Thank you Lynn for posting some positive feedback. 4 years! That's just great. We will hope for tbe best and prepare for whatever comes our way.

Thanks for the add.....

Hi Lynn! I live in the Bay Area and have a 16month old boy with AA that has now turned into AT. How old are your kids? They are adorable. WOuld love to chat with you sometime!
Thanks

Hi Lynn,
it was great to hear from you. Hope that things are well with you and your family. It is good that your kids are too young to realize that AA is a life time condition. Let's hope that it will go away soon for your kids. My daughter lost all of her hair back in August of last year. After discussing all of the options with Dr. Price, she decided to let nature takes its course. Since then, she has some regrowth. Her brows and lashes are coming back slowly. She is very open about her AA. I am so amazed at her abilities to deal with it at her age. She is doing well at school, has many friends, very involved in music - She plays the tuba, trumpet, percussions at her school symphonic band. My husband and I make sure that all the supports are there for her.
Happy New Year.
Myem

Hi Lynn,

All is good here. Hope so for you as well.

I never had any sign of AA before 7/07. I tried steroid treatments in the begining but they obviously didnt work for me so I stopped.
Glad the kids AA are pretty good. Fingers X'd.
Hahaha I love the hairspray line.

Hope your day is a great one!!!

Jeffrey

Hi Lynn,
I read your discussion about white iodine. You mentioned that you attended the the Stanford Parent Group. Do you live in the bay area? My daughter's derm. suggested that we joined this group. I will try to attend the September meeting. Hope to see you there and learn more about the iodine treatment - May be it is too late for my daughter, she has only a few hair left.
Myem

Hi Lynn,

I was noticing that you are one of the few people in this group that has more than one child with aa. My daughter Genevieve was diagnosed 5 months ago and has diffuse aa. I would say she has about 20% hair loss with some recent spontaneous regrowth. She is also partially losing and eyebrow. The other day I noticed that her sister seemed to be losing a lot of hair. She now has a tiny patch on the top her head and the area above both of her ears has thinned out greatly. Our pediatrician is sending us to the derm. for a diagnosis. I think that I am in shock that this could be happening to more than one of my kids. If you don't mind me asking, how did it happen with yours? Was it close together, do they have similar loss? I can't seem to find much on the internet about familial alopecia so I thought I would start asking the people who know the most about it!

Thanks,
Melani Molina

Hi Lynn,
It is such a blessing to hear that your children are doing well on the iodine!! Though Haylei is still losing hair, it's no where near as much as before we started using it. So we're definitely keeping it in her regime. Now we need to find something that helps to regrow. I'm still researching like everyday! I know I'll be glad when the warm weather gets here, as the lack of sunlight isn't great for Alopecians and I just feel like I need to get her in the sun more. I'll keep you posted on anything new I hear of. You take care of those beautiful kids!

Hi Lynn! Thank you for the link (couldn't link directly to it, but found some articles of iodine on that site). I'm glad you decided to go with the iodine in addition to the shots. For my daughter, I place the decolorized iodine on q-tips and apply them to all of her patches. I think it's soothing for her, and helps with the itching and shedding. I was doing this twice a day, but have changed to once a day, in the morning, as she continues to use the clobetasol at night. The clobetasol is oily, so by applying this at night, and using the drying/oil removing effect of the iodine is helpful. She also uses scalp cover to help mask all of the spots. As moms, we gotta keep trying for our kids, whatever it takes and by posting it helps to hear what others are doing as well as feelings. Thank you for posting and keeping up with us!