thank you so much for your comment. That ment a lot to me I paid 300 bucks for this hair and I think it looks good. Tom was just mad cause he could never get women like us.

Hey thanks for the advice. I think i am okay with out a wig at the moment and (if ) when the time comes I think I will go to the wig shop first. I have heard alot about the vacuum wigs..they sound good!!

Hi there!
Thanks for your comment on my blog. So are you getting a freedom wig too? It can be a long time to wait but it will be worth it!

I am getting more used to it, it's been a week now. I did use frizz serum on it, but it still needed straightening :( oh well, it's what my own hair used to do too so you can't have everything!

I know I would be more comfortable on a plane in a bandana but I'm just not sure how to transport the wig...it makes things difficult.

Anyway, good luck with your new wig, hope your wait goes really quickly!

Thank you!

My wig is only 10" so I think 14" will be pretty long! Seeing as they got more expensive the longer you go, I didn't go for super long. I like the length of mine fine though. Hope yours is ok for you when it comes! I can't imagine having 18" hair -doesn't it get tangled?
Thnaks for your tips on packing my wig, I'm pretty much sorted now thanks to some very helpful people on the internet :)

thanks for the greeting. unfortunately im not the one you spoke with. i just came across this site the other day and haven't talked with anyone until just now. i won't be able to make this meeting, but perhaps i can make the next one.

Hey Sarah,

Thank you for your kind comments! I'm sorry to hear that your husband steals your forks LOL Sometimes its the little things that make life that much more interesting!

Hello, and thanks for the warm welcome. I hope to see you again at another meeting soon.
Stefan

thanks for the comment. i was so amazed to hear about this website not many times do you hear of things like this for people like us. to be honest i love going bald. i only wear a wig to work and out to the clubs but thats about it. i have had alopecia since i was 7. well hope to hear from you soon.

Hey Sarah, TY for the birthday wishes. I had a good day. How are things in your world?

You should give it a try soon, but don't sunburn your dome (going out bald I mean) it's really fun! People are so astonished and nosey I find it very amusing.

Hi Sarah,
I am just now getting back to the wonderful messages of thoughts and prayers for my Kristin. I had the best sleep in 10 days last night because she is home from the hospital. Thank you for thinking of us and your prayers were heard loud and clear. Hope all is well with you and yours.
Love and Hugs,
Dotty

hello! It was awesome to meet you also! I have not started plans for a fun night out yet... did you have a chance to put all the emails onto a master list? or, should I create an announcement/discussion about it on our AZ page? hmmm... lemme know- have a great weekend! pp

Hi Sarah,
If we meet on a Saturday, any time is good for me. I thought Tempe was a good location. If we meet at a coffee shop for our small meeting, there is a cute and cozy coffee shop on Baseline and Mill that might be a good spot to meet. Just a suggestion. I am pretty flexible.

Thanks for the wonderful comments. You have a beautiful family also. I have enjoyed reading your blogs. It makes me realize there are other people like me it is hard b/c where I live I never encounter anyone with Alopecia so this website has been a God send. Hope you had a good weekend.

Glad to hear you had a good weekend. Did you get your A/C fixed? I can't imagine it being that hot. We complain here when it is in the high 80's so it must be miserable without A/C and being 115. My kids are 8 and 4 1/2. They are a hand full-they have their dad's energy so they keep me busy. Your kids are so cute. Have you ever asked a doctor what the chances are of one of your kids having Alopecia? That is my biggest fear that my kids will have it also...I don't want them to have to go through what I have. I have not really been to a doctor for Alopecia since I was eight so I don't know what the stats are on the your childeren having it. I was just wondering if you knew. So glad that you have a support group to attend....I wish I had one here. I have a friend with Alopecia but she lives more than 2 hrs. away and we rarely see each other and I don't know anyone else in my city that has Alopecia. Well enough of my chatter. Hope you have a good week and I'll be in touch.

