Cori
  • Female
  • Norman, OK
  • United States
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Three years old and miserable

Started this discussion. Last reply by Aimee Jun 8, 2014. 70 Replies

In January I brushed my daughters hair and it started coming out in clumps. After four months, three doctors and blood test we were told it was alopecia aerta. Her baldness bothers everyone else more…Continue

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Parent or guardian of child with alopecia
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At 12:54pm on May 22, 2014, Mike said…
Hi Cori my 5yr okd daughter also has AA which grew back n we thought we were in the clear. Then which seemed like two days all her fell out. We had been to a pediatrician during this time we used steriod creams n other natural oils on her head. The next step was injections which was a big no for us. We got her a wig n a bunch of nice hats she is a trooper n a very confident young girl. Its harder on us family members.
The pediatrcian wanted to send us to another doctor that specialized in Alopecia hair loss. He said that he would want us to do the creams for another six months. This was all turning out to be a waist of time. So I gave up on them.
I found a local Naturopath (www.gethealthynow.ca) that has AA. She regrew her hair threw diet. I took Maya to the first appointment n felt better then 8mnths of paediatrician appointments. We did food allergy blood tests n found out she is allergic to alot of food. The Naturopath said this was the 2nd time she has seen food allergys this bad. The first was in a 9month old baby which her hair came back fully.
We r two months into the new diet n she n us have made some mistakes. But immedietly we seen thicker eye brows n lashes. I do beleive diet is the key to regrowing hair. Dont give up u can try diets but with out knowing what the blood is reacting to u will just be doing the wrong thing n getting discouraged. Check out www.gethealthynow.ca for my Naturopaths blog. Take care!
At 12:38am on May 19, 2014, Melissa said…
Hi Cori,
Thanks for accepting my invite. My daughter started losing her hair at 15 months old. What started as a small patch at the top of her head progressed into total hair loss, including her eyebrows and eyelashes within three months. We saw two separate demertologist, who both recommended the same course of treatment, cortisone cream and rogaine. We choose not to do this because of her age and also because I have a nephew who also has alopecia and my sister in law told me the cream burned him so bad he'd rather get the shot.

Next, we took her to a naturopathic doctor, who told us she had inflammation in her liver due to an intolerance for casein. So we put her on a casein free diet and because she was already used to eating cheese, ice cream, milk,yogurt, etc. she had a very hard time with this new diet. Try explaining to an almost two year old she can't eat these things because it might help her grow her hair back, she didn't seem to care about that. I was also told by her pediatrician and by an allergist that they did not see it helping but, that we maybe creating an allergy where there was not one to begin with. Her pediatrician also ran blood test to check for inflammation in the liver and she found nothing. She also tested for a milk allergy and still nothing.

With all this information which was very overwhelming and conflicting of each other, we decided to just let her be just like her brother and sister and to work on her confidence inside and tackle the outside when she is old enough to understand and help make some of those decisions with our guidance. She knows she doesn't have hair like her brother and sister, but she doesn't seem to be bothered by it right now. We look in mirrors all the time and she sees herself and we tell how beautiful she is all the time. I know there will come a day when she comes to us and asks why she has no hair, and will will try to explain it so that she can understand. She is actually getting patches of hair all over her head and has gotten some of her eyebrows and eyelashes back. She has also told me she is going to get hair for her birthday. I hope that is true.

In the end everybody can give you advice and I'm sure you're getting it from everywhere and everybody,but the truth is you know your daughter and your family the best, and you need to make the decision you feel is best for your family. I know it can be overwhelming, please let me know how your daughter is doing and I wish you and your family the best!
At 2:37am on May 12, 2014, Cori said…
We had a rough day, but she still smiles. Think she realized today she doesn't have hair on top anymore.
At 1:47pm on May 11, 2014, LeslieAnn Butler said…

Hello and welcome!

How are you and your child today?

Leslie Ann

 
 
 

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