Liz Lov
  • Female
  • Surrey
  • United Kingdom
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Latest Activity

Yringel replied to Liz Lov's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"I had an alopecia issue also a couple of years ago and apart from the psychological effects and terrible self-esteem that I had, I also started having issues with my wife who was not happy with my looks. I understood her in a way, but since we still…"
Apr 5
Kojack replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"I was diagnosed around 2014-2015 and I also tried hydroxychloroquine and developed a rash the first week and had to discontinue. Hair continuing to recede and bangs too thin to cover baldness so having to resort to wigs now.  But they make some…"
Feb 8
BubbaLu replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"Susan, I remember when I got the diagnosis about 3 years ago and was devastated.  I had no idea this was a “thing”.  I searched on line for answers and the pictures I saw freaked me out! I have been on Plaqinil since the…"
Dec 4, 2020
KarenGinny - Iowa, US replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"To everyone, I was diagnosed with FFA - Lichen planopilarus - LLP back at least 4-5 years ago. One of the things my doctor tried was the hydroxychloriquine and I was on it for only a short time and developed a rash of some kind, I can't really…"
Sep 27, 2020
Taylor replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"Hi Susan.  I completely understand and feel your pain.  I, too, was diagnosed one week before quarantine and dealing with the stress of FFA and Covid simultaneously has probably made more hair fall out.  Every now and then I can put…"
Aug 4, 2020
Susan replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"I was recently diagnosed with FFA., one week before “Stay At Home” orders went into effect. I was  giving a topical, oral oxide ,  given a 6 week follow-up appointment , and told to find a support group.  I guess I…"
Apr 25, 2020
Elizabeth W replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
" Plaquenil, hydroxychloroquine was probably one of the medications my dermatologist listed for me to take and listed a long list of all their side effects.  The potential side effects seemed worse than my condition, so I have…"
Apr 12, 2020
Plf replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"Hi Liz, don't know if I'm allowed to comment as not on the question you asked.. you are to be congratulated for not letting this thing dominate your life, I'm glad you have moved on ..I too have chosen not to medicate, what will be…"
Apr 12, 2020
Liz Lov added a discussion to the group Frontal Fibrosing Alopecia
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Plaquenil ( hydroxychloroquine) and covid 19 symptoms

Hi all,As hydroxychloroquine ( Plaquenil) is a hot topic right now and is being discussed as a possible treatment for Covid 19, I would be interested in whether anyone here who actually takes Plaquenil has had symptoms of Covid 19?I was once offered Plaquenil as a treatment for ffa but decided against it because of the possible side effects.I have been a very contented wig wearer for the past 3 years and have let the angst of ffa disappear from my life thank goodness, as at one time it had…See More
Apr 12, 2020

Profile Information

Relationship Status:
Married
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Just diagnosed ( twice) with probable frontal fibrosing alopecia !

Only went to doc for skin check up! Mentioned recent hair loss as an after thought- WHAT a bombshell!

Waiting for biopsy to confirm for sure then will start looking at what can be done. 

Down in the dumps at the moment.

Liz

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At 1:08pm on January 3, 2014, LeslieAnn Butler said…

Take care of yourself and if you have any questions, I am here.

At 1:03am on January 3, 2014, LeslieAnn Butler said…

Hello and welcome!

I'm sorry you're down in the dumps. You will get a lot of support here!

Leslie Ann

 
 
 

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