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Jill
- Female
- Berlin, MD
- United States
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- My son is 14 and has officially been diagnosed with alopecia--but has actually had it since he was 3. His is due to an auto immune disease- psorasis. Which sadly began about the same time he began losing his hair. So hit with two things at once. He began losing small patches on the back of his head and it grew from there. The doctors first said he had ringworm and treated him for that for almost two months. Well sadly the medicine made his psoriasis worse because it dried his skin out. When he ended up having a severe reaction to the medicine his Dr. sent us to a dermatologist, still not knowing what he had. I had done some research through the computer and pretty much knew this is what he had, why didn't the dr. have a clue? Well it was confirmed finally. And all the responses have been the same where we live. No-one has ever seen an actual case, so this has not helped my son. It was extremely hard for a 14 year old freshman in high school to be losing his hair. He tried growing it out real long to cover it up. He joined the football team and became their wide receiver. Unfortunately I was unaware that there is something in the foam of the helmets that actually increases hair loss in alopecia patients. The hair was falling out so fast I could not keep up--patches everywhere. Finally, on Thanksgiving break we had to make the decision to shave his head. We knew it was better for him to go with no hair then look like he was going through chemo, which he was asked constantly if he had cancer. The school accepted a note from his dr so he was able to wear a hat within school hours. But it has not been easy for either of us. For him not having anyone to speak with, and me watching him lock himself in the bathroom and hear him crying, and asking god what had he done. I still tear up just thinking about it. But he has been careful to be strong in front of me, almost as if I was the one dealing with this. After almost two years and losing all hair, eyebrows and eyelashes included. He has begun to show some hair regrowth. Even without the needles and steroid cream, which I put a stop to. Didn't seem to be helping. The cream just made him irritable and the needles were just so hard to bare. The hair is very fine, and very white. We've actually had to keep shaving because its growing more in certain places than others. But hey we take what we can get, right?!
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- Parent or guardian of child with alopecia
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Later - Luv ya - Mom. (Kiss the kids and Big Billy for me) Luv them all!
Thanks for the birthday wishes for Amanda. I will put her birthday pics up soon.
Tracy
Just checking in to see how your son is doing. If he just looks around here, the teens and young adults are awesome. I just got back from the NAAF conference in Houston, and every time I attend, I get a renewed sense of friendship and love from my Alopecian family, both young and old (like me!!!). It lasts throughout the year until the next conference. Please let him know that he is most certainly not alone in this and if he wants to chat with an old lady who knows what it's like to be stared at, (the tattoos kind of help in that respect), I am always here for him, or you, any one of your family members and friends.
Love and Hugs,
Dotty
I am almost done with my packing. Boy - trying to find out what I am allowed to take on the airplane has been a bust! I guess I need to unpack my toothpaste and shampoo but I refuse to unpack my bar of soap. Soooo they better let me keep it. I can always wash my hair with it if I need to. I packed one sheet to wrap in (all cotton). I hate these allergies! :(
I too hope Huck finds some friends on here. It would be nice if he could ask another teenager how they deal with it....right? Hey - but I am delighted to hear he is on a church trip with kids! That is great! I think once he starts to uncover himself and sees that others don't really pay much attention to the outside of him, he will be OK. It is what is inside that counts and ----I always did say his personality was in his smile and twinkling eyes! :)
Well babe - gotta go - Luv ya - Mom
I found this site to be very interesting. A good place to visit. Hope Billy finds some friends who share his situation and he can get some useful hints on how to deal with the day to day happenings. By the way, how's the sunburn? Karina said he got some on his head - I think color will be good for him but not burn! Ouch! Anyways, just finished my cleaning and did the grass yesterday (including next door) so I am ready to pack tomorrow. The clothes are drying on the new clothesline! :) Later - luv ya - Mom
I know it can be so hard. Sometimes harder for the parents than for the kids.
Just wanted to say hell and welcome!
LeslieAnn