Maggie
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raffaella saccardo commented on Maggie's blog post Alopecia universalis baby
"I hope you will understand my english. I'm Italian. Here doctors don't believe that a possible cause of alopecia could be the streptococco A. Since many years the tonsillectomy is not more adopt to solve the problem of streptococco A; but…"
Feb 14
Alopecia and the Cure commented on Maggie's blog post Alopecia universalis baby
"Hello Maggie, I am the mother of a 24 year daughter who was diagnosed with Alopecia Totalis at the age of 12. I have spent years studying the effects of Alopecia and have created a lifestyle which will help you regain your hair back. Please read my…"
Jan 28
Cindy (Duncan's Mom) commented on Maggie's blog post Alopecia universalis baby
"Maggie - my little guy (not so little any more) was about 18 months old.  It fell out 2 weeks after vaccines.   I remember the feeling of hopelessness and wanting to “fix” it.   Thad what moms do right?   I want to…"
Jan 28
Cheryl, Co-founder commented on Maggie's blog post Alopecia universalis baby
"Hi Maggie, Have you joined this group on Alopecia World? https://www.alopeciaworld.com/group/parentsofchildrenwithhairloss"
Jan 27
Joe Nyagah commented on Maggie's blog post Alopecia universalis baby
"Omg, this illness touched our family too. My daughter now is 16 and she was 1 year old, she was diagnosed with alopecia universalis. She lost a lot of hair and it was hard for me to see her like that. Thank God, we passed through all this and now…"
Dec 6, 2020
Superduper commented on Maggie's blog post Alopecia universalis baby
"My daughter lost all her hair at 18 after her MenACWY booster right before leaving for college. While she does have some sporadic regrowth, she has lost 95% of all her hair including eyebrows and lashes. She is doing great in school and enjoys a…"
Nov 13, 2020
Rhonda Kelley left a comment for Maggie
"It is not nearly the struggle as it was in the beginning which seems to be where you are.  We have met so many young people who have shown us that having alopecia doesn't define you.  It gets easier.  My granddaughter started out…"
Nov 10, 2020
Maggie left a comment for Rhonda Kelley
"Hi Rhonda, Thank you for your message. I’m sorry to hear that you have been struggling with you granddaughter alopetia. I have a few questions if you find time to get back to me I would really appreciate it. Is your granddaughter struggling…"
Nov 10, 2020
Rhonda Kelley commented on Maggie's blog post Alopecia universalis baby
"We have raised our granddaughter who is now 19. She was about a year old when she was diagnosed. It’s been a long journey so I’m not going to write you a book. If you have any question about what it has been like, just let me know.…"
Nov 10, 2020
StephaniePA-C commented on Maggie's blog post Alopecia universalis baby
"Hi Maggie.  Ugg....we too were diagnosed young, 12 months old. My daughter is 8 now. At our worst we were 40% hair loss. She then went into remission for 3 years! I was convinced we had beat it with diet eliminations and vitamins. Then the rug…"
Nov 10, 2020
Maggie replied to LilyPants's discussion Toddlers with alopecia
"Hi, thank you you for sharing your sons story. I can see your post from 2013, how is he doing now?  My daughter lost all hair and eyebrows and eyelashes 10 months ago.  Hope to get in touch.  Maggie "
Nov 9, 2020
Maggie commented on Maggie's blog post Alopetia universalis baby
"Thanks Ericka! "
Oct 23, 2020
Ericka commented on Maggie's blog post Alopetia universalis baby
"Proud of that little champ. Let her keep going strong. All the best to the both of you."
Oct 23, 2020
Ericka liked Maggie's blog post Alopetia universalis baby
Oct 23, 2020
Maggie replied to jacobsmommy806's discussion 6-year-old diagnosed with alopecia universails
"Hi Marie, Thank you you so much for sharing with me your family journey. This is all very helpful. It must be so exciting to have eyelashes back. There are so many challenges and not knowing what the future holds it’s extremely difficult,…"
Oct 23, 2020
Maggie replied to jacobsmommy806's discussion 6-year-old diagnosed with alopecia universails
"Hi, thank you you for reaching out to me. I’m sorry to hear about your daughter. How is she doing? Did she ever had a period of time when she had her hair? Did she try any medication? Does she have any other underlying problems? Does she wear…"
Oct 19, 2020

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Relationship Status:
Married
About Me:
Mother of two
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Maggie's Blog

Alopecia universalis baby

Posted on October 10, 2020 at 4:00pm 10 Comments

Hi All,

My baby girl was 11 months when she lost all of her her within a couple of weeks, then two months later eyebrows and eyelashes. She is 20 months now and she has white little fuzz hair and white eyelashes and eyebrows. We have another appointment with pediatrician dermatologist in January, till then I would love to connect with parents who have same problem and I hope to find out more stories. 

All the best to everyone!

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At 10:09pm on November 10, 2020, Rhonda Kelley said…

It is not nearly the struggle as it was in the beginning which seems to be where you are.  We have met so many young people who have shown us that having alopecia doesn't define you.  It gets easier.  My granddaughter started out with loosing spots (alopecia areata).  Her prek teacher was certain she was pulling her hair out. I kept trying to tell her it was alopecia but I dont think she ever believed us.  She had long hair but not extremely thick hair.  After the initial bald spot when she was one, we got medicine from the dermatologist, it came back, but another spot would take it's place.  It seemed like we were constantly putting this foam medication on spots.  We also were prescribed a cream, but I don't remember the name of any of them.  She lost part of an eyebrow once, but got a shot and it came right back.  Eventually is all came out.  Her head was shiny and slick, no hair at all.  I felt completely helpless and I wanted to help her more than anything.  She was about 7-8 at this point.  We started getting free hair pieces from hair club for kids, children with hairloss, and locks of love.   All wonderful organizations.  Finally she got the white peach fuzz all over her head which sounds like where you are at with your daughter.  She doesn't have any other autoimmune issues yet, but she is more apt to get another one according to what I've read.  Anyway, when she got the peach fuzz, she was ready to start getting shots in her head.  She's been doing that for a while now.  Her hair started to come back, but has not filled in everywhere.  I cant remember the name of this, but the ring around the bottom of her scalp from ear to ear has never grown back.  She is happy with what she has and it looks really cute.  I don't know how long the peach fuzz would have stayed like that bc the shots worked and now we don't see the fuzz.  It may be there in patches around the bald ring.  Shots would not be something for young children.  I hoped and prayed she would outgrow it, but that hasn't happened.  She lives with roommates at the college she attends and  feels comfortable going without her wig in the apartment.  She still wont go out without it, but thats ok. She is under a lot of stress in college and thinks one of her eyebrows is thinning.  I cant say that it was always easy for her.  She did get teased in elementary and middle school. Middle school was the worst.  Things got better in high school and college.  When she gets a little older, look into taking her to a summer camp to meet other kids with alopecia.  You can also find groups near you on this websites.  We took her to alopeciapalooza (google it for details).  We went with her and learned a lot.  She mostly had fun:) Let me know if you think of anything else and just breathe:)

 
 
 

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