chris_s
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chris_s's Discussions

Crisaborole (Eucrisa) topical treatment for alopecia

Started Mar 25 0 Replies

Hello,we were at a scheduled appointment with our dermatologist today and she mentioned a new eczema drug called Crisaborole that she'd heard was being used on some AA patients. A quick googling…Continue

anthony carrigan on Seth Meyers

Started this discussion. Last reply by Alo-mom Apr 20, 2019. 1 Reply

Actor Anthony Carrigan being interviewed on Seth Meyers' show. a good advocate, helping to remove the stigma…Continue

exzema drug cures patient with AT - Dupixent or dupilumab

Started this discussion. Last reply by Anna Dec 20, 2018. 4 Replies

AW user singh posted this in another thread, I thought I'd give this it's own thread to make it easier to find information at a later dateinterestingly it's not a JAK inhibitor, but an antibody. FDA…Continue

apple adds alopecia emoji

Started Jul 18, 2018 0 Replies

saw this on the news this morning, they didn't specifically call it an alopecia emoji thoughContinue

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Latest Activity

naasaki replied to chris_s's discussion Tofacib - commerically available topical xeljanz Tofacitinib cream
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May 21
chris_s posted a discussion

Crisaborole (Eucrisa) topical treatment for alopecia

Hello,we were at a scheduled appointment with our dermatologist today and she mentioned a new eczema drug called Crisaborole that she'd heard was being used on some AA patients. A quick googling indicated a trial that started in 2020 that is wrapping up shortlyhttps://clinicaltrials.gov/ct2/show/NCT04299503Has anyone been using this or involved in the trial?thanks!See More
Mar 29
Haotian Xu liked chris_s's discussion The baricitinib thread
Feb 16
chris_s replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"this is the phase 3 trial…"
Feb 4
Patchylatchy replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"any updates on this? when will it be approved and how is everyone doing on it?"
Feb 4
chris_s replied to chris_s's discussion The baricitinib thread
"thanks for the update! "
Dec 28, 2020
elizabetham replied to chris_s's discussion The baricitinib thread
"I’m sorry to hear that you did not have luck either. So strange! I did notice that Baricitinib reduced my allergies as well. I have been taking tofacitinib for a few months now and I am seeing more growth than I ever did in the baricitinib…"
Dec 28, 2020
Baldie replied to chris_s's discussion The baricitinib thread
"I'm in the baricitinib study and seem to have had the exact same results as the other two people who posted in this thread.  Im in week 75, started with 2 year old universalis, and have had 20% regrowth of scalp hair and peachfuzz body…"
Dec 28, 2020
chris_s replied to nexoo's discussion pf-06651600
"thanks for the update, hope to hear good news from you soon"
Aug 31, 2020
andrea mark replied to chris_s's discussion Suitable hat for summer?
"My son also having this same issue and he irritates sometimes to wearing hats or cap in this hot weather, but it's too necessary for him to keep from sunlight, I bought for him cotton made a hat from Back to School coupons, I am showing you a…"
Aug 17, 2020
mtran2000 replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Anna, Similar situation with me, very little results with Xeljanz so trying Jakafi. How long did it take to see regrowth on Jakafi?"
Jul 31, 2020
Anna replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Hey mtran2000 - I took Xeljanz for a year and did not respond at all - and had no side effects. I have now been on Jakafi for a year and have full regrowth! But I do have side effects - weight gain, high cholesterol, and fatigue. I now take a statin…"
Jul 29, 2020
Chi_Loss replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"i had pretty decent growth (around 70% from 20%), then it began to fall out again. I was never able to get my insurance to ok an increase in dosage so once it started falling out I decided to  just bail and cut it all off until I found the…"
Jul 22, 2020
Peachfuzz replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Did you have decent regrowth? Did you decide not to continue with Xeljanz?"
Jul 22, 2020
Chi_Loss replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"i took it for around 15 months at 10mg per day"
Jul 22, 2020
Peachfuzz replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Hi Chi_Loss, how long did you take Xeljanz for and what dosage?"
Jul 22, 2020

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At 2:25pm on February 10, 2018, Mashloum said…

Hi Chris_s's

unfortunate the hair-up is nothing, it is just to waste time and money, it seems the Xeljanz is the only solution so far, and I am preparing to start the medication for my son (9 years), but I am searching for the doctor will be a sponsor for the case

At 3:08am on May 5, 2016, Patricia said…

My Doctor today is willing to write a script for Topical Xeljanz however she doesn't know where I can buy it from. Is everyone buying the tabs and getting a compounding chemist to prepare it or can I purchase it as a cream without having to buy tabs first and find someone to prepare it for me? Any help would be appreciated. I live in Australia.

This site is great.

At 4:16pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome! 

How are you and your son today?

Leslie Ann

 
 
 

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