Hey, your son is so-o-o cute! Nick and I were just browsing through members and he just popped out at us! He looks as spunky as my Nicky is. We just recently joined this site as well (a week or so ago).

Hey Zach and Mom... Welcome to this site, hope you find what your looking for here. You look like a pretty cool dude, keep being yourself, and if theres anything you need don't hesitate to ask.

Hi, I don't mind you asking at all. Feel free to ask me anything. How old is Zachy? We live in MA and so my daughter is treated at Children's Hospital. We tried many topical creams with no avail and finally then got her in to Children's with the help of my derm. Sam has been to a total of 3 different derm's. When we saw the doctor at Children's they wanted to try Squaric Acid Immunotherapy, SADBE. If you have a child with very sensitive skin it is likely this treatment will be too harsh. First we had to sensitize Samantha's arm to see if her body would react. A reaction is in the form of a rash on the spot. Once, it was established that her body would produce a rash, which it did then a solution of the acetone is put on a spot on her head. The idea is for your body to produce a rash where the treatment is applied. Sam started this process in December and started growing her hair in June. The treatment does not sound that easy. The side effects are a rash and itchy scalp and there are others that you just don't want. We have had some set backs and the doctors have been cautious because of her bodies response, but we have been able to to make this work for her. Although the treatment is applied soley to the scalp it is attacking her entire immune system so you can grow brows and lashes back. We are just noticing some blonde brow hairs and she has one dark hair on her first brow lost. I am hoping to see more in the coming weeks. She now has a baby head of hair that is filling in. This treatment is not for everyone. I know others who have tried it and their kids could not handle the reaction or their kids reactions were so bad they stopped. I also suggest seeing a doctor that is skilled with this treatment because it can have harsh effects. My daughter did blister during the skin test and we had to wait several weeks for it to clear before going on the head. Then, they did a small spot and arm flared up. But, like I said the doctors have been cautious and really worked to make this happen for Samantha. We do a quarter of her scalp each time. We do 2 treatments a week now, but that was after months of built up. We also had to drop the dose because in May she broke out in a full body rash. the doctor said it was her whole body reacting. The doctor said to Sam that her body was mad at her for telling it to do something it did not want to do. 3 week later hair was growing. Needless to say we are careful. A few weeks ago her legs got a bad rash, likely the same thing so we took a break, went back to once a week and she has been fine. and vavoom eyebrows are popping out.You need to follow the bodies cues. Samantha has done will tolerating the itchy the scalp which is the worst of it for her and it is not too bad. If you have any other questions please let me know. Have you tried anything. I really feel your pain. We found Sam first spot in May 07, but it was not till the fall that all her hair came out agressively. She started K with her hair and right after Thanksgiving she needed a wig. I recall spending my time in Florida calling for a wig b/c all of sudden 90% of her hair was gone. By March 2008 all the brows and lashes were gone. For her it was a slow process given that she was losing her brow in the end of 06, but we did not make anything of it till May the next year. Hang in there! You have beautiful children! Cindy

Your son is very handsome too!

Hi Zachy's mom. Welcome to Alopeica World. I have a 6.5 yr old daughter with Alopecia. We are very lucky that she has embraced and her friends who know have as well and it and does not let it stop her from doing anything. She has been wearing a wig since Dec and I want to cry every time I put it on. But, I can't because she just has one great big smile. She is having regrowth with treatment and we hope this is the beginning to a whole new head of hair...How is your son handling his Alopeica? Cindy

Hi Mom and Zach,

Welcome to Alopecia World.

Jeff

Hi, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

Hello Zachy's Mom, you son is a cutie, but don't tell him I said that, little boys don't want to hear anything that refers to them being cute, lol! Welcome to AlopeciaWorld!