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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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JeffreySF

Hi Cheryl,

The tree trimming was really fun. It looks so pretty with all the lights and shiney ornaments.
I love to decorate. I guess you do too.. I'll take some pics and post them.
Matt and I had our Third "Bald Boyz do Lunch" today with 2 other alopecians Rebecca and Heather. They are both on this site as well.
Cant wait for the next confrence and Leo is coming this time so you will get to meet him in person.
I hope your holiday season is going smashingly!!!

Big Hugz,
Jeff

Dec 10, 2008
Amy

Thank you so much, Cheryl for the warm welcome!
I am so grateful & excited to have found this group.......I can't wait to get to know others who know what it's like to be me!

Dec 11, 2008
Amy

Cheryl, I just wanted to thank you for the warm welcome!
I'm so excited & so grateful that I finally found some place that offers support, & getting to know others who are battling AA.
I'm looking forward to getting involved.
Again, THANK YOU!

Dec 11, 2008
Scott Ostro

Thank you forthe well wishes back in October. Sorry but the site went down and missed your comments. Hope to talk soon.

Scott

Dec 11, 2008
Eric

Hi Cheryl,

thank for the nice welkom. I feel at home already in this group - great people! Wishing you Happy Holdays.

Eric

Dec 13, 2008
Karina

Thanks for the gratulation om me birthday :)

Dec 17, 2008
JeffreySF

Hi Cheryl,

Hope the Holiday Season is treating you well.
All is good with me.
Would you send me a private email with your address and RJ's address too?

Hugz,
Jeff

Dec 17, 2008
Stephanie Jacquelyn

Hi Cheryl. Thanks for the welcome. I'm glad there is a site like this. I'm slowly coming to terms and it's been a long journey over the last 16 years.

All the best,
Steph

Dec 18, 2008
Nicole

Hi Cheryl,

Thank you for welcoming me to Alopecia World. You & rj are truly blessed to have created this website for people with hair loss. After reading a few of the members profiles as well as yours and comments, it brought tears of joy to my eyes to know there are so many others that I can relate to with this hair loss disease. I found your website yesterday and cannot put into words of how I feel about finding this community. All I can really say is that God works in mysterious ways & I am extremely happy to share & hear stories with others about hair loss and not feel embarrassed about it. I woke this morning with a huge smile on my face and felt like it was the beginning of a new world for me. This website has given me more strength & courage to combat the challenges of having AU. Thank you again!!!

Happy Holidays & Much Love!

Dec 18, 2008
Sam Reid

Hi Cheryl,

Thanks for the walm welcome. I think the post below by nicole puts my feeling into words better than I could. It really is a good feeling to be part of a community that is going through similar experiences. Thanks a lot,

Sam

Dec 18, 2008
Glen

Thanks for the welcome.cant wait to start talking to some of the great people on this site

Dec 18, 2008
Roger

Merry Christmas And A Happy New Year.

Roger.

Dec 21, 2008
Robert Linscott

Hi Cheryl! Thank you for the welcome everyone has been very nice here and the site is fantastic. Thanks again and Happy Holodays.

Dec 22, 2008
Kelsey

im happy to help

Dec 23, 2008
Johnny Q

Thank you! I'm very glad to have found you all.

Dec 27, 2008
Rose

Hi,

Thanks for the welcome and congratulations for your strength. Thanks for the website too. :)

Dec 27, 2008
Diane Hernandez

Thanks so much. Things are good for now. Her spots are all pretty hidden. She is handling it all really well right now. However, we will just have to wait and see how she deals when it gets more obvious, which I am pretty sure will happen within the month. Just based on patterns I can see. This would be such a different deal if it weren't for the fact that she is so self concious anyway. Yet, you never know how outside forces are going to shape a kid's life. Some of my worst experiences as a kid helped shape me in ways that I take great pride in today. Hopefully, the same will be true of her.

