Sharon, mom of Jon
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  • South Cheektowaga, NY
  • United States
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Sharon, mom of Jon's Discussions

what to wear for Senior Pictures

Started this discussion. Last reply by Melissa Sep 26, 2008. 3 Replies

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Profile Information

Relationship Status:
Married
About Me:
I am here for my son. He has Alopecia Universalis.
Are you age 18 or older?
Yes

Comment Wall (8 comments)

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At 12:26am on November 14, 2009, Susan - Jon's Mum said…
Hi Sharon
Thanks for the friend invite. Looks like we have a fair bit in common. Did your Jon go back to school? How is he coping?
How are you coping with things?
At 11:42pm on March 30, 2009, Bobby said…
I forgot to mention there was a couple of times when I wanted to wear a hat. I got a really nasty cut on my head, and wanted to cover it up. I didn't want a big white bandage on my head going LOOK i got in a car accident or have to explain it to everysingle customer that came into the bank. So I asked my manager if I could wear a hat, he laughed and said no. So I called my doctor and told him I needed a doctors note so I can wear my hat at my place of work for a couple of weeks. Explaining what was going on and how I cut my head. I grabbed it on my lunch break and went back into work gave the note to my manager and placed my hat on top of my head. He called his manager, and his boss told him to just leave it alone.

I believe anyone with AA or AU or any other Hairloss should be given a choice. Meaning we didn't have a choice to be bald. That being said any Child or Adult with Alopecia has the right to wear a hat, and I could get any number of doctors that would sign you a doctors to to allow it
At 11:33pm on March 30, 2009, Bobby said…
Hey I would like to know if you got the problem handled with your son not being able to wear a head covering? When I was younger my mom took me to a doctor and told the doctor being able to wear a hat would help reduce my stress level and maintain good cover during the cold months and keep my head protected during the hot months. The Doctor pulled out his pad and gave me a doctors note, and gave his personal phone number and said have the VP, District Manager call me if they want to make this a problem.
And if you want me to help you I will I had to get a note like 7 times in my life to be able to wear a hat.
At 10:20pm on March 16, 2009, Erica said…
being younger than many on this website if your son would ever like to speak with someone who has gone through such situations I would not mind at all to speak with him via this website aim or anything else. I really hope this situation will work itself out. I have had alopecia universalis since I was 3 years old and have had no hair since I was 6 so i can relate to many things I am not 22 and have just a little better outlook on my past and coping sratagies. If anything I am here to lend you my support as well and I hope that the school system realizes how completly horrible they are being...God Bless

~Erica
At 11:30pm on January 14, 2009, JeffreySF said…
Hi Sharon,

Welcome to Alopecia World.
I'm behind you and Jon 100%
My letter is in the post.

Jeff
At 10:35pm on August 4, 2008, Cheryl, Co-founder said…
Hi Sharon, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
At 11:04am on August 4, 2008, rj, Co-founder said…
Hi, Sharon. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
At 11:53pm on August 3, 2008, LeslieAnn Butler said…
Hi Sharon,
I have universalis too...I just wanted to welcome you!
LeslieAnn
 
 
 

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