HarlyQ
  • Female
  • La Porte Texas
  • United States
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  • Debbie
  • Veronica (Renata)
  • Joan

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Linda liked HarlyQ's blog post Would you do an Alopecia medication study?
Apr 9
TurboK commented on HarlyQ's blog post Would you do an Alopecia medication study?
"I would do it in a heartbeat. I am sick of having to wear ball caps or wigs all the time.I am working from home full-time now, so I have minimal contact with anyone other than my animals. It was temporary, but I live in WI where the governor wants…"
Feb 28
Melissa 74 commented on HarlyQ's blog post Would you do an Alopecia medication study?
"I'd do it.  I was diagnosed with alopecia areata when I was 12. That's 6th grade.  I was very patchy the next few years. Went to go to a wig when I was 16.  When I was pregnant with my daughter at 29 I lost all my hair. It…"
Feb 27
Smug commented on HarlyQ's blog post Would you do an Alopecia medication study?
"Yes I would. Unfortunately I am in a country with no such studies carried out."
Feb 16
jennie hunt liked HarlyQ's profile
Feb 15
Sarah Reade, MD commented on HarlyQ's blog post Would you do an Alopecia medication study?
"I would love to take part in a clinical trial. As a physician I participated as a clinical investigator. I would need the pharmacologic details first."
Feb 14
sian commented on HarlyQ's blog post Would you do an Alopecia medication study?
"Yes I would try anything to get my hair back"
Feb 14
CMC315 commented on HarlyQ's blog post Would you do an Alopecia medication study?
"I absolutely would. In a heartbeat. This has been absolutely devastating to me and if I had the chance to maybe have my beautiful hair back again, I’d jump at the chance!"
Feb 14
SabineTawni commented on HarlyQ's blog post Would you do an Alopecia medication study?
"Due to my age (72), I don't even bother to look into participation in any of these studies.  No one wants you at this age.  They use the excuse that they are worried about the unknown effects of these drugs on older people.  I…"
Feb 8
Alopecia and the Cure commented on HarlyQ's blog post Would you do an Alopecia medication study?
" We also created a cookbook entitled " The Healing Couple, recipes for Wellness" Janis and Jonathan Card. These meals are specifically designed to eliminate inflammation that causes a positive autoimmune response. Please Let us know…"
Feb 1
Alopecia and the Cure commented on HarlyQ's blog post Would you do an Alopecia medication study?
"H has such a good point. We tried every option as well, finally we began to try alternative options.  I was absolutely in the same position with my daughter at the age of 12. She progressed to Alopecia Totalis and I was at a loss. After many…"
Feb 1
HarlyQ is now friends with Joan, Debbie, Veronica (Renata) and Ana more
Jan 31
Carmella Alu Obst liked HarlyQ's blog post Would you do an Alopecia medication study?
Jan 30
Jim In Cali commented on HarlyQ's blog post Would you do an Alopecia medication study?
"I would do it in a heart beat. I believe its in phase 2 or 3, so its already deemed safe enough for further investigation. I used Gengraf for awhile, did not work. Definitely had to eat before taking or i would feel nauseous"
Jan 30
Veronica (Renata) commented on HarlyQ's blog post Would you do an Alopecia medication study?
"so why is no-one telling us about the study, everyone has responded to agree to be in this study. Where are the guidelines?"
Jan 30
Debbie liked HarlyQ's blog post Would you do an Alopecia medication study?
Jan 30

Profile Information

Relationship Status:
It's Complicated
About Me:
I’ve had alopecia off and on since I was 18 it went away for a very long time.It came back the the last 10 yrs then surprised!! 3 yrs ago everything fell out 🎉 yeah me!Im originally from California but live in Texas now .
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

HarlyQ's Blog

Would you do an Alopecia medication study?

Posted on January 26, 2021 at 12:35am 44 Comments

I signed up to participate in an alopecia study I thought why not what could it hurt ? I’ve already lost all my hair so there’s nothing to worry about there . But then I think what if my hair grows back? Then I think if it doesn’t help me maybe it will help someone else someone young.Alopecia is devastating for me as an adult I can’t imagine having it as a child or a teenager.But now I’m kind of having second thoughts. I’m kind of worried about the medication I’d be putting into my body…

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