"Thanks so much to Max and Nerida for your replies. Both brilliant and helpful. Maz I’m sorry you’ve had a stressful time - it’s sounds like you are using your inner core of strength and resilience to see you…"
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Afraid
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"Hi Maz
i was very interested in your posts about FFA. Looking at your timeline and first post in 2015, has there been much progression in terms of hair loss since then? Are you still able to cover with your natural hair?
kind regards "
"Hi Elizabeth
thank you for sharing, I hope the cream works quickly and relives the symptoms for you. I too have FFA, LLP and LP.... feels like a curse doesn’t it.
Can I ask if your hair loss has stabilised? It looks good in…"
"I have been interested to follow this thread. I have FFA & LPP ongoing hair loss despite taking hydroxychloroquine for 2.5 years. Hair analysis in the autumn revealed I was vitamin D deficient. I am taking 1000mg daily and…"
"Oh hello everyone! Just having a ‘bad hair’ day and thought I would ‘connect’ with this lovely group. Wish I could fly over to the CaRF conference it sounds good. Hopefully some positive news will be shared.…"
"Thank you @illustr8r
im delighted to hear your hair has stabilised, that’s wonderful news. My ears would not allow for a pixie style lol!
I read an article about vitamin c relating to skin and whilst I haven’t taken…"
"Hello everyone
I haven’t posted for ages but still check site and love to read your posts. Keep thinking I’ll post with positive news but....grrr...none really. I take heart from the group support.
i continue with…"
New hair! June 2019
"Love your new hair!! It looks fab! Just busy ordering my first ‘new hair’ a scary prospect but very encouraged by you. Is it hair replacement that you keep attached? Or do you remove it daily? Do you manage to blow dry it and…"
"Hi Plf, haha... I take temp orally with digital thermometer. "
"Love all the information, thank you.
random question do any of you have a low body temperature- mine ranges from 33 to 36.1 is that normal? Could it affect hair growth? "
"I am so confused!!! Titanium dioxide is cancerous but yet it’s in my HRT and my sunscreen .., I red France have tried to ban as a food additive.
On a different note I have checked my body temperature and it is around 35 degrees!!?…"
"Ps CACI facials helping skin! I’d highly recommend x"
"Lovely to see everyone is still around & read your comments. Of course it would be even better if this condition disappeared completely and we could just chat about life in general...one day maybe?!?
Thinking of you all xx
my…"
"Hi All - thinking of you all. I seem to be in middle of flare....not that the hair loss ever really stops. Terrified about what lies ahead...but trying to seize the day. It’s a nightmare. Are there any positive stories??…"
Profile Information
- Relationship Status:
- Married
- About Me:
- Used to be an incredibly happy person who lived life until I was diagnosed with this awful disease.
- Do you have alopecia?
- Scarring alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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