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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Gale

I am new to this and not sure how it all works. Any help would be good,lol. Thanks

Jun 17, 2008
ashley

thanks for the welcome i love this site

Jun 17, 2008
Christel Hertz

Hi Cheryl,
Thank you for your welcome. We are very happy to be part of alopecia world.

Jun 17, 2008
Joel

Thanks Cheryl, Seeing the courage young people display kind of makes it seem like a no brainer for people our age!!! Are there good blogs on treatment success/failure? I'm not hopeful.......just stubborn :)

Jun 17, 2008
Patti Cassel

Thank you for the warm welcome Cheryl!

Jun 17, 2008
Gale

I am doing well thnaks and yourself?

Jun 17, 2008
Mary Sarra

Hi Cheryl and thanks for the welcome. Mary

Jun 18, 2008
Gale

Yes, I am new to this and don't know my way around yet, but I will get the hang of it yet. Have a nice day.

Jun 18, 2008
Amy Bard

Cherly-thanks for the comment...I'm so excited about finding this website/support. I have needed something like this for years. I couldn't wait to get home from work today to get back on the website and read more info. Thanks for your hard work and effort on the website. Look forward to more contact in the future.

Jun 18, 2008
jen

i just wanna say thanks for this website its absolutely amazing

Jun 19, 2008
Kim Culberson

Thanks Cheryl, I debated about joining as I am so busy with Kids, Husband, our farm, and my part time job at the hospital. I rarely have time for the computer. I know it is great to connect with others who know exactly how it feels to be going through life as a "bald woman" It has it's pros and cons, and I spend most of my time enjoying to pros....
Talk to you soon

Kim

Jun 19, 2008
Linda

Thanks for the welcome and thanks for this site!

Jun 20, 2008
Gale

I am not sure how to get into those other things yet, as I am new to this site. Take care

Jun 20, 2008
Dotty

Hi Cheryl,
I am just now getting back to the wonderful messages of thoughts and prayers for my daughter, Kristin. I had the best sleep in 10 days last night because she is home from the hospital. Thank you for thinking of us and your prayers were heard loud and clear. I just wrote to RJ too and I hope you both are having a wonderful time in Kentucky. I'm sad that I am not there with you all but very happy that Kristin is home! Tell everyone hello for me and I'm missing them. I will see you all next year.
Love and Hugs,
Dotty

Jun 21, 2008
Erica VanderBeek

You have a really pretty smile! Thanks for the welcome. Can't wait to browse around.

Erica

Jun 21, 2008
Sharon

Hi Cheryl thanks so much for the welcome I am glad that Nicole and I have found this community it is great to have all the support you can muster especially when living in a lil place like NZ. I look forward to getting to know others.

Thanks again Sharon

Jun 23, 2008
Gill

Thank you. I will add to my page soon.

Jun 23, 2008
Rachel

Yes I did, its awesome! Not bad for juggling after a few drinks, eh? Lol. Did you have a blast?

Jun 23, 2008
kastababy

Hey Cheryl!!

How was the conference???

Jun 23, 2008
diem

Thank you Cheryl!

Jun 24, 2008
Roger

Hi Cheryl.

That was great to meet you face to face.

Take care, Roger.

Jun 24, 2008
Jennifer and Alieena

thank you so much for welcoming us. i have searched everywhere for a site like this so she can look at all the people who look just like her. she is so worried about her hair falling out, all she ever says is will i one day have long hair. thank you again, i will be letting her look at the pictures on your site to maybe help her some.
Jennifer

Jun 25, 2008
Roger

Its was great. But ive had a 11hrs delay for the trip back...it was crazy =)

Did you go home on saturday?

Roger.

Jun 25, 2008
Roger

Sunday was very quiet. I wanted to see the town a bit. So I went out for some sightseeing. Did you two go on some museums?

Roger.

Jun 25, 2008
Kate Rotherham

you are so great. i hope you know that ...such a strong person . =)
<3 Kate

Jun 25, 2008
Stacey Richards

Thank you so much for welcoming me! I still haven't had the chance to look around! :o)

Jun 25, 2008
Carol B.

Hi Cheryl,
Thank you so very much for the warm welcome. I enjoy looking at this wonerful site. It is helping day by day to cope with my Alopecia. I am not yet at the stage where I can go without a scarf or cap but you are an inspiration and I hope to get there some day soon. Thank you.

Jun 26, 2008
Jennifer and Alieena

i think you are 100% right, seeing other people with the same thing knowing you are not alone is the best kind of help. this was all she needed was to see other people out there like her. thank you for creating this site.

Jun 26, 2008
Alex

hey! i'm totally lovin this whole alopecia only thing:)

Jun 27, 2008
Matt

It was great to see you at the conference, Cheryl. I like RJ. You guys were like rock stars there. I am telling people that need support help about the web-site. I'm spreading the word!