What a relief to have your A/C fixed...I'm sure it's not the news you wanted to have to tear up your wall. Thanks for the info that you had about passing Alopecia to your children. I just say my prayers that my children don't have it. As far back as my family knows they don't know anyone in our family that had or has Alopecia...I have always been the lone person. It was very difficult growing up especially in the small town that I grew up in. I'm so thankful to have a loving husband that accepts me for who I am. The hardest part was when my hair fell out after our daughter. My husband had never seen me w/out hair. The whole time we dated I had my hair...it still is a major adjustment b/t us. I always fell like I let him down in some way and not the person he married. That has been the hardest part for me. It would be nice if you lived closer so we could meet in person. I would enjoy having someone that can relate to me to talk to and do things with. Have you ever been to the Alopecia conference? Do you know if they have decided where it will be next yr? I would like to go if I can get off work. Well once again I have written you a book...so sorry. Hope you have a great night and I'll be in touch.

My hair is currently 20inches. In my younger years I could never find great pieces so now that I can I love my hair long and so does my husband. I have a piece on in this picture made with a monofilament base with lace edges. It is great. Very secure with just tape. I had the vaccuum, and did not really like it, hopefully you will have better luck. I just ordered a new piece made from a synthetic nylon that I could not even tell was not human hair. Have to let you know about that in about ten weeks or so when I get it.

you look great, and your wigs are lovely too.

I will gladly take some pictures. I am not very savy with this web page. Can you give me your e-mail address and I will send a few close-up pictures. The inside is a silicone type material around all the edges for the tape to be placed. Then around that is a lce wrap to give a better hair line. Not the best for pulling my hair away from my face as you can see I wear bangs and shorter pieces down the sides. I have two pieces, and I just sent one back for repair to have new hair put in it. It is human hair so it wears and breaks. I have a great guy that custom makes my pieces to suit my needs. He deals mostly with men, I am one of his few women clients, but he does really great pieces for me. I have been with him for ten years. He is so very knowledgeable it amazes me. My pieces I wear now he sells me for two for 1800.00. I jusr order two new types that will set me back 2800.0 for two. They are the new synthetic material I was talking about. The hair is so like human hair and the hair line he is building for me I will be able to pull my hair back from from face and you will not be able to tell it is a wig. I was amazed. I have to wait ten weeks for them to be made for me. If you are interested in looking into this his web site is: http://hairtechnicsltd.com I was telling him about this website and he said he will be happy to talk to any person with alopecia and help them find someone in their state that makes pieces like he makes for me. He has really been a blessing to me. When I was a child it was so hard to find natural lloking hairpieces and I have tried everything. Their are so many different materials you can use in the base depending on how sturdy you need the piece. I am hard on my pieces so I have a sturdier material in my base. I do have sensitive skin on my head, and it does not itch me most of the time.

what up sista! i love you

Thanks, Sarah, this has opened up a whole new world to me - finally something positive about the hair loss is having met you and all the great people at the initial meeting.

the last half of my pics are from this year i have more to post too. it was a blast. I hope you do get to come next year it is my support boost for the year

i wouldnt miss the conference for the world. it is like missing a family reunion for me. i dont think i could go 2 years with out seeing my friends.

nooo I didnt get it ; (

Thanks sweetheart! There's more to that photo set, when I get more courage I'll post those ones too :-)

Yes, I'm SO glad I shaved it off. I feel so much better. I hardly ever wear the wig. I just feel sad when I wear it. I don't know why... When I have nothing on my head I feel so much better.

Hi Sarah,
Happy Monday!!! Hope you had a good weekend. I just saw the pictures of your Alopecia get together. It looks like you ladies had a lot of fun. Did you know that I've met Nancy, and I think she's just wonderful!!! (Just like you my friend). I hope you can go to the conference next year. I can't wait to meet you and see everyone again. I love the long wig on you too!! It looks beautiful. Have a good day and I'll talk to you soon. If you see Nancy again, give her a big hug from me.
Love and Hugs,
Dotty

HOPE YOU ARE OK ?

Thanks for the note, girlfriend! Talk about cute, your kids are adorable!
I probably will be writing another edition of my book in a couple of years so I will want to use your jello story -- that is so unbelievable.
Hugs!

Hello , Thank you for the warm welcoming ! I finaly got a picture on my page ... This is what I look like ... I will go wig shopping on Monday , Yea .....

hi sarah! see you tomorrow for happy hour? Since there was no group preference, I decided on San Felipes Cantina- after 4:30 or whenever you can get there!

