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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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clare

dear cheryl, thank you for your kindness & warm welcome. =) but more than anything, thank you and rj for the creation of this website and brining a community that shows genuine love, kindness, and compassion through all of our personal struggles together w alopecia.

Sep 18, 2009
Jo kelly

Hi there and thank you Cheryl......
I'm not really sure of my way around here yet or what the hell i'm doing.
I was only told a few days ago about my problemfrom my biopsy results.... everyone seems to be quit cheery on here.
Is it just me being negative..... But i'm feeling rather depressed about it all. I cant quite take it in. I dont want to believe it. I keep going from being low and crying then depressed and numb followed by a strange kind of calm then back to my bubbly self.....then the return to the low...
It actually frightens me to come on to this site, think its because It kinda makes it all too real to me.
Why is it everyone seems to be ok....have they all known a long time and had time to get used to it....How do you get used to this.
I'm usually a possitive person ...but this has screwed me!!.......

Sorry if i'm coming across as a right moaner. I'm just shell shocked at the moment.....
x

Sep 19, 2009
Sherilyn and Tatum

Hi! I'm glad to have found this site. I was hoping to find a support group for my granddaughter so she can know there are other little girls going through the same thing. Do you know of anything in the Charlotte area?

Sep 20, 2009
Renee J.

Hi Cheryl, had a beautiful time in Montreal. Just had an overnight stay though, as I was on a weeklong road trip with my girlfriend and Montreal was the last leg of it. Hope to pass that way again, and next time we'll have the opportunity to meet. Take care.

Sep 21, 2009
Alex

Hi Cheryl! how have you been lately?

Sep 23, 2009
terry

just wanted to thank you for your mesg .keep up the good work.u r a beautiful person.god bless.

Sep 23, 2009
Victoria Michele

Thank you.

Sep 24, 2009
Andrea

Hello! Thanks for the warm welcome. I think it's a great thing that's going on here- now we can all talk to each other about our experiences with alopecia and know that we'll find someone who relates. I don't have any friends with the condition, so it was hard for me to find anyone to talk to about my feelings. Then I came across your site, and I no longer felt so alone. Thank you so much.

Sep 24, 2009
ELEANNA NIKOPOULOU

where acceptance is all about:
Hello Cheryl, i am Eleni from Greece ann i have PCOS that causes ANROGENETIC alopecia i only 32 ano i cant come in terms with this situation i am pepressedtoo.Live is so beautifull but ican not enjoy it. i thing i loosing the acceptance from other people, my self confidance is below zero.I am not as lucky[Cause i dont ha ve a boyfrend] or strong as you are but i can be taught by you. With love Eleni!

Sep 26, 2009
Alex

I wasn't able to go to the conference this year either. My younger siblings were still in school since they moved the conference up a week. I also hope to go next year. My parents have been pretty well. Life's been pretty hectic lately with starting college and being away from home but it's all good. =)

Sep 28, 2009
Sherry Washington

Thank you Cheryl for carrying this torch. This website is definitely an encouraging and uplifting site for people like us. You are beautiful bald woman.

Thanks! Sherry

Oct 6, 2009
Tica Brown

Thank you Cheryl, I appreciate it!

Oct 11, 2009
Margaret Brennan

the baby is very sweet. I am going down later in the month for a week to see if I can be helpful. that will be interesting. Ian goes back to work next week so Maya will be on her own for the first time. Denis is loving being a grandpa. Kind of a neat thing. He never had a grandfather and his father was never a grandfather. so this is a big thing for him.

Oct 12, 2009
Jeff W

Hi Cheryl!
Just wanted to say hi and reiterate my thanks to you for making this site happen. Thought I'd check out this gift thing...
Jeff

Oct 21, 2009
JeffreySF

Hi Cheryl,

We had so much fun in Boston. It was great to see my Family again after just a few months
We had a great group of 16 including Nunzio!!!
How is everything with you and RJ? I miss you both so much!!!

Much Love!!!

