was a dark dark brunette before it fell out, and it's only not through wigs that I can actually have red hair. Definitely one perk in being a baldie!
Mar 21, 2008
Gina
Mar 21, 2008
Nektaria Kazakopoulou
Thank you for your comment!!!
To answer ur question..... no.... it; isn't a vaccum wig.... just a normal human hair one....... Unfortunately.... it is time to get a new one... have had it for just over two years now.... and shortly after taking that foto (my profile pic).... I decided to have it permed so that I wouldnt struggel with the curls so much!!! UNFORTUNATLY.... not a wize choice.... there were highlights in the wig..... that have now almost all fallen out.... the woman at the wig shop that did the perm, was concerned about this happening.... but in the end.... approved it.... and told me to go ahead...(actually.... what did she care.... she knew i would have to go back soon to get another one cause the perm would damage it).... I sound bitter... I know.... but I feel that she should have told me NOT to have the perm.
In any case.... traveling to south africa in a month for my sister's wedding..... and going to get a new one there...... THEY ARE SO MUCH CHEAPER than here in greece!!!!!
You look GREAT in the pic with your baby... (i;m assuming yours... hee hee) I love how you have the band in your hair.....
Mar 23, 2008
Carol
Mar 25, 2008
Carol
Mar 31, 2008
Daria
Mar 31, 2008
Daria
Mar 31, 2008
Daria
You know, I did think about passing along my alopecia, but not until after I was pregnant. It's funny, I never considered NOT having kids and never really thought about it. My alopecia was only patchy bald spots at the time that I could easily cover up by changing my part, so it was never a big deal. It wasn't until later on that I've lost so much more. However, when the doctors started talking about breast-feeding...that's when I started thinking about it. I formula fed all the girls. I figured they're already predisposed to getting it just from me carrying them -- I didn't want to double their chances by nursing them too! It's probably a crazy thought, but it made me feel better that I bottle fed them. Right now, they all seem fine, so hopefully they won't have to go through this.
Apr 1, 2008
Sami
Apr 1, 2008
oks
Apr 2, 2008