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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Ursula

Thank you for the warm welcome. I sit here with a lump in my throat, with my son watching me, not knowing and understanding why I feel the way I do. I am just like him in a way, I don't know why either. I am scared, tired and feel so lost... trying to cope and find help and support with the little resources we have in our little Community. I started losing my hair in October (lost it all in less than a week or so!) I was so devastated! Still am! I am the only one here in this Community who has this, but I have been hearing many stories... and I am still open to any suggestions or opinions... thanks again for listening or I mean reading :) Your site has made my day! Feeling and finally knowing I am not the only one... God Bless

Feb 4, 2009
Kurt

Thank you. Still trying to get the hang of the site lay-out. But I'll check in on a regular basis. I'm not much of a poster, but I'm always interested in reading peoples stories. Be it things that happened, tips for fellow sufferers or just plain venting. Keep up the good work.

Feb 5, 2009
di

Hi Cheryl,
many thanks for your welcome email. I found your website Alopecia World by chance. I have foud Alopecia World a great support.
Thanks once again
Di Manchester England

Feb 5, 2009
linda latson

thanks i will be in toucch looking forward to all the new and exciting things

Feb 5, 2009
Anastasios

Hi Cheryl, Many thanks for welcoming me to the site. Congratulations to you for being co founder too. I will add more info to my profile as I get the hang of this and a bit more "me time". Keep up the great work that you guys do x

Feb 5, 2009
summer

Hello Cheryl,
I am fasinating about alopician world.
Alls these open person who shows such a lot of energy and postiv feeling for life. This world shows everybody with AA how live can be lived if yourself akzept and looks forward.
I am living in this way even I had my hair completly back for one year. It is like it is and I can not change it only find a way for myself. Everybody with this sickness has feelings like a rollercoaster. Sometimes better sometimes wores. I do have a lot to rebuild and to reestablish in my live know and there ist no time to be hinder because I am blad again. It is not always easy but I do work hard to win.
Thanks a lot for these alopicanworld to shaw the world our life.

Greetings summer

Feb 5, 2009
donna

thanks i have had alopecia for a very long its good to talk to others

Feb 5, 2009
Beth

Thanks Cheryl - I'm happy to have been introduced to your site! It's impressive and so far reaching! Mary is a happy 5, almost 6 year old. She was born with alopecia, so has never had hair - which I think may be easier than losing it. So far so good, but it's nice to have resources like this site to help her through any difficult times ahead.

Feb 5, 2009
Nitza

Hi Cheryl, Thank you for the warm welcome. Still very new to the idea of having A.A

Feb 5, 2009
kaitlin lavin

hi! thanks for the welcoming. i only found out a little over a year ago, so i'm still pretty new to everything. this site is helping me a lot. thank you so much!

Feb 6, 2009
Nicole

thank you for your welcome!!!

Feb 6, 2009
Stephanie

Heya Shurl! I was just looking at my page (um - been a while - oops!). Anyway, saw one of the last posts you left me was April 28, 2008! Can you believe you will be saying the same thing to me again soon (i.e. I'll soon have my life back...) Geez - tax season is upon us again. How did THAT happen so fast. So many things have changed in just one year though. Wow... Kinda crazy to think about it.
I'll see you tomorrow for your moving sale! Big day... I love you Carvery!

Feb 7, 2009
Kristine

Cheryl ! I never found the bald bride cake topper. But we did have the most beautiful and amazing afternoon fall wedding on the river. My mom is a floral designer and she put together a beautiful wreath of flowers and I also wore a small white angora cap due to the comfort and chilly fall air. I will have to send you a photo. Cheryl, I just want to thank you and R.J. for such a cool website. You two are angels. Thank you. Thank you...

Feb 7, 2009
Sheila Burton

Hi Cheryl
Thanks very much for your warm welcome. Making this site was a brilliant idea so thank you and RJ for all your hard work.

