Alopecia with Anger
If you have alopecia, young or old, and experience anger.please come and share your story
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Jasmine and mommy
- Female
- vancouver, washington
- United States
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"By now I should be used to being the only hairless student in my middle school and I am, sort of. Some days I'm even happy with my hairless look. That said, I must say the following. I am simply FURIOUS with people who stare at me like I'm…"
Alopecia with Anger
If you have alopecia, young or old, and experience anger.please come and share your story
Profile Information
- Relationship Status:
- Single
- About Me:
- Hello, my name is Susy and my percious daughter's name is Jasmine. Jasmine developed alopecia areota when she was 18 months old and totalis when she was 2 1/2 years old. we have worked hard as a team to build her confidents and not have to wear a wig or a hat. our faith has brought us along way. Jasmine started kindergarden and it seems like it regressed her to square one. i would love for her to know and see that she is not alone. we are in search of others who are the same age, that seek to know the same. she is an awesome littel girls who has an amazing personality. we look forward to making life long friends. As an update jasmine is now entering 1st grade and she has progressed amazingly. with the help of this website and some advise i got it helped us through the year. we have Alopecia awareness day at her school and whenever she starts somewhere new i always talk to all the kids about alopecia and feelings. she is very comfortable and has had so much fun in school.
- Do you have alopecia?
- Alopecia totalis
- Are you age 18 or older?
- No
Ps 139:13 - 16
For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.
My frame was not hidden from you when I was made in the secret place.
When I was woven together in the depths of the earth, your eyes saw my unformed body.
All the days ordained for me were written in your book before one of them came to be.
For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.
My frame was not hidden from you when I was made in the secret place.
When I was woven together in the depths of the earth, your eyes saw my unformed body.
All the days ordained for me were written in your book before one of them came to be.
Jasmine and mommy's Photos
Comment Wall (22 comments)
- At 5:45pm on November 8, 2008,
LeslieAnn Butler said…
- Hi Susy! Great to hear from you. I'm sorry that things have been not as good as usual. I'm back from Santa Fe, and it was great! There are 3-4 galleries I think would be a good fit for my work.
Please come to Lawrence Gallery on the 12th of November -- see my note below. I will be there about 6 PM. If you let me know exactly when you are coming, I will be there! Again, I am so sorry about last time. We missed each other by mere minutes! Next time I will have my cell phone and you can call me if something happens. Do you have an email address? If you send it to me, I'll send you my cell phone number. My email is in the note below.
Hugs!
- At 12:35pm on October 21, 2008,
- Oh, good, I'm glad you had fun! By the way, you can email me directly if you want, at labartist@aol.com.
I will be going to Santa Fe next week, so we'll have to wait a little bit to do something. There is another art show on November 12 that won't be so crowded and it will be in a nicer gallery, Lawrence, on the corner of NW 9th and Davis. My friend, Barry Mack, is having a show of his work. It is a huge space and you will be able to move around! Would you like to meet me there?
- At 10:56pm on October 18, 2008,
- BOO HOO! I'm so sorry I missed you!
Okay, we'll figure something else out. Did you at least get some cookies and candy at the show?
HUGS!
- At 9:32pm on October 17, 2008,
- Hi Susy and Jasmine,
Hey, I missed you guys! I was at the Portland Art Museum Rental Sales Gallery until 6:15 and then I had to leave to meet someone at 6:30. I was looking forward to meeting you! I hope you are both okay.
Hugs, LeslieAnn
- At 3:49pm on October 17, 2008,
- Hi Again! Just to let you know, I will not be wearing a cocktail dress tonight after all -- so see you in my jeans!
LeslieAnn
- At 5:11pm on October 16, 2008,
- Hi Girls,
Just wanted to confirm that I will be seeing you tomorrow night between 5:30 and 6 -- I'm looking forward to meeting you both!
I have another event to attend that starts at 6:30 which is dressy, so don't be shocked that I am in cocktail attire! Everyone else there will be in jeans. I will look peculiar! Oh well.
Big hugs, LeslieAnn
- At 5:08pm on October 9, 2008,
- Okay! I will make sure I'm there! By the way, I might have short hair instead of long, depending on my mood!
LeslieAnn
- At 1:22pm on October 9, 2008,
kristin said…
- Hi Jasmine,
I just want you to know that I read what your mom wrote and it made me smile. If you can be so brave at only 5 years old you are going to grow up to be truly remarkable lady. Know that you have given me strength today. I'll promise to smile big this weekend with you in my heart.
- At 6:16pm on October 8, 2008,
- Hi Jasmine and "Mom"!
I will be at the art show on the 17th between 5 and 6:30 or 7 -- so if you can come on the early side, that would be great!
- At 11:14pm on October 6, 2008,
- Great! No, it's really casual and low key! Okay, so what time will you be there? I want to be sure to see you!
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