Dec 27, 2008
Nants the Rebellion Dog

I wasn't expecting alopeia for Christmas this year! When I think about what else it could be, I feel really fortunate. What a great opportunity for me to get over myself! Thanks so much for this website. I'm sure it's going to be a great help to me as I continue to laugh through life.

Dec 27, 2008
Kristen

Thanks so much for the welcome

Dec 27, 2008
sandra

Hello Chery,
Thank you very much for the welcoming. i was born and raise in Lagos, Nigeria. i came to America Nov. 2002. I am in my second yar of college, and i hope to study accounting. i was told about alopecia by my Godmother. i am very happy to be apart of this beatiful people.:)))

Dec 27, 2008
Sam

Hi Cheryl. Thanks for the warm welcome. I think you and RJ have come up with a great site! it is so nice to finally be able to connect with other people who know what it is like to live with alopecia. Thank you for creating this space!! Happy New Year! -Sam

Dec 28, 2008
Linda

Thanks! I just discovered this web site and I love it. I have had AA since about 1989-90, then it would come and go (as you know) until about four years ago I developed AU. I am now looking for vacuum wigs, a new venture for me. Linda

Dec 28, 2008
Barbara Bruckenstein

Thank you so much for welcoming me to this group..I hope to get more involved in it ...

Dec 28, 2008
vijitha

thak you very much for the welcomming.i am from sri lanka and my english is not good i hope u will help to me learn english

vijitha

Dec 28, 2008
Lastgoodguy

Hi Cheryl, thanks for the welcome. I'm gald I found this site. I look forward to chatting with you and so many others. hope to chat with you soon. Craig

Dec 28, 2008
Nini

Hi Cheryl,
May the Lord and His peace be with you always and may His blessing continue showering you. I wanted to thank you for your warm welcome and yes, it is a struggle indeed. I haven't put any pictures of when I had a full head of hair on this page yet, but I will. It is amazing and very intriguing how Alopecia works, how our hair doesn't like us, but our hair does not define who we are. So we have to "keep on keeping on".

Hope to chat with you soon.

Regards,
Nini

Dec 29, 2008
Galena

Happy New Year Cheryl! It is an honor corresponding with you- thanks for the welcome. Yours is the first beautiful face that I encountered in my internet search for answers. I thought to myself, this sister and her man are such an inspiration to others. You all are really making a difference and I commend you on this site and the other places where you give thoughtful comments and encouragement to Alopecians.

I will take a picture this week to load on the site. I don’t feel pretty, but I’m told by my supportive hubby and others that I look attractive bald. My hair bounced and behaved, it was my identity and joy. I really miss it, but each day I’m doing better with acceptance. I’m a teacher, so I wear a wig to work. Again thanks for having this online forum for us to share and support one another.
God Bless,
Galena

Dec 29, 2008
Diahna Lynn Studio

Hi Cheryl
I look foward to become part of this movement of social change with you. I am really excited about what you are doing. Keep it up.

Dec 29, 2008
GP

Thanks Cheryl! I hope you had a wonderful holiday season and a happy new year. I think this web site is great.

Dec 30, 2008
Jennifer B

Hi Cheryl,

My fiance has "severe" alopecia. She's at work right now, but I knew I had to sign JB up on your weblink. Your info and connection with all of the members is going to help JB get back on track to being healthy and living a more happy and upbeat life again. She has been down lately, but I know she will love connecting with the forum members.
Happy New Year and keep up the great energy to all out there with Alopecia.

Jb's Fiance,

Kevin

Dec 30, 2008
Roger

Happy New Year Comment Graphics
Comments & Glitter Graphics for Myspace, Hi5, Orkut, Friendster

Dec 31, 2008
Phillip (Flip) Miller

Thank you for the warm welcome Cheryl! I think the site is wonderful and the people here have been amazingly warm. Life, for both of us, is a struggle sometimes as Carol is suffering through a series of colds and other complications that often plague her this time of year. We are however, going out tonight to ring in the New Year. Thank You, and Enjoy Yourself!

