MY NAME IS JOSE AND I AM 8 YEARS OLD. I HAVE ALOPECIA UNIVERSALIS. JOSE IS A VERY CARING KID AND HE LOVES TO PLAY SOCCER. MY SON DEALS WITH ALOPECIA VERY WELL ALTHOUGH I HAVE FIGURED OUT THAT HE DOESNT LIKE TO GO ANYWHERE BECAUSE HE DOESNT LIKE THE ATTENTION. WE ARE DOING ALOT OF AWARENESS IN DALLAS TO MAKE SURE THAT PEOPLE KNOW ABOUT THIS ILLNESS. ITS BETTER THAT PEOPLE KNOW SO THAT THEY ARE NOT AFRAID.
thank you for responding to my question. i actually had some ggos new today i wen to the doctor and she told me the chance of a mother or father giving this to their child is less than 11%. so needless to say slim to none. so that makes me happy. thank you again for taking the time to share for knowlegde with me it mean alot!! your lil guy and you families is in my prayers i hope one day soon they find a cure so noone has to suffer with this disorder forever..but until then know that my heart goes out to you and your son and i wish you guys all the best in dealing with this crazy disorder. oh and please tell your son i think he is a very handsome li guy with a great smile!! :)
Reading your sons story is heart breaking! I know as anadult this is painful to go thru but as a child i can only imagine. I had alopecia wreta when i was in high scholl and it was horrible ..long story short i was treated and for 1o years nothing no patchs no hair loss nothing and now i have patchs all over agian. As i have been doing research i have found out that they are considering this to be hereditary....so my ? is (if this is not to personal) do you have any other children with this diorder or do you and your husband have it? I am so worried that i will have given this to my children i feel sooo guilty. If the do seem to get it for whatever reason i hope god gives me the will he has given you guys to face all the challenges that go along with this disorder. you child looks so handsome he looks like a really great kid you guys should be proud! :) well if you could find the time to answer my ?'s i would truly be grateful. thank you again for your time and god bless you and your family.
christina
Hi Jose, I have a 7 year old daughter with Alopeica,Samantha. You are a handsome young man and like you Sam is strong and handles her Alopecia well. It is always nice to hear stories about children who don't let a lack of hair stop them from being who they are or want to be...Don't ever stop being who you are and keep smiling! Cindy
Thanks for the reply. Let me know if you meet others who are local. I would love to get together with you and others and form a social group. It would also be great to find a group of kids who have alopecia so they can make friends. It would be good for Jose to have a friend or two like him or even friends who don't care about his condition.
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