Hi - if you still live in San Diego and would like to meet some local folks with Alopecia, we're having a lunch to celebrate International Alopecia Day, Saturday, August 4, 2012.
We're having lunch (margaritas if you want) at Tio Leo's Mexican restaurant at 3510 Valley Centre Drive in Del Mar (It's actually in Carmel Valley, right off Hwy 56 and I-5). You can view their menu here: http://www.tioleos.com/
They're not charging us for the room, but there is a $10 per person (food and beverages total) minimum charge.
Gathering time is 11:30am - it will be casual and will continue as long as we're having fun. I'll bring my "International Alopecia Day" banner and anyone who wants to be in the photos for our annual YouTube video can. If you don't want to be in the photos, that's fine, too. We have a private room in the back of the restaurant. Come bald, in a scarf, or in a wig - or in your hair if you have it!
Please let me know if you're planning on attending so I can give the
Thanks for the friend request, Aileen. Are you in contact with Jessy and/or Teresa of the San Diego alopecia support group? They have meetings and events for families with kids who have AA. Let me know if you need the contact info.
Dear Aileen: I am very sorry it has taken me soooooo long to get back to you. I was away at job training for three weeks and had limited access to a computer. I'm working a second job (not too many hours), and finally getting used to the new schedule. Both kids still have A.A. My son's is getting better and my daughter's is getting worse! The kids still use the same treatment as before. How are you? How is your son doing? I feel like I have finally accepted that my kids have A.A., and it is for now, still naturally concealed. I don't cry about it any more ~ so I feel I've reached a level of acceptance. Please write soon and let me know how you and the family are doing. Take care Sweetie!!!
Hi again! I am certainly no medical expert, but I do not see why you could not apply Iodides Tincture to thinning areas. I read about a woman in Mexico who washes her hair in Iodides Tincture. You might feel better about using, if you do more internet research. Good luck in which ever treatment you and your child select. Best wishes always!
I'm so happy for your son!!!! Casey is using a medicated foam and it seems when we stop so does the regrowth. It's not something we want to continue using for a long term period. We are just taking things as they come. I don't cry all the time anymore and I really don't think about it all the time as each time I look at him I just see my great kid (hair or no hair). We are getting used to it I guess. All in all, things are going well. Is you husband home yet from over seas. I'm sure you and your son have been missing him a lot. Though it seems you have a lot of wonderful family support. Stay well and stay in touch, Margie
Hi again Aileen! I applied Iodides Tincture to the kids' heads every night for one month (dipping a Q-Tip into the bottle and applying it to each balding area). The next month I applied the Iodides Tinture every other night. Since then, we have been treating with Rogaine nightly and the injections every four weeks. Prior to using the Iodides Tinture, my daughter was loosing about 20 to 50 strands of hair, when I combed her hair. Once we started using Iodides Tincture, she was back to loosing just a few hairs during combing. I really feel that using the Iodides Tincture slowed down her hair lose. It was not a cure, but really slowed things down. If she or my son start suddenly loosing a lot of hair again, I will follow the same usage plan with Iodides Tincture. The kids still have AA, but it seems to be going into remission and slowly getting better for both of them. Congratulations to you son on his regrowth! That is very positive news! Email anytime with questions. Its always good to receive word from you! Take care.
Hi Aileen, I've thought of you and your son often and hope all is well for both of you. Casey had started have a great deal of regrowth but as soon as it came in he began to lose the full top of his hair and then the regrowth went as well. We are now in another regrowth mode. Seems this will be a ping pong game. Casey is doing wonderful in sports and so his mind is focused on that so much more than the hair :) How is your son? Is he seeing any regrowth? How are things at school for him. I was really glad to hear from. keep in touch. Margie
Hi thre Aileen. We are all doing fine. How are you and your family, now that your husband is back from leave. How is your's AA? My son's is about the same. My daughter may be slipping into remission. Write soon!
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Hi - if you still live in San Diego and would like to meet some local folks with Alopecia, we're having a lunch to celebrate International Alopecia Day, Saturday, August 4, 2012.
We're having lunch (margaritas if you want) at Tio Leo's Mexican restaurant at 3510 Valley Centre Drive in Del Mar (It's actually in Carmel Valley, right off Hwy 56 and I-5). You can view their menu here: http://www.tioleos.com/
They're not charging us for the room, but there is a $10 per person (food and beverages total) minimum charge.
Gathering time is 11:30am - it will be casual and will continue as long as we're having fun. I'll bring my "International Alopecia Day" banner and anyone who wants to be in the photos for our annual YouTube video can. If you don't want to be in the photos, that's fine, too.
We have a private room in the back of the restaurant. Come bald, in a scarf, or in a wig - or in your hair if you have it!
Please let me know if you're planning on attending so I can give the
Mary
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