chris_s
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chris_s's Discussions

routine childhood vaccines and the risk of triggering a flare up

Started this discussion. Last reply by cd_385 Dec 29, 2021. 8 Replies

My 10 year old has had a couple of good years with minimal hairloss, but he has a few scheduled vaccines in the next year or two. Canadian healthcare schedule. hepatitis B, HPV, Meningitis are this…Continue

Crisaborole (Eucrisa) topical treatment for alopecia

Started Mar 25, 2021 0 Replies

Hello,we were at a scheduled appointment with our dermatologist today and she mentioned a new eczema drug called Crisaborole that she'd heard was being used on some AA patients. A quick googling…Continue

anthony carrigan on Seth Meyers

Started this discussion. Last reply by Alo-mom Apr 20, 2019. 1 Reply

Actor Anthony Carrigan being interviewed on Seth Meyers' show. a good advocate, helping to remove the stigma…Continue

exzema drug cures patient with AT - Dupixent or dupilumab

Started this discussion. Last reply by ZakICarey May 5. 6 Replies

AW user singh posted this in another thread, I thought I'd give this it's own thread to make it easier to find information at a later dateinterestingly it's not a JAK inhibitor, but an antibody. FDA…Continue

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Latest Activity

ZakICarey replied to chris_s's discussion exzema drug cures patient with AT - Dupixent or dupilumab
"It is necessary to conduct many more tests to prove this thesis."
May 5
Fuzzless replied to chris_s's discussion exzema drug cures patient with AT - Dupixent or dupilumab
"Clinical trials are in phase 2! https://clinicaltrials.gov/ct2/show/NCT03359356"
Apr 14
Fingers_Crossed replied to chris_s's discussion The baricitinib thread
"Hey Joseph, just wondering how your hair growth is coming along on baricitinib? "
Jan 24
cd_385 replied to chris_s's discussion routine childhood vaccines and the risk of triggering a flare up
"I agree with you Sabine - it is NOT cosmetic - it is an organ (many small organs).  If any other organ was failing, there would be an intervention.  Losing hair from an alopecia is a signal something is not right.  A body…"
Dec 29, 2021
SabineTawni replied to chris_s's discussion routine childhood vaccines and the risk of triggering a flare up
"Forgot to add that keeping your fingernails clean when you have AU is very difficult. Your nails have splits and ridges on them, and underneath the nail, the dirt gets trapped in those openings, and you cannot remove it easily--even with a scrubbing…"
Dec 26, 2021
SabineTawni replied to chris_s's discussion routine childhood vaccines and the risk of triggering a flare up
"Actually, Jennifer, it is infuriating that after all this time, we do not have more effective treatments (possibly even a cure).  First of all, hair is NOT cosmetic!  Our society has made it "cosmetic".  Hair is a…"
Dec 26, 2021
Jennifer replied to chris_s's discussion routine childhood vaccines and the risk of triggering a flare up
"I agree with what you said that mental health is just as important and it can kill you if your mental deteriates over it. I agree about big Pharma.  I really can't believe there hasn't been more options and research into autoimmune…"
Dec 26, 2021
Joseph123 replied to chris_s's discussion The baricitinib thread
"Hi guys, this is about 7 weeks in. As you can see there are tiny white/blonde hairs growing on top of my scalp and sides of head. Also these hairs are very minimal on my eyebrows too. Just updating you guys and wondering has people seen these signs…"
Oct 19, 2021
Joseph123 replied to chris_s's discussion The baricitinib thread
"Hi there, I live in Melbourne Australia. I was prescribed the baracitinib as my case was severe. I had tried metatraxate and others but didn’t work. So was put on this. The public hospital here worked out some deal with a compounding pharmacy…"
Oct 9, 2021
BMG replied to chris_s's discussion The baricitinib thread
"Just wondering how you were prescribed this drug?  Outside of a trial I didn’t think it would be available for treatment t of AU"
Oct 8, 2021
Joseph123 replied to chris_s's discussion The baricitinib thread
"Hi Elizabeth, thank you for the response. Just wondering did you go through this treatment yourself? And do you know how long it usually takes for true colour. Thank you "
Oct 7, 2021
elizabetham replied to chris_s's discussion The baricitinib thread
"Joseph- that’s exactly the first stage of hair regrowth! It comes in white or blonde but it will darken up once it’s a little longer. Congratulations!!"
Oct 7, 2021
Joseph123 replied to chris_s's discussion The baricitinib thread
"Hi guys, not sure if this thread is active but said I would give it a shot. I am 26 year old male diagnosed with AU about 7 months ago. I tried a few immune suppressant but didn’t work. About 5 weeks ago I was put on baracitinib 3.4mg daily.…"
Oct 7, 2021
SabineTawni replied to chris_s's discussion routine childhood vaccines and the risk of triggering a flare up
"BOTH are important.  Mental health is just as important as physical health.  It's rare for a healthy 10-year-old boy to die from the flu. But, for the most part, I would favor the vaccines over the hair loss problem.  It's…"
Aug 29, 2021
Searching for My Son replied to chris_s's discussion routine childhood vaccines and the risk of triggering a flare up
"Of course it’s not more important, but his pediatrician actually recommended we skip the flu shot last year and see if there is a correlation. She said that because he’s had the shot every year of his life, there is residual protection…"
Aug 29, 2021
Cindie replied to chris_s's discussion routine childhood vaccines and the risk of triggering a flare up
"Is it more important for a child to have hair, or to be protected against diseases that can kill him or her?  That would be my concern."
Aug 29, 2021

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Comment Wall (3 comments)

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At 2:25pm on February 10, 2018, Mashloum said…

Hi Chris_s's

unfortunate the hair-up is nothing, it is just to waste time and money, it seems the Xeljanz is the only solution so far, and I am preparing to start the medication for my son (9 years), but I am searching for the doctor will be a sponsor for the case

At 3:08am on May 5, 2016, Patricia said…

My Doctor today is willing to write a script for Topical Xeljanz however she doesn't know where I can buy it from. Is everyone buying the tabs and getting a compounding chemist to prepare it or can I purchase it as a cream without having to buy tabs first and find someone to prepare it for me? Any help would be appreciated. I live in Australia.

This site is great.

At 4:16pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome! 

How are you and your son today?

Leslie Ann

 
 
 

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