Jun 27, 2008
rj, Co-founder

Babe, thanks for inviting me to accompany you to this year's NAAF conference. I now have a much better understanding of why this annual event means so much to you. See ya in Houston! With all my love, rj :-)

Jun 29, 2008
Nicole

Thanks Cheryl. Look forward to talking with everyone here.

Jun 30, 2008
betsy slagle

Baltimore Betsy sends her love ! It was GREAT meeting your rj and seeing you again - Quite frankly I'm happy to be home and back in my routine. Sightseeing in ky was fun, but I did not find the conference that beneficial. Please keep in touch. I treasure our shared confidences and welcome your friendship. xo betsy

Jun 30, 2008
Jill

Thanks so much for your kind thoughts. I acutally have been on the beach in Mexico for the last week!! The wedding was beautiful and went off without a hitch. And I already changed my page!! ;o)

Jun 30, 2008
Cindy Molnar

Thanks Cheryl for the message! I look forward to meeting alot of nice people and enjoying their comments. It was good to see you at the conference and meeting RJ. Good Luck and God Bless you as you start a life together. Cindy

Jun 30, 2008
Elizabeth

Cheryl:

Thank you SO much and Thank you for this site!

Jul 1, 2008
nicu

thanks a lot

Jul 1, 2008
Sara

It was great seeing you too! Conference was a great one this year and I am already holding my breath for next year!!!

Jul 1, 2008
Ben Wade

Thank you Cheryl. I am very glad to get my first comment. Thank you SOOO much for co-founding this website! It's great!

Jul 1, 2008
VanessaVandalism

O M G ur a co founder? AWESOME
xD well thanx for the comment :)

Jul 1, 2008
Melissa Romanowski

Thank you for welcoming. If the members on this site are anything like you and RJ, I know that there are a ton of great people to meet here.

Jul 1, 2008
Jennifer

it was great to see you too. yea im a vet but proud of it. i was lucky to find the conferences when i did. i would be the person i am with out all the great people to look up to like you. especially to see someone that looked like me was awesome as a teen for me.

Jul 2, 2008
Ashley

aw, thank you so much! you'r so sweet! i was so excited to see you and RJ, it was great to get to see both you two, and all the wonderful people i have met on this site. Thanks for your support, you are awesome! =)

Jul 2, 2008
Karen Peterik

Cheryl,
TYou and RJ have created a wonderful site and I am excited to be a member! Can you give me information about advertising as well? I would like your members to know that in addition to living with AU for 18 years, I have not only found my own personal hair loss solution, but can possibly be of service to those looking for the same thing.
Thanks much,
Karen

Jul 2, 2008
Roger

Hi Cheryl.

Stockholm is wonderful in the summers. I think people like Stockholm because the old buildings with lots of water around the city. Its really nice. You are welcome =)

Roger.

Jul 3, 2008
callie blackwell

Hi cheryl, thanks for your nice comment. I'm Ok, been a bit down lately (bursting into tears when i see a pot of my old pink hair dye, that sort of thing) i want to be brave enough to just walk out of my house without a wig or a bandana and not care what people think but I'm not there yet. I actually think I would be happier if it all fell out as the nice pink patches compared with the blue five o clock shadow look so ugly. My head is sore from razoring it too.
I'll get through this but when the doc told me the other day that he thinks it is highly unlikely that it will ever grow back it set me back a bit. I miss my hair still, I miss dying it, cutting it and styling it....I was my hair and now it has gone I don't know who I am.
I hope you're ok...
X

Jul 3, 2008
Kate Martino

I suppose that will happen after 13 years of conferences. I am so happy you made this site, it is a lot easier to communicate with friends, sometimes it is hard to find time to pick up the phone and call and this is a simply substitute!

Jul 3, 2008
Kristen Ridenhour

Haha, yes great minds think alike! The job is going pretty good. I love being involved in the sport again. The kids are great with the exception of one or two that just don't know how to behave. But there are always kids like that in a group. How are you doing?

Jul 3, 2008
Mandy

LOL if you wanna play with the fridge you just click clear, click and drag the letters and click save. :)

Thanks for stopping by my page, Cheryl. I'm doing well, how about yourself? I feel so much better now that I've shaved my hair off. No more watching my hair fall out by the handfuls anymore. Hoorah! I actually am seeing a lot of new white hair recently, too. Cross your fingers that they stick around!

Have a great 4th of July weekend!

Hugs,
Mandy

Jul 3, 2008
Dina

Hi Cheryl - I am doing well, thank you for asking! I don't have much time to really sit down for long periods of time because of my work (I own a furniture business) but I pop in and out during down times and read different posts and try to keep in touch with some friends I have made here. I really really wish that you were around when I was first diagnosed because I cannot imagine what a positive impact it would have made on me and help me through those initial feelings of worry and wondering. You and Richard have done a wonderful thing here and I think we can all tell what caring and kind people you both are. I hope you are well and enjoying your summer!!

Jul 3, 2008

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