Samantha

44, Female

Chicago

United States

Profile Information:

Relationship Status:
Married
About Me:
Diagnosed in April of '08...lost hair EVERYWHERE and fast... universalis. I've always been all or nothing!
Currently I have all of my hair with some patches that I can fill in with hair fibers. Lots of exclamation point hairs which looks yuck. Hair growth slow to come in, but it's there!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://www.SammiFit.com

Comment Wall:

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  • claire

    hi sam hope your ok you look great and if its getting you down shave it all off you will adjust quicker look at me....im bald and proud...
  • jennifer

    i don't have mine, but i have figured out my makeup so it looks like i do.
  • claire

    thanks for your nice comments ive had alopecia universalis for three months and shaved my hair off after eight weeks as it was looking bad and feel much better for it, i draw my eyebrows on and everything else, so not bad really.....
  • claire

    HI SAM, NO I WONT WEAR WIGS PROUD OF BEING BALD AND I DRAW MY MAKEUP ON HAVE A LOOK AT MY PHOTOS, HOW DID THE EYEBROWS GO.
  • claire

    hope your ok, ive just got home im on a tv show in england for alopecia sufferers so ill tell you all about it when i know more, hows the eyebrows going ?
  • Jennifer

    haha frente rocks! my sister saw them at the big day out in melbourne in the early 90s when she was 18...she got to go back stage and hang out with angie hart the lead singer and the rest of the band and have a few drinks. i was only in like grade five then but i was stoked that my big sis got to hang out with frente!
  • Mandy

    Hi Samantha! I went to this place called Naturally Yours in Willowbrook on Rt 83 (Kingery Hwy). I really liked it. They are very nice and knowledgeable and it's very private there - they don't really let anyone in without an appointment. So when you go you're the only one there getting all the attention. ;)
  • Nicole

    I did not tip when I got it done.....I figured he had figured a commision into the procedure cost. : )
  • 3mee

    Hi Sam! Really appreciate that you read my profile. I had AT a year ago. Now its AU. Still falling. Understand how you feel. I shaved my head last year but most of my friends cant take it so I buy myself a wig. Its totally different being an AU in Malaysia. How I wish I live in US, UK, Europe or anywhere where others don't mind bald women.
  • 3mee

    That picture is funny. Its not easy to be as thin as that. LOL
  • Nicole

    Isn't it amazing the difference eyebrows make!!! I am so happy for you! I can't wait to see a picture of how they turned out!! :)
  • 3mee

    tat's a good answer! I'll try tat out when the jerks laugh at me. that ll serve them right, isn't it?!!
  • Christina (Mom of Becky)

    No I didn't hear about it. I have to work this Saturday so I doubt I'll be able to make it. Where in Oak Lawn and do you know what time? I'm hoping maybe they'll have another one that I can make. Glad to hear you were able to work with your own hair. And, congrats on the new brows. I'm sure they look great. That's an option I'm gonna let Becky decide on when she is older. You'll have to let me know who did yours so when the time comes I have a reference.
  • Ashley

    Hi Samantha! My hair fell out VERY VERY slowly. I first noticed it in August 98, and didn't get my first piece until the end of the year in 2000!! I was also lucky because my hair came out underneath first, so I was able to hide it for a long time too. I still have eye lashes, and hair all over my body, except most of my brows.

    I see you're in Chicago...I just recently moved from there! I miss it. Will be visiting in October and can't wait!
  • Mandy

    Yeppo! Posted an update on the group discussion. I really wish we got notified in the activity at the top of the home page when new stuff is posted in our groups. That stinks! Anyway yeah I went. It was cool - I'm glad I went. Met Squonk from our group. LOL. We have 11 members now, so I'll try to get something together for us soon! This week is busy with holiday stuff and then I have a wedding the next week...but soon thereafter I'll get something together!!

    Hugs,
    Mandy
  • Roger

    Hi Sam.

    Whats the name of the singer you have here?

    Rog
  • Roger

    Thanks!

    Its a REALLY good song. By the way....I think im going to Chicago in september/october. Looks like a cool place.