Well the wig shopping did'nt turn out , the lady showed up after we left . We rescheduled for next Thursday at 11: 00 ... I don't know if I should go with short or long , My Niece said I should go with a light brown , so that is the color I will go with ... I'm so excited ... It will take me some time to get used to , cause I have been without hair for a long time... I'm sorry I missed the meeting , but I should be able to make the next meeting ....

Sarah, It was nice to meet you, too! My email address is: jackie_nagel@yahoo.com and my cell phone is: 602-418-4531. I look forward to being involved in our group!
Hugs,
Jackie

No try on . we did'nt even go in the shop cause no one was there ... I will be going back Thursday at 11:00

I'm gonna go this Thursday ... I can't wait : } .... Hopefully the lady who works at the shop will be there when we go at 11:00 ... It's gonna me an experiance 4 me , something new ....

MyHotComments Hope you find some time to chilax this week. ~Heart CAR

Hola Sarita!!!! How are you?, I hope you and your family are doing great!!!!! Me encantan tus fotos, te miras bien bonita!!!! Cuidate mucho y seguimos en contacto!!

Gracias Sarita!, My wig is from Henry Margu, but now it's too old. I'm about to meet Peggy Nkight, so i might buy a vacuum one, i hope so, because i want to feel more secure, and more natural!! I let you know what happen!! Tambien si necesito un consejo te lo pedire si?
Bueno, besos y hasta pronto!!!!!

Hey U !! I went on Thursday of last week .. I found something I like , it is dark brown with a little highlights , and it goes a little past my shoulders ... I tried on a few but that is the one I liked !!! I will take pictures and get some up .... How have U been ? I hope all is well your way !!! Well , I shall close for now ... Hope to hear from U soon ... Take Care U !!!!

Hopefully I get to go pick it up tomorrow ....

Hi Sarah,
Just stopping by to say hello. Hope all is well my friend. I'm excited that the kiddos go back to school on Tuesday. Hope to chat soon.
Love and Hugs,
Dotty

hey Sarah,
I just stop by to give my regards and more power to you...I think you are so brave and beautiful at the same time,,,just to share some things with u, I've never take off my wigs @ home or any place....most of my family and my siblings knew but i've never ever share this with my kids and they never ask any question...i assume they knew but never say anything, they are two girls 14+ and 12years old. I wish i could find a way to let them know whats going on....if u have any suggestions i'll welcome ur thoughts.....

Thank u Sarah for ur response. Never b4 my kids they are the only ones that have never seen me this way but the fact that i was so young when this happens my other families have ,,but u know what since am grown up they hardly see it cause am just always wearing my wigs. I do locked myself in the b/room and admire myself and am as beautiful as if there wasn't any alopecia. Am very outgoing and is hardly noticeable cause i try to appear as normal as possible, i try to fixed my wigs so they look very real then no one can tell if it's that...even if they think it is,, wigs are worn by everyone in this part of the country where i reside. My biggest thing is i've never discussed this with my daughters and don't know how to,, wished they would ask me something, i would definately with no hesitation tell them about it. Hope to find that courage and i think u people are an inspiration, this will help me to do what i have to.....

Thank u so much for ur suggestions i'll definately find a support group...i think there's one in NYC. Well u know what am won't worry not even in the least cause i also have u and the rest as a support,, which i give many thanks. I think am blessed and so ru, take good care of ur self and ur beautiful family.

This is my first semester. I actually got your phone number and email address from Maddy. She's the one that told me about this site. I'll send you an email with my contact info.

I will email you for other info. Thank you. Cheree

Hi There! Since it's a small world, but not that small, I am guessing that you are the same person listed as the NAAF contact for alopecia meetings in Arizona. My son just lost 90% of his hair in the last 3 weeks and while I've shown him some pictures of other kids with alopecia on here, I think it would be good for him to meet some other kids locally. Do you have a meeting set in the near future and have there been kids at previous meetings or is it mostly adults? Thanks for your time.

jimt

Hello!
I have 22 years with alopecia universal ... my hope, stem cells je! Kisses