Jeff

Oct 27, 2009
JeffreySF

Hi Cheryl.

Nunzio and his wife Christine are The Best!!! We recruited him to AW too. I heard about the Cruise and would love to do that. We are allready talking about Chicago in March and New Orleans in Oct 2010. This is getting contagious. Lol...Nothing but the best for all of us.

Cya in June for sure!!!

Love Ya,
Jeff

I'll post some pics soon. You will love them.

Oct 27, 2009
Artemis88

HEY! Thanks for the warm welcome! I don't really know anyone who knows about alopecia and I have had it since I was ten. I am so glad to have found this site. I saw another specialist today, and about to start another treatment. I guess we will see how this goes!
Thanks again!

Oct 28, 2009
JeffreySF

Hi Cheryl,

Nunzio is a real treat.
I will try and get him to actually get online here. I always tell everyone I meet about AW to get the strength and support I have achieved.

I am here for all of us now and forever!!!

Hugz,

Jeff

Oct 29, 2009
Mallory Crowner

Thanks Cheryl! :o) I have the same background on my myspace profile so I was playing around to see if I could get it to work on here and it did!! :o)

Nov 4, 2009
Juan

Hey Cheryl,

Any events planned? i would love to meet you guys, it would be awesome to see all these wonderful people in person!

Nov 4, 2009
Melissa Harris

Thanks Cheryl and RJ for creating this site! I have finally found others like me who are feeling and going through the same thing! Without the support, I think I would have gone crazy by now!! Thank you again so much! I appreciate you and RJ! Hope you are doing well! I'm enjoying reading your page too! Melissa ;)

Nov 5, 2009
Jennifer

Thanks Cheryl, I remember that!! you were in the room next to us girls. Conference is always good times and random memories!

Nov 9, 2009
Roger

Hi Cheryl.

Just in here to see how you are doing.

Rog

Nov 10, 2009
Roger

Hej as we say over here Cheryl =)

Im fine thanks. I talked to Sara yesterday about Indianapolis and we got an idea to take the train from Chicago down to Indy. Sara, Jennifer, Alex, Marnie, Stuart and I are in so far and for sure Leo and Jeff. I really hope you and Rj can make it next year.

Roger.

Nov 11, 2009
Colleen Ann Haines

Thank you Cheryl for your warm welcome.

Nov 11, 2009
Michael Raj

Hi Cheryl, Thanks for the birthday wishes ya. Am happy to be welcome here too :D

Nov 13, 2009
LeslieAnn Butler

Sweet Cheryl,
Thank you for the birthday note!
I am doing really well -- my web site is redesigned so check out my new abstract work when you get a chance (www.leslieannbutler.com). How are you?
Big hugs!
LeslieAnn

Nov 19, 2009
Kimberly Rolon

Hi Cheryl,
When I started lossing my hair 10 months ago I did not know anything about wigs so I went to Continetal hair. I didn't have much time to shop around so I just went online and look for the place that look the best as far as wigs and started my long journey. Now that I look back I can't believe I did that. Although I have no regreats and I love the wig I do know now by this site that I have more options.
On another note we did get to see the Niagra falls on our way back so that was neat!

Nov 20, 2009
JET

Hello; I just wanted to stop by and say Hello. Have a wonderful week. God bless you.

-Jet

Dec 1, 2009
Kelci

Hey you! I love you!!! I'm working on a screenplay right now about Alopecia. When I'm done I'll send it to you. I would love to get some feedback from you. Are you still in Detroit? I would love to see you sometime soon. I'm only 30 mins away!!

Dec 11, 2009
JeffreySF

Snow Globe

Dec 14, 2009
JeffreySF

Happy New Year Cheryl!!!

Jeff & Leo

Dec 30, 2009
Katia Tavares

Thanks...you dont speak portuguese or french?

Jan 2, 2010
Samantha V.P.

Hi Cheryl, I am doing fine. How are you these days. Hope you had some great Christmas days and also a beautifull end and beginning of this year.