    Roger.
  • Roger

    Yes, vacation in New York and Chicago under 10 days. I know a lot about Chicago cuz my neighbor you know :)
  • Roger

    Im going with him but he will stay with his family in Chicago. Im on my own there =)
  • Ashley

    My hair came out so slow that I never even actually noticed it falling out! It was like a spot would just appear. Brows were the same way...I first noticed the shape of my left brow was changing at the beginning of '05 and didn't have to get the tatoos until about a year ago. My hair was long before...really didn't look much different than it does now! :) I had a very small patch of regrowth on the top of my head about 3 yrs ago, but that's it. I don't ever go to the Dr or anything anymore. It just upsets me, when I'm never usually upset about it!

    I lived in Lincoln Park for 2 yrs and just off Michigan & E. Chestnut for a year. Do you live in the city? I used to be a cocktail server at Rockit Bar & Grill for about a year in 2005. It was such a popular place, people often recognize me from there!! At least they used to....
  • Ashley

    I lived pretty close to you in Lincoln Park...at Clark & Fullerton...a couple doors down from Urban Outfitters. I definitely went to Weiners Circle a few times! We also used to often walk to the Golden Nugget up there all the time in the wee hours of the morning! LOL I moved here for a guy...didn't work out, of course! haha It's ok though...I like it here. I like moving around anyway....I do it A LOT!! :)
  • Mandy

  • Mandy

    Hey chica - let me know if you're gonna make it Saturday, k?
  • claire

    SAM HOPE YOU ARE OK ?
  • claire

    thats great news sam im really happy for you let me know how things go...
  • LeslieAnn Butler

    Hi Samantha,
    Did you ever decide what to do with your eyebrows?
    I just thought I would catch up with you and find out what you are doing lately.
    LeslieAnn
  • Hugh Mclellan

    How are you doing ? You look great.

  • Jessica

    Hi Samantha,
    Thank for accepting my friend request. I'm in the chicago land area also going through kinda the same thing. Like I said in my profile I lost about 50% of my hair last year shaved my head started the shots and have had total regrowth. But now it's starting all over again I've lost some body hair and my eyebrows are thinning out. Not sure where its headed but glad to know there are other people out there that i can talk to about this crazy situation. ps if your curious of what i look like you can see a pic of what i used to look like on my myspace page just click on my website address.
    jessica
  • LeslieAnn Butler

    Hey! It sounds like you're having fun, watching your hair grow, hooray!
    Yes, the book is out. You can get it by clicking the link at the bottom of my page, or you can go to Amazon.com or the NAAF Marketplace!
    Let me know how you like it!
    LeslieAnn
  • Jessica

    Hi Samantha,

    Not sure if you got my last comment. Just wanted to say hello. Myself and a couple of other Chicago Alopecians are getting together next week if you want to join let me know we've settled on a day but not time or place so any ideas are welcome,

    Jessica
  • Jessica

    Hey Samantha, I keep trying to leave a comment but they aren't showing up not sure what I'm doing incorrect they wont post.
    let me know if your have gotten any of them.

    jessica
  • Jessica

    ccc
  • Jessica

    Hey Samantha,

    Ok I am a great big dork I'm so sorry about the over load of comments.
    Well it sounds like your hair is on its way back in that's great.
    I've been dealing with this for about year. About 5 months into my third pregnancy I noticed the hair line by my ear getting higher up I would run my hands through my hair in that spot and I would have about 40 hairs in my hand. By the time I gave birth I had what the doc's call the Ophiasis pattern it starts on one side of the head and goes all the way to the other. Like when we were kids, girls would shave their sides and underneath thats what it looked like what a great hair style right. So Dec. 6th I shaved it off and got a wig.
    Guess I should have done it the other way around cause I ended up with a real hair wig and it looked nothing like I used too. So I started the steroid shots in November and had total regrowth by Jan. in April I got the last set of shots and the doc thought I went into remission so I stop getting the shots. Then in June I noticed a few spots they can be covered but now my eyebrows are thinning and my female hair is falling out guess that the up side is this little problem. lol So I've started getting the shots agian but I'm not sure how long I will continue its very hard to deal with it growing back then falling out again like you and so many others of us I would rather have all or nothing.
    Where did you grow up? I went to Hinsdale South I was class of 96. Lived in Az for a while but Chicago Burbs forever. My best friend Michelle lives in the city Fullerton and Clark.

    we are going to try for wed next week haven't picked a place or time so if you think you may be able to make it then we go closer by you so you don't have to travel so far.

