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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Barb Petersohn

Hi Cheryl,
Thank you and your hubby so much for this website. Especially because I just realized a few months ago that I have alopecia. I am going to the doctor this month. I am really nervous. What do I ask? What kind of treatments are there? Any suggestions?
I cried a lot today. I also have depression for many years so I am fighting two battles. But I am a fighter.
I am 59 and trying to figure this out. I am so glad I can talk to people with the same issues. I have a great family that I know will be there for me.
Thanks again,
Barb

Aug 10, 2009
Renee J.

Hi Cheryl,

Thanks so much for the friendship. My friend and I plan to do a Thelma & Louise, Oprah and Gail traveling adventure next month - mostly Northeastern region - one of the stops will be in Montreal. So any suggestions for sites, hotel stays etc., would be greatly appreciated

Aug 10, 2009
Thomas

Thank you.
This really is a great site.

Aug 12, 2009
Katherine Ramos

Thank you for the warm welcome, Cheryl. I can already tell that this community is a great place to grow and learn. You are very intelligent and I am thankful for the fact that you and rj founded this amazing site for people like us.

Aug 12, 2009
Emma Robinson

Thank you vy much for welcoming me

Aug 14, 2009
Pamela Rosse

Hi Cheryl, I wanted to take a moment & thank you once again. Without this wonderful site that you & RJ founded I never would have found the strength & voice to continue my appeal requesting coverage for my cranial prosthesis. I have medicare benefits but have an insurance which you sign over your benefits too. The insurance company actually covers wigs, especially for those undergoing chemo &/or radiation therapy. Sadly since Medicare does not cover wigs/cranial prosthesis the insurance company does not have to pay for them. I got angry, I know it may be a losing battle but I am going to take this fight as far as I can.If we do not speak up & out policy will never change. I have even contacted my Senators & Congressmen. Once again thank you & God Bless you & RJ.

Pam

Aug 15, 2009
Ellie

Thank you. I am looking forward to getting to know everybody.

Aug 21, 2009
John M.

Thanks so much for reaching out Cheryl.

Aug 21, 2009
Shay and my girl Kaleigh :)

thank you. It has been helpful already to have learned what I have from the little amount of time I've been able to spend here. I will definately be back! Sharon

Aug 21, 2009
alyssa

hey cheryl
im proud to be on here.
i found this place throw you actually, you added yourself on a facebook group i made.
thanks alot
alyssa

Aug 21, 2009
Nicole O'Brien-Dupye

Thank you very much I love it...It is awesome!!!

Aug 21, 2009
Steve Edwards

Thank you :)

Aug 21, 2009
george

Cheryl, Thanks for creating this site, It is very helpful to me - beyond words....

George

Aug 21, 2009
phillipa

Thankyou Cheryl, Im very gratefull to find this site, Its helped me to regain some sanity!! Your strength and compassion is inspireing!
Mauri Ora!

Aug 21, 2009
joannesummerside

thanks for replying im new to all of this but its better to talk to someone what understands thanks

Aug 22, 2009
Jackie & Ashley Carlin

Thank you.... i just hope i can find some info for my daughter... she is 14 and starts high school next week.... i am very scared for her, i had never even heard of this before....

Aug 23, 2009
Kimberly Rolon

Thank you Cheryl!!!. This is a wonderful and inspiring site. Thanks for the warm welcome.
Blessing,
Kim

Aug 24, 2009
Heather

Thanks, Cheryl. It's comforting to know that I'm not alone. This website is brilliant.
Thanks,
Heather

Aug 24, 2009
Christine Simons

Thank you very much! I`m looking forward to it!

Aug 25, 2009
annabel lomas

Thank you for the message. This site is great and has helped me so so much already.

Aug 27, 2009
Sarah Parks-Pittman

Thanks Cheryl
I appreciate the opportunity to connect here. It's brilliant :)

Aug 27, 2009
Loraine and Sammy

Thanks so much for your welcome message.....as my little girl gets older her AA becomes more severe and impacts on her so much more, It is such a positive to know we can both share and learn from others going through the same. You've done a great thing

Aug 28, 2009
marisol Rodriguez

thank you cheryl! I have enjoyed every moment here. There are so many sweet understanding people ready to help. I love it!

Aug 29, 2009
Katie

Hi Cheryl!
Thank you for making me feel so welcome! These past couple months have been difficult but I can tell this site is just the place to get advice, support, etc. without even leaving my room! Good for you that you helped in putting together this amazing networking site--very impressive!! ;]

Aug 30, 2009
Jonathan

Hi Cheryl,
Thank you for the welcome and for cultivating such a friendly group!

Aug 30, 2009
Sally

Dear Cheryl , thank you for your comment and your warm welcome....:*

Aug 31, 2009
Carlotta Sezzi

Thank you so much, you are all so kind and lovely here! I think I find a brad new world! Thank you!

