Hi Sharla. Welcome.

Hi, Sharla. Welcome to the site.

Thank u all guys for accepting and welcoming me, am flattered and is looking forward to share fulfilling times on this site....

Thank u Roger, I'll be making the link to that group shortly.....

Hello Sharla...well you are very beautiful and I'm so glad that you found this site and that you reached out.

Look me up on Myspace to under www.bbibby.org

SO do you have any children?

Take care...

I'm in the process of finishing up on my book so I've been so very busy...but it will be worth everything....

Alopecia Awareness!!!!!

Talk to you soon!

Hi Sharla,

Welcome to Alopecia World.

Jeff

hi Sharla! I've had AU since I was 16. I used to live in the US (CT) and now I live in Italy. I've been wearing wigs for a long time now I'm wearing a Freedom wig.

Hi, Sharla. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

Hey Sharla, welcome to AlopeciaWorld. You have entered a world where we are not alone and there are plenty of people just like you. I love it here, you will too! Take care!

Hi Sharla, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

Hi Sharla,
You say you hope you can find what you longed for. What is that? I am happy you're here. I have had universalis for 20 years. Wanted to find out how you are doing today...
LeslieAnn

Thank you! You can talk to me any time you want. Are you wearing wigs? What's going on with you?
You might want to read my book.
Hugs!

Hi Sharla, it is one of the first songs that rj sent me, it is "our" song. Glad you found us!

Yes, I am gong to New York on Thursday and staying until Sunday! It's with two other girl friends and we are cramming three Broadway shows into two days! We're staying at the Muse Hotel. Have you seen Wicked? We're going to see that plus South Pacific and Gypsy.

Oh Sharla, I'm so glad that I was able to be of some inspiration to you. Thank you so much for the nice compliments! So you have never taken off your wig in front of your own family???!!! Wow, it must be so hard for you to live that way. I think you just need to take the plunge. REALLY!! At least be open w/ your family. They will understand and accept you no matter what. I know that you feel very ashamed and akward about it. I KNOW. Do you have a hard time looking at yourself bald? Maybe you should lock yourself in the bathroom and really look at yourself, and begin to accept that your shiny head is a part of you. If you can feel that acceptance within yourself first, then your family will feel it too, and the transition from hiding to 'out' won't be so bad at all. I hope I don't sound too pushy, but I got a sense that you are tired of struggling w/ feeling ashamed and always having to cover up. Just take baby steps, and learn how to truly accept your bald head. Take care and God bless, Sarah

Too bad we're going to miss each other -- have fun in Georgia!

Sharla. Let's love the skin we're in. Hope you're enjoying this network site.

Sharla,

Thanks for the kind words. I really appreciate the support. Yes my daughter is much better but since her mom has endured it most of her life she has me to lean on through her hard times. I hope you enjoy the site.

I had a FAB time in New York -- crammed three musicals into two days! I just love that city.
I have never been to Georgia, but would love to visit it. I have friends in Marietta.

I'm so glad to hear that!!! At least you know you are beautiful.......and you are!! I would suggest that you get involved w/ a support group in your area for poeple w/ Alopecia. It could be a great way to get your family involved and informed. A support group should include your family also. After all, I'm sure this affects them too. Maybe that will help to get some dialect going about it. Don't worry about it too much though. My kids don't ask me about it either. Of course, they always see me bald, and to them I'm totally 'normal'. Maybe your girls see you the same way. Take care beautiful, Sarah

Sharla,

Thanks for the kind words. Well in my case my daughter did get the hereditary part. I just hope that was the first and last episode. Yes, I have been NY a couple of times. My email address is Niyah_1999@yahoo.com. I am glad that your girls are ok and dont have to deal with this mess. It is hard enough to deal with and I dont wish this on my worst enemy.

Hi Sharla, Feel free to email me at chilyard28@yahoo.com and/or call me at 917.658.0938. All best, Catherine

HIi Sharla, I enjoyed viewing your website, I was once and island for 7 years, I just came out my shell 4 years ago not knowing to look on the internet to find others with similar conditions (mainly African Americans). Everyone looks so beautiful I hope one day to meet you and others. I was blessed to making my own hair pieces/wigs and they are cool and beautiful. I have learned to live with or without them.