    Jessica
  • Shannon

    Wow, Samantha, thanks for such a nice comment on my blog! You made my night! You are a beautiful girl and I definitely get a great sense of your bright spirit and that you have a really radiant personality. I look forward to getting to know you better!
    By the way, I see that on May 23rd you were thinking about doing eyebrows and liner. Did you do it? I LOVE having my brows and liner done (especially now that my brows and lashes have grown back. who doesn't want to get out of the shower with their makeup done?!)
  • Shannon

    thanks, samantha. glad to hear you've got a lot of regrowth! i hope it stays! through all my stages i have still always had to shave my legs. lame, huh?
    thanks also for your comment on my son's mohawk. i thought it was funny that somebody would write that and i also work as an interpreter for the courts and i've never seen a gangbanger with a mohawk. funny. i saw a girl on here that had a blue mohawk for awhile and i thought it was awesome! if i lost my hair in any type of pattern that would allow me to do that, i would so have a mohawk and dye it some cool color and spike it high while playing soccer especially!
  • claire

    hope you are ok hows hair growth going mines gone big style have a look at photos claire x
  • claire

    SAM HOPE YOUR OK HOWS THE ALOPECIA GOING , HOPE YOUR STAYING STRONG....
  • claire

    HI SAM WELL, IM STILL THE SAME AT THE MOMENT, BUT IM COPING OK, IVE GOT EIGHT NEW WIGS AND IM HAVING FUN WITH THEM , SO ONWARDS AND UPWARDS AS THEY WOULD SAY.....
  • claire

    sam how are you ? ong time no hear....
  • claire

    sam glad to hear you are ok, glad your hair is growing back... speak soon xxx
  • claire

    sam thanks for the lovely comment i have lost everything eyebrows and eyelashes too, still patchy on head though so keeping my fingers crosssed xx how are you x
  • Jessica

    hey how have you been?? yeah we got together but we do every 3rd thursday of the month.
    Not doing to bad still losing hair but it's slowed down.
    hey did you get your eyebrows done i need to let me know. I am coming down to the city on the 18th I'll let you know where we are going it's for a friends 30th.
    well write me when you can

    jessica
  • Stephanie

    Happy Birthday!!
  • Natalie

    Hi Samantha! That is awesome to hear that running keeps your spirits strong, too :) My half-marathon went really well- it was in Lake Geneva, WI, so the scenery was unbelievably beautiful! We ran through woods and past horse pastures...just amazing! Hope that all is well and talk to you soon.
    Cheers,
    Natalie
  • Jessica

    aww thanks samantha. how is everything with you these days? got my eyebrows done and love them got a vacuum wig too. this going bald costs alot of money jeeze. well hope to chat again soon
    have a great summer
    jessica
  • Jessica

    hi i went to a skin of a different color in aurora i paid 300 as she charges 60 for touch up
  • Karina

    Samantha..how fresh you are!..I want to know if you are wearing a wig and if it´s comfortable..
  • Mandy

    Hey Samantha! yeah my hair is growing back! Crazy, huh? I just have a couple small spots that didn't grow, but no one can tell but me. :) Hope everything is going well with you!!
  • Georgia Van C

    Hey Samantha!
    Thanks so much for your lovely message!
    We are just editing the documentary now and hope to have it out and for viewing in the next 6 months - I promise everyone on alopecia world will know when it is!!!
    Until then sending you a big hug and I hope everything is going really well for you!!
    G
    xx
  • Georgia Van C

    Smiles to you!!