• 48, Female
  • Oak Lawn, IL
  • United States
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Renee's Friends

  • hannah11
  • Rapunzel
  • Funnybone
  • Bernadette
  • Heather
  • anofavonlea
  • Piotr
  • Brittany Lee
  • R0BB
  • Frank Pratt
  • lyndsey tolson
  • Christy Ingram
  • Kim Karacz Caudill
  • Alliegator
  • Laura Dasi

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Renee's Page

Latest Activity

Renee commented on Cheryl, Co-founder's video

Why We Should Go Bald Together | Joyel Crawford | TEDxNCState

"It's good that she said shes not anti wig because it should be a personal choice to wear one or not and alopecians shouldnt be pressured either way or wig shamed like they are "hiding."  When a 10 year old girl loses all her hair…"
May 10
Renee and hannah11 are now friends
Apr 15, 2021
Renee commented on TurboK's blog post Why do I fight for a cure?
"I have been AU over 30 years now as I was age 12 when it happened.  I know it can be very difficult.  I think we all respond differently to it and maybe go through different phases too.  I was thinking that you would be a great…"
Mar 18, 2020
Renee replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"You can have mine.  I have a ton of it because it didn't grow 1 hair for me."
Dec 31, 2019

Profile Information

Relationship Status:
About Me:
I'm a 43yr. old Mom who has had Alopecia Areata/Universalis since age 12.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (12 comments)

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At 10:18pm on March 4, 2016, Rapunzel said…
Hi Rene,
Thanks for the note. I do not have AA rather just undiagnosed hair loss with a variety of suspected autoimmune causes.
At 11:09pm on January 18, 2013, Ben Lainhart said…

Are you going to St. Louis in June?

At 9:50am on July 5, 2011, Natalie said…
Hi Renee! Thanks for the friend add and for your kind comments :) My hair is a Freedom wig, and I just recently got my eyebrows permanently tattooed on! (I haven't had any time to put up photos of the new eyebrows, however, so all of the ones that I have up are of my drawn/penciled-in eyebrows.) Your wig looks fantastic! Is it a Freedom piece, too? That is really interesting that your mother also has alopecia universalis; I am the first and only person in my family to have alopecia, but I fear that I have started a "gene trend." I'm really afraid that I will pass it along to my future kids!! :-/ Take care! - Natalie
At 6:22am on May 2, 2011, R0BB said…
Hi Renee !
Great picture gallery
Thanks for the friend add , catch up to you sometime :)
At 3:37pm on May 1, 2011, Devin said…
Happy Birthday Renee!
At 3:37pm on April 26, 2011, Kim Karacz Caudill said…
Thank you for the add and the compliment! How are you?
At 5:11pm on December 5, 2009, Donna DeHoog said…
Hi Renee! I am Donna. How are you? I am still pretty new to this alopecia mess. You look beautiful and so does your little girl! Can you tell me any information about your wigs? I am in a desperate search for one. Thank you greatly!!!!!!!!!
At 2:55pm on June 18, 2009, Jessica said…
hey renee,

how are you? yeah i am on facebook ,are you ? look me up hey stephanie is having a few people over friday if you want to come i can give you directions. jessica
At 12:25pm on May 1, 2009, Karina said…
Do you usually wear a wig?
At 6:13pm on April 18, 2009, Stephanie said…
Hi Renee,

Just checking in to see if you would be attending the meeting on the 23rd.

Please let me know!



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