Feb 8, 2009
john

hi cheryl how are you? i'm 37 and i've been losing my eyebrows since i was 20 but now its very noticeable and i have been feeling kind of down.... hopefully i will overcome it.

Feb 8, 2009
JeffreySF

Hi Cheryl,

I wanted to stop in to say hello and see how things are with you and RJ.
How is the move going? All is good with me.
I've got the NAAF Conf all booked. Woo Hoo
Hugz my dear,

Jeff

Feb 9, 2009
JeffreySF

Hi Cheryl,

I think of you ofen as well. Glad you are well.
Only 3 more weeks and then you will have time to exhale.
Happy Valentines Week.

Jeff

Feb 9, 2009
john

so how did it start? did u lose all your eyebrows? and how long did it take your eyebrows to grow back? i would like to know

Feb 9, 2009
Kristine

Hi Cheryl ! I just posted a few photos of our wedding day on my profile ! Check em out. I didn't even think about hair that day. That's love...

Feb 9, 2009
Jan and Zofia Mroz

Thanks Cheryl, we are parents of Ivonna, she just joined your site few days ago and invited us to join. What a great site it is. When she was growing up with alopecia it was very lonely expierience for her, now people can see others with the same condition, learn from each other how to cope and share thoughts. And also for parents it gives wider perspective and morre insight.

Feb 10, 2009
Jean

Hi Cheryl,
Thanks for the welcome! This has been an interesting and difficult journey for me, the most difficult is not being about to make my sons' life "better." I understand that this is not the end of his world but I'm sure you know the battles he struggles with. I'll look forward to more conversations.

Feb 10, 2009
ashton : )

wow , thank you sooo much for welcoming me ! i have had alopecia scince i was 4 and im 13 now sooo . . .

Feb 10, 2009
Julia Gedeon

thank so much for the welcome, and thanks for building this site.. I have had alopecia for 29 years now.. and this is the first time I have found anything like this.

Feb 10, 2009
ashton : )

haha , thank you !

Feb 10, 2009
Tana

Thanks for your warming welcome.
I am so glad i found this site.
Its a struggle for everyone who has alopecia.
Sometimes i think why did it happen to me?
But whatever the reason, god has a reason.
I just don't know what that reason is yet.

Feb 10, 2009
Portia Mason

Hello and thanks for the welcome. I wish I could remember the type of alopecia I have. The dermatologist says its stress related. That's all I know. all I can say its a little hard since I am new to this and know that its going ot take a while before the treatments start working. One Question, if it is stress related, does it mean its not an autoimmune disorder? I read that somewhere that it is a autoimmune disorder regardless the type of alopecia. I have no photos as of yet. I will say I am an African American lady. Thanks again I look forward to hearing from you soon.

Feb 11, 2009
JoDeanna

Dear Cheryl
Thank you for the very nice welcome. Gee, its almost like we are family because I sometimes feel so alien to other ladies with healthy hair. Even though I wear wigs and have gotten weaves they cannot compensate for what I don't have naturally. However, I won't complain as there are people with much worse afflictions. Blessings, JoDeanna

Feb 11, 2009
Michael

Hello Cheryl,
thank you for your wellcome greetings and this really interessting website. Sadly in Germany it´s still not easy to find people with this disease and communicate about. Doctor´s allways have the same things to tell and give useless and harmfull therapy.
Thank you so much for your work :)

Feb 11, 2009
Laura

Thanks sweetheart! You and RJ are brilliant for making this website, btw. Hope all is well with you!

Feb 11, 2009
Tanya (Ash's mom)

Thank you, Cheryl! I love this site! I got my daughter to join and wow what a difference already, just chatting with others in her similar situation has helped her. Thank you soo much

Feb 11, 2009
Denise Reed

Thanks for the lovely welcome. Still getting used to the site but enjoying every minute of it.
Thank you

Feb 12, 2009
Ron Cheek

Hi Cheryl, Thanks for the greeting. I look forward to learning more about this site and meeting more people who share similar situations. I've been living with alopecia for about 11 years now and it has become a part of who I am. Life is great, wouldn't change a thing! Ron...