Buterfli

Thanks for stopping by! Things are all going well here -- how are you today?

Hey Sharla,

Everything is great! My daughter is doing great! Thanks for staying in touch. My life is really busy running and around and keeping up with her. How are things for you?

Hey Sharla, I'm in Jersey, seems there is nobody else in this area who is going through this but I am slowly meeting more and more people who are enduring this disease. I would love to talk some more.

You make me miss New York. What part of the Bronx are you in? I lived in Co-op City for a few years took me forever to get to Downtown Manhattan.

Thank you for your commentd and I will keep in touch and do hope we can meet one day. Sorry it took so long to write. I am on the computer at work all day that at home I am lucky if i sit for 30 minutes to check my email.

God Bless

hey sharla, they may be a little harder to find, but plenty of gentlemen would not have a problem with a woman with alopecia. the key is to remember, very few people appeal to everybody... but all that really matters is the RIGHT person understand you. we sometimes focus so hard on the "haters", we miss the admirers who are standing along side. peace & respect

thank you so much

Hi Sharla!

I am in Monroe, NY. 10950
I am looking to start a support group. Would you be interested in joining?
Take good care!

That is GREAT! I would like to hold them here in Monroe, NY 10950. Unless I can work something out with a location at a mid way point between Jersey and here, which would be Suffern, NY. How far are you?
I am planning on having lots of fun and building a strong support system for our fellow friends with Alopecia. Do you know anyone else interested in joining? I am planning on making flers to post as well. The first step is putting the group together and then accomadating the location to fit as many needs as possible. :-)
Take good care and hope to here from you soon.

Sharla,

Ok, great. I will keep you posted as I have more updates. :-)
Take good care in the meantime...and send me a note anytime. :-)

Hi Sharla I too have alopecia universalis and had since I was 2 yrs old. I never understood what I had until I became a adult. I'm now 25. I understand what you're going through. I don't have anyone to talk to about this. If I do try to talk talk about it, i end up in tears. I'm so glad I found this website. For a long time, I swear I thought I was the only one going through this.

Hey Sharla,,,im in n.j ,,,,,we gotta do lunch !!!!!!!!!!!!!!!Merry X-mas

Keep your head up ,beautiful!!

Hi sharla i too have alopecia universalis and suffered with it since i was 2 yrs old. im now 25 with two beautiful kids and currently going to nursing school. So i know exactly what u are going thru. For a long time i thought i was the only one going thru this till i found this website. Im glad i found people like me. If you ever wanna chat im here. And girl keep doing your thang cause you look nice in your pic

hi sharla how are you? i am 37 years old and i have been losing my eyebrows since i was 20 but now its becoming noticeable. i hope we can share our experience.

hi Sharla thanks for accepting my friendship.... i hope we can get to know each other and talk about our experiences.... looking forward to talking to you....

hey sharla. nice to meet you!! Im in the bronx too. i just saw your post on the nyc group.. i really know no one with aa/at/au in new yotk.. guess we hide it well :)

Hi Sharla. Thanks for adding me!

Hi Sharla,
How are you?
Tracy

I am good. My daughter just started school last week and I start nursing school on monday so it will be hectic around here. How long have you had alopecia?

My daughter has had alopecia since she was 4. She is now 7. I am the one though having the hardest time coping.

hey sharla! yes the treatment im currently using is from Shmuel Gonen, he's an israeli schientist/researcher doctor (?) and and sent me some all natural treatments and my eyebrows have begun to grow back as well as some of my hair...its growing back like baby hair and its very straight some of it is even white...my eyelashes are growing in straight and long too. I also use rapid lash to help it along ;-) what have you tried? if you like I can give you Mr.Gonen's email address, he resonds really quickly and hes very kind on the phone...let me know! best of luck!

Hey Sharla, thanks fo the add...what part of the bronx are you from? I never really meet anyone from my neck of the woods lol

hello (:
& thank you :D

xoxo -Essence .