Gr. Sam ...yes from Amsterdam ...hihihi

Jan 2, 2010
JeffreySF

Hi Cheryl,

I hope to see you and RJ at NAAF this year!
I would love to catch up and spend some time together!

Love you too!

Jeff

Jan 2, 2010
Mónica

HOLA SOY DE CITY MEXICO GRACIAS POR LA BIENVENIDA¡¡¡

Jan 23, 2010
Denise

Hi Cheryl, Thank you for helping to create this site. It has helped me alot.
? for you, have you ever attended a NAAF conference , this yr is in Indianapolis? if yes what were or are they like? Thanks, i am trying to find out. Have a great day Denise.

Feb 2, 2010
Mike

Hi Cheryl,

I haven't visited the site in quite some time until tonight -- which means I am becoming more and more comfortable. I was thinking though how greatful I am to have stumbled upon this two years ago while feverishly searching the internet for something...anything...about alopecia.

I want to thank you for creating and keeping up this site. The membership seems to be growing more and more everytime I check in. It's fantastic and is the number one reason for my sanity today -- for real. Kudos and keep up the great work!

Feb 20, 2010
summer

Hello Cheryl,
I tried to look at the MTV true life report but there is a problem because of the distanc. I get the information that it is unable to show because of the region. Ok I am living in germany but I really would like to look this video. If you know a solution please let me know.
Greeting summer

Mar 5, 2010
Andrea

Hi Cheryl!

Trenton is about 20 minutes south of detroit on 75. I'm so glad you started this group, it has helped me so much! Keep up the good work.

Andrea

Mar 10, 2010
Christy Cyphers

www.myblackisbeautiful.com
My Black is Beautiful celebrates the beauty of every African-American woman. a national conversation and share your true beauty.

I had the chance to do hair at this event here in DC this past weekend....they will be in ALT, and LA as well.. go check it out!

Mar 15, 2010
Dorothy Eccles

Cheryl,
I would like to be your friend and join in on the the bald day. I too have alopecia. I have had it sense I was 33years old, my hair came back one time for a bout four months then it left again taking all the hair on my body. a few years ago my eyebrows came back. I have gone in circles about this. One year I was with my husband we were in New York, I took off that hot wig. Later I put it back on. This pass summer we were in Jamacia , I didn't wear it at all there, it was so hot, and I was free. I learn that hair is not what makes me, it is what's in the inside of my heart .

Mar 15, 2010
JeffreySF

Hi Cheryl,

I'm so happy you can make the Conf this year.
Thanks for the Birthday wishes.
Hugz,
Jeff

Mar 16, 2010
Devin

Hey Cheryl, Im glad I crack you up! I almost deleted that comment, I was afraid people would think I was really violent and I just wanted to make Linda laugh. I love your site you must be very proud. Wow I just noticed you live in Southfield,MI. I grew up in Taylor and we moved to Southfield for a few years, 12 mile and Telegraph I think. Well I hope you have a great day!

Mar 20, 2010
Nikki Claudia

Hi Cheryl, thank you for the friend add, and thank you even more so for co-founding this site! Have a good week. :)

Mar 22, 2010
Carol

Hi Cheryl
I'm actually moving on the 27th but it's quite the process of packing everything one has incurred over time. The next week or two will be a bit of an adjustment but I'm hoping to be back to normal soon. Hope all is going well on your end! :)

Mar 22, 2010
Matthew

hey Cheryl, I've been on here so long but never sent you a friend request.

Mar 22, 2010
Matthew

I don't thonk I can, I would love to.

Mar 23, 2010
Olga Pavlickova

Hi Cheryl!
Thanks for this site! It's just great to know that there are other people with the same problem here discussing it's matters. I am new to the problem, It's all new to me. So thank you once more!

Mar 25, 2010
LeslieAnn Butler

Hi Cheryl!
What beautiful music this is, playing on your site! Is it RJ playing the piano?
I won't be able to come to Indiana, but thanks for asking...how are you doing, you gorgeous woman!
Hugs!

Mar 30, 2010

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