Feb 12, 2009
JeffreySF

Hi Cheryl,

Stopped in to say hello.
Wishing you a Happy Valentines Day.

Hugz,

Jeff

Feb 13, 2009
Ursula

Good day Cheryl;
Thanks for the comment, no I have not been in contact with Nathan???
It would be great if we can connect...

Have a wonderful day, take care!
Keep up the good work

Feb 13, 2009
Brittany

Hi Cheryl..

did you see this yet?

the chimpanzee with alopecia universalis died.

http://www.ksdk.com/news/local/story.aspx?storyid=167650&catid=3

Brittany <3

Feb 18, 2009
Brittany

Hi Cheryl!!

thank you!=]
After I read that, I really feel sad..=[
I just made a discussion about it..

Brittany<3

Feb 18, 2009
Brittany

Thank you Cheryl for taken a look at it...

how have you been?

Brittany <3

Feb 18, 2009
kastababy

Hey Cheryl!

I'm doing well; I'm about to start working from home so you will definitely see me more often!!! How did you and RJ spend Valentine's Day?

Todd is doing well; amazingly so if you check out my new blog!

Love, YoKasta

Feb 18, 2009
Brittany

Well school has been very busy between photography and the yearbook.
This week my alopecia has gotting worst.
I lost more than 75% of my hair.
My mom is ordering a scarf for me from Susan Beausang [www.4women.com] for the warm weather.

Feb 18, 2009
Danielle

thanks for the welcome!

Feb 18, 2009
Brittany

I'am one of the photographers.
And me and my friend Sophia are both Photography and Art editors.

Also, Did I tell you I won craziest hair style in the yearbook, because I wear the colorful hair extensions under my wig.
When I get my yearbook I will scan it and upload it to my page..

<3

Feb 18, 2009
Gabriel

Thank you for welcoming me :)

Feb 19, 2009
Natalie

Morning Cheryl, thank you for the warm welcome! Still having trouble getting my head round all of this, and coming to terms with not knowing, think that may take me a while! Its so reassuring to find so many people that have already been where I am and survived! Thank you!!! xxxx

Feb 19, 2009
Gabriel

Thank you for your post, actually i am in Berlin, and i have a good friend who has allopecia, i am trying to know more and understand what the people really feel about it, and may be how can i help them to solve some problems. I don´t have allopecia, but into my family we have a member with some problems too...
Thanks again,
best regards,
Gabriel (from Argentina)

Feb 19, 2009
Donna

Hi Cheryl,

Thank you for your message and congratulations on a fantastic site. I'm really looking forward to getting to know everyone.

Feb 19, 2009
porcelinh

thank you cheryl for the warm welcome. this is a great site and there is alot of wonderful people on here! i am happy to be one of the members. take care, Holly

Feb 20, 2009
Spot

Cheryl,
Thanks for this site!!!!
Spot

Feb 22, 2009
Karen Froehner

Hi!
Hi Cheryl,
I am finally coming online and getting involved with AW. I have just been too busy. I really enjoy reading the comments on the site.
Take care, Karen

Feb 23, 2009
elaine

hi cheryl wondered if you can help me. going to florida in may and wanting to glue my haipeice on been reccomended vapon glue. told that in america it is poular AS IT survives the watepools and the heat do you or anybody on the site have any info on this
thanks elaine

Mar 2, 2009
Sheila Anderson

Thank you. Thank you. Thank you. Richard's sister Dianne (one of my coworkers) shared this site with me yesterday. I explored it in detail when I got home from work yesterday and cried at just knowing there are other women out there who have or are losing their hair and yet they are strong and beautiful. I look like bozo the clown, right now. In other words I have hair on the sides and in back but nothing on the crown. I am leaning very close to shaving it all, probably in the summertime; I am so so so tired of wigs. Sheila L. Anderson

Mar 2, 2009

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