Dec 31, 2008
Roger

HAHAHAHAHAHA.

I was looking at the Rj elf dancer at the top! It was so hilarious! WTF!!

Hugs, Roger.

Dec 31, 2008
Brittany

Thank you for your comment Cheryl! :)

Dec 31, 2008
Johnny Q

I just wanted to thank you for making this site, I am meeting some wonderful people, and already it's having such a positive impact on my life. Happy New Year!

Dec 31, 2008
Linda D. Lewis

Hi Cheryl. Thank you so much for welcoming me to your website or should I say everyone's webesite who has AA. My you and RJ have a blessed holiday and New Year. Thanks again for welcoming me and I look forward to visiting Alopecia World. God Bless you and your family.

Dec 31, 2008
Skin

Hey Cheryl. All the best to you & yours for 2009 too. xx

Jan 2, 2009
KamrynsMommie

HI Cheryl,
I just wanted to say I think you're a great person and I can't wiat to meet you in person, RJ is lucky to have you!

LaToya

Jan 2, 2009
Nelly

Hello Cheryl,

What lovely photos and warm personal greeting!! So glad you helped create this great website.

Happy 2009!
Nelly

Jan 2, 2009
Stephanie

Hi Cheryl
Thank you for the welcome message and creating this web site!! I had been looking at it for a while before I created a page, and I am glad that I did! I think this site will help me finally come to terms with my alopecia, and help me start living my life again! Thank you!! Stephanie

Jan 2, 2009
sharon prophet

thank you Cheryl for the welcome message, I look forward to getting to know you too.

Jan 3, 2009
Kayreyn

Hi Cheryl,
Thank you & RJ both for joining The Prayer Group and more importantly, for creating this site! There is nothing like the power of prayers and the miracles that it may bring.

Jan 4, 2009
Brittany Bullard

Thank you so much Cheryl. I can't wait to get on here and look around. Been so busy-just got my tree down yesterday. Thanks again and hope you have a fabulous day. Britt

Jan 5, 2009
Diahna Lynn Studio

Hi Cheryl

Happy New Year. I wish you a prosperous and joyous new year.

I would like to invite you and everyone in this community to a wonderful inaugural ball. I am not sure how to do that and if I am allowed to do that. I will admit I am technically challenged. Please let me know if you permit it and if so how do I go about doing it.

Thanks
Diahna

Take care
Diahna

Jan 5, 2009
Moni

Hello, Missy. I was thinking about the site and said, "Wow, if it weren't for that lady and her boyfriend I could still be feeling so lonely." SO, from the bottom of my heart, Thank You a Billion-Gazillion times. May God bless you double for all you guys have done for parents like myself and Alopecians. You totally Rock. Have a wonderful and healthy 2009. Bye for now.

Jan 5, 2009
Roger D.

Thank you all for your comments. I have navigated this site as much as I know how so far and think it is a very good thing. My son's name is Austin. I am going to tell him about this site tonight and hopefully he and I can get online so I can show him the treasure that I have stumbled onto. I would love for this to be the start of something great for him. He is a great young man and I love every opportunity to help him feel better about himself and his future with Alopecia. Thanks again guys. Talk to you soon. Roger

Jan 6, 2009
Tracey L.

Hi Cheryl! thanks for the welcome. And thank you for creating a wonderful site. It is people such as yourselves that we need to be thankful for.

Jan 6, 2009
Judite

Hi Chery!
Thanks for the welcome. There are very friendly people :)
Happy New Year!

Jan 7, 2009
Penny++Amy's Mom

Hi Cheryl thanks for the welcome and looking forward to getting to know you My daughter who is 14 now has had alopecia since she was 9 sometimes things get tough because kids can be so mean. This is a wonderful site

Jan 7, 2009
Sherrilyn Smith

Hello Cheryl please let me know when I can talk to you online My husband and I are working on starting a Houston group. I would like to get some of you great help on getting started.

Jan 7, 2009

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