Hi Christine, Welcome to AW..I think you will find some great comfort from this site. This is an awesome group and a very supportive one...Kyler is adorable and I think he will fine...Cindy

Hi Christine
I too am a Winnipeger. I have alopecia not my kids but I totally understand your emotions. My diagnosis was this past February. I would be happy to get together with you guys if you would like.

That's odd. You would think that people would be less observant in a boy..thinking you shaved his head for summer..
I am not going to worry about people looking at her. She has to wear a hat but if she takes it off inside I wont' freak on her. I plan on telling them what's wrong it they ask. If not..the TS on them.
I have always been OFFENSIVE rather than DEFENSIVE...hee hee hee
Kidding...just be as protective as possible without being rude. I gather we'll be exhausted by the time we get home but hey...what's the big deal?
Ok..we have to run to dinner
Chat later!!

BTE....I am on Facebook...Schaffrath

Hey Christine,
Thanks for the posts. The tv interview is awesome!!! Let me know how it goes. Sorry for not calling we are in the midst of various mother's day stuff so I'll call you this week and hopefully will be able to get together. Hope things are getting better for you and Kyler.

THat's awesome. I'll be sure to be watching!

What? I just emailed them a few months ago asking them to do a segment and let me know and they never said a word. Weird! I missed the show though! Too bad :( We should meet and let our kids meet, even though they are different ages with AA still.. ya know?

Thx for your comments :) Kyler is adorable! And props to you as his mother trying to get awareness for children with Alopecia, if I lived closer, I would certainly off my help! I hope him playing out in the sun doesn't get worse, it really is an annoyance, and with Kyler being so young, there's no way he is going to want to stayed cooped up in the house. Keep in touch!

I have left my support group information with Evelyn from Evelyns Wigs and she sent it out to all dermatologists offices and have had NO replies for it ! Dr Silver (Britts derm) said that there are kids with it here win Winnipeg but because of the priovacy act he cannot give out their info, I gave my permission written and told him he can give it to them, and heard nothing. Susan Rykis, had Alopecia when she was 12, said she would do a write up in that wpg parent paper and i saw nothing (then again I cant find Mays paper) and have had no replies. I have an email for the group alopeciaisbeauty@live.ca and have no one write anything. So frustrating!!!

I think I am going to make up flyers and stick them around town, in Derm offices etc. Wanna help? my printer doesnt work so if you want to help we can work together? im home all day every day!

Awesome! hey we are going to the carnival at McPhillips and Jarvis on Saturdya, do you want to meet us there? It could be fun! I also have a 2 year old!

Hrmm Sundya seems like we have something planned ubt I have NO IDEA what it is??? i will let you know, I didnt know that was this weekend!!!1

Anyways, how about I email or call you sometime soon and we can get together to make some flyers etc??? Where abouts do you live?

yeah i know where it is, my mom lives there on um... gawd I cannot even remember the street name. Starts with a G. Near the McDonalds and gas station, safeway area...

I will start sending ot ur email! And i will give you a call this weekend sometime, will let you know about the teddy bears picnic.

no thats not the street name.. i dunno why I cant remember that! Grr!!! Anyways we are off to the carnival now but will call you today sometime!

Hallo Christine, I am very interested with the Dr Shmuel Gonen treatment, but I can not find anything on his webside what this treatment is about, please can you explain my more, so if I like it I can get in contact with Dr Shmuel Gonen. Did you or you know someone who try ThymuSkin, I hear from a mother of a girl with AA that her dauthers hair grow back since she use Thymuskin ??!! Please let me know, thanks Sabine. And good luck for your cutie!!!

Best of luck to you, Christine & Kyler! We'll pray for you! By the way, if it's on the label, will you kindly give me the ingredients of the cream? Our support group leader here in Toronto is very interested & would like to do further research on it. Many thanks!

Hi Christine & Kyler -- thank you for getting back to me. I will pass on the message to our Toronto support group leader. Many thanks & again, all the best to you & Kyler with the new treatment. Too cute how Kyler loves the smell of the shampoo! -- Jennifer & Joaquin

hi again christine, i forgot to ask you, do you have the link for Sami Ashkenazi / children with alopecia? Is this in facebook? thanks!

woopsies! ignore my comment...just found you on facebook! :-)

Christine- I also am looking into getting the shampoo as well. Although I am a skeptic and am not sure if it is real. I have a heard of a few people on here who have used it. Another women on my site said it worked for her. I have had it for 21 years and just getting sick of it. I will pray for your son. Although, he seems like he is really young. It is most likely harder on you, than it is him. He is going to be ok. I have lived with it, and so did my brother. :) Let me know if you need anything. Stacy

HI Christine- So I just read some of your threads. You think that it is working huh? Are there any down falls of the shampoo? does it stink? is it thick? can you use any other product? I am on the fence. I am actually taking this sight to my doctor today to see what he thinks. Let me know. Stacy

Hi christine - i happened to find this same Dr. Gonen on you tube. please do keep us updated with kyle's progress. you're all in my prayers. - claudine

Hi Christine! My daughter is also on Shmuel Gonen's product. It isn't working quite as fast on her as it is on you son, but it is working! Her hair was coming in white and it is starting to return to her natural color. I just hope it keeps growing! Feel free to contact me!

Hi Christine

Thanks for the friend request. I hope that you and Kyler are doing well

Robert

Hi Christine.

I saw your post in the forums and after looking at your son, he reminds me so much of my boy. My baby is 1yr old and I started seeing spots - 6 weeks ago. He's now got spots all over his head and I am devastated. I am hopeful that his hair will grow back but Im trying to prepare myself for him losing it all - permanently. I'd love to chat to you sometime. I also have an older son who is 4.5years old and has no alopecia.

Wow Christine- I am not on here often, but you were one of sites I had to see. Hoping everything was working out for your son. How amazing to see your son is getting his hair back. Thank the Lord!!! The pictures definitely made me get a huge smile. Congratulations, I will pray that this progress continues. Stacy

awww. that is so funny! It must be so awesome to see that it is working. Even though he is going to mess up the precious hair he is getting.. hahah

Hi Christine...Happy (belated) Birthday to Kyler!

I hope all is going well and Kyler is doing fine.

Hi Christine,
Thank you for the information on Dr.Gonen. We have started the treatment 2 weeks ago and have our fingers crossed. New white hairs are now visible so we'll see. Hope all is still going well with Kyler.
Have a Merry Christmas....Tara Luisser

Well The treatment from india worked very well I almost recover my 100% but my dad was really sick in the hospital and I hot 3 new spots now.. Not sure if that is the reason... but I have already ordered again the follow up treatment.. and seems like it is beginning to stop a bit now i am hopeful to recover again..
Tell me about the israel treatment what is it about? any webpage?

Yes I do, I am a freelance Makeup artist. I have a channel on Youtube :-D This is The link Hope you like it http://www.youtube.com/user/sassypearl
I will check out your blog and find out about this treatment as well Thanks so much for sharing it :-D

Hi Christine. Thanks for the response. I noticed your son's new pics and it looks like his hair isgrowing back!! Thats GREAT!! Do you think its the Dr Shumel Goen treatment? Please let me know how its going!

Hi Christine, my daughter has stopped using Mr. Gonen's treatment. It was not working for her. We are trying a new treatment now and our fingers are crossed that it will help.

Hope all is going well with Kyler!

Hey Christine..Can you tell me some stuff about alopecia

please read my blog newly posted on weak immune systems and bacterial/fungal infections cause AA it will help