Sep 2, 2009
Ann Laurie

Thank you for the Welcome! I have already found that this site is full of generious and loving people! It really helps when all you need is to feel understood!

Sep 2, 2009
Sandy Collins

Hi Cheryl, thanks for the welcome. I'm finally reaching out after having alopecia for 33 years. It can be a devastating disease, damaging to self esteem! Thanks again. Sandy

Sep 2, 2009
Nicolle joi houseman

Hi Cheryl, thanks for the welcome!!!

Sep 2, 2009
tanisha richardson

thank u Cheryl its a pleasure to meet you thank you for the welcome at one time i thought i was the only one in the world with alpoceia i now see i am not alone

Sep 2, 2009
Roberto Reyna

thanks, i appreciate the comment, i hope i will find a friend who can share his or her wisdom with me, i´d like to have friends all around the world, and honestly i´ll open my heart,mind and thoughts to everybody who wants or needs a hand. í hope to find a friend.

Sep 2, 2009
Donna DeHoog

Hey Cheryl! Thank you for the welcome and developing this community. It will be wonderful to be understood and not ridiculed. I work in the medical field...you would think others would be understanding. Thank you again!

Sep 3, 2009
Lynn

Thanks Cheryl for the welcome, I can tell already this is a friendly, caring and accepting world, can't wait to start connecting with people.

Sep 3, 2009
Melissa Francis

Hi Cheryl,
Thanx for your warm welcome :)
liss

Sep 4, 2009
Donna DeHoog

Thank you Cheryl! It is so nice to have such an understanding group! Thank you for founding this group! I have a friend that is a respiratory therapist that is going through hair loss as well. I will definitely tell her about this group.

Sep 6, 2009
Mary

Hi Cheryl! I'm doing great - catching up on things after our Hawaii trip, and getting ready for some upcoming band performances. Hugs to you and rj,
Mary

Sep 7, 2009
JeffreySF

Hi Cheryl,

How are you and RJ?
All is good here. Leo and I just had a wonderful holiday in Vancouver.
Our Boston Get-Together is coming along quite well...slowly but surely.

I would love too spend some time together. Wink Wink....

Hugz,
Jeffrey

Sep 11, 2009
wan

hi Cheryl, thank you so much for your warm welcome :)

Sep 11, 2009
Nancy Berner Smith LPN

Thank you Cheryl. It's great to network. What did we do before the internet?
Nancy

Sep 11, 2009
Hilde Gabbis

Hi Cheryl
Thank you for your warm welcome :)
I hope to connect with so many friends as possible.. to get to know them better and share stuff :)

Sep 11, 2009
Allexis Maree Spencer

Hi. thank you for welcoming me! I am looking for new friends.

Sep 11, 2009
Vesna Devcic

thanks Cheryl for welcoming me!! I am sure I will have a great time on here. I already have some nice friends :)

Sep 13, 2009
Kirsteen Forrest

Hi Cheryl!! Thank you for welocming me to this wonderful site!! You instantly feel that you are welcome and everyone is very inspirational and special - I love it- it1s very comforting to me as I don't know anyone else with alopecia. Thanks again, take care!

Kirsteen x

Sep 13, 2009
Tracy

Hello Cheryl! Thanks for the welcome. Sometimes I just need a little support from the people who know........

Sep 13, 2009
Keith Reed

hey there cheryl. its about time i got on here. how r u?

Sep 13, 2009
Lisa

Thanks for the welcome! I love this site and have learned so much about this disease already. I want to do anything I can to try to stop this for my daughter as she just started high school. I want to try some natural products I am finding, they are expensive but worth it if they may work....I just don't want to be hooked into a scam so that is scary.
Thanks,
Lisa

Sep 18, 2009
stephanie hammond

Thank you so much! So you co-found this website! That is awesome!! I am looking forward to meeting new people and sharing my ups and downs. Thanks again. : )

Sep 18, 2009
JeffreySF

Hi Cheryl,

Popped in to say hello.
How are things with you?

Big Hugz,

Jeffrey

Sep 18, 2009
Suzanne Currier

Hi Cheryl,

Thanks for the welcome. I've been in complete denial about the alopecia, for 10 years, since I was in my early 40's. This past bout with it, finally, woke me up. I still have a very little bit in front, none around the ears or the crown, little bit in the back. Kinda tough to style no hair. :)

Was laid off monthes ago, but, I have a job interview on Monday. I was in the bathroom, crying, trying to figure out what I was going to do. Feeling really sorry for myself on one hand and ticked off at myself on the other. I sat down at the computer and got on to facebook and typed in Alopecia, there popped your website address. Amazing. After going through your website, starting feeling hopeful. I started emailing people and found a wig shop close by. The woman owner had alopecia areata and her daughter does also. She even took off her wig and showed me. I had a really good time trying on wigs. I'm now a proud owner of one. :) I was crying when I left there.

Thank you very much for starting this website, it really opened my eyes.

Sep 18, 2009

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