"Hello to AnnieMay & everybody! It is crazy times for sure now and I hope you and your loved ones are staying safe and healthy. I was just thinking the other day of what will happen with the salons closed, to people like us and our…"
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Minter
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- Albany, NY
- United States
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"I've gotten botox maybe about 5-7 times over the past 15 years and maybe it is what accelerated the FFA, maybe it wasn't- though saying that, my mother has FFA and she never got botox and her hair is now gone all the way to the back of her…"
" Jules, I use Revolution Hair Powder, it goes on well with the brush and pretty much stays on all day- TBH I have no idea if it has titanium dioxide in it, at this point it probably doesn't matter anymore as whatever is going to…"
"Hello Halfbaked Who & the rest of the FFA gang! That is awesome you are writing a novel, you write the best posts, so anything you write I am sure will be great! It sounds like you are handling your FFA as well as can be expected,…"
"Hi Lu,
TBH, I don't think I would unless it was 100% proved that it would work and that it would stay working! I couldn't imagine going through that pain, along with the hope that this is what will give me my hair back and then…"
"GLMV, hello and I also inherited it from my mother- she was diagnosed with all sorts of different things along the way and is still convinced it is a form of lupus causing her hair loss. I also went to a couple different doctors…"
"Thank you ladies, I will admit I did feel a lot better for the rest of the day! Like a weight was gone for sure- I've tried to explain this stuff to (female) relatives and friends and they just don't get it :-( but you guys do and…"
"I'm pretty sure it was the same for me- funny thing that made me start to wonder what the heck was going on was that I was burning my forehead for a couple years off and on with a straightener or curling iron and I was like (along with my…"
"I'm sorry illustr8r, FFA is really horrific with it's ups and downs-
though it is awesome that you got such a great compliment on your hair! "
"Halfbakedwho, Hope you feel better in Paris! I guess having a mother with FFA does give a sort of of explanation as to why this is happening since I apparently inherited this nightmare from her so it doesn't seem like so much of a 'why is…"
"Thanks for the info illustr8r, I'll try the no rinse one next, the rinsing is a pain! I've not had any shedding or knots like you mentioned, I think my hair is too short now to get all tangled up!
Halfbakedwho, Haha glad you cured your…"
"Just wanted to mention that I tarted using the occusoft wipes the other day & I definitely can notice a difference, my eyes don't feel itchy and irritated and just weird anymore so that is a very good plus indeed, but the one annoying thing…"
"Plf, exactly right- I do continue to read info about FFA thinking maybe they have made a breakthrough this time! But, with so many bizarre variables with this disease it probably will never happen. I do find myself reading more and more…"
"Oh man, yay another thing to do with FFA, well that explains all my eye problems then! I've been using Lumify during the day for a couple of months and Sumilasan allergy eye drops at night, especially if my eyes have been exposed to…"
"Hi Sarah, I'm so sorry you have to be here, but happy you have beat cancer! The rest of it though, the hair stuff- does suck. I am interested in your herbal approach, I didn't know about palmetto instead of finasteride (…"
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- Relationship Status:
- It's Complicated
- Do you have alopecia?
- Other type of alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (2 comments)
- At 9:56pm on April 25, 2021,
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- At 1:55pm on August 5, 2016,
babycc said…
- Hi my daughter is 14 and has total hair loss any success in finding a cure to regain hee hair ???? Please message me thanks.
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