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kdeff
- Female
- Lebanon, TN
- United States
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NAAF conference
Started this discussion. Last reply by Sarah Sproul Jun 20, 2013. 2 Replies 0 Likes
So who else is going to the NAAF conference in St. Louis? It's my first one and I'm pretty excited about it. I'm not taking my 3 year old since she's not old enough to participate in the camp yet,…Continue
Starting SADBE therapy
Started this discussion. Last reply by Karen Smith Feb 18, 2012. 1 Reply 0 Likes
My 2 year old was finally diagnosed with AA after a year of on-again off-again hair loss. Her Derm is going to try SADBE therapy. Has anyone had success? I have questions like do you wash hair with…Continue
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Profile Information
- Relationship Status:
- Married
- About Me:
- I am the mother of a fabulous 2 year old daughter who has had issues with her hair since she was 11 months old. I also have a 4 year old daughter with tons of hair! I have shed many, many tears over this situation because I don't want my baby to have to experience anything that is hurtful. We are trying some treatments that our dr recommends, but in the end as long as she's happy and healthy, we will all be fine :)
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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I will send you a message to your inbox here so my information isn't public:-) Look in your inbox!
Kdeff,
My ,little one is 6 1/2 now...he started losing his hair just before age 2 and is now completely bald with not a hair on his body. He is happy, healthy, cute as can be and loving life. I know he will be fine but I can't possibly stop worrying...you know how it is:-)
I'm glad to see you are close by in Lebanon--we are in Nashville. I don't know if there is such a thing but I'd love to have an alopecia play group sometime. My little Luke has never met another child with alopecia and I know he would enjoy it.
Maybe we can meet up sometime! Good to know you are so close!
My daughter also lost her hair at age 2. She is now 10, bald, and doing great! Filled with confidence and feels beautiful, has lots of friends. Your daughter will be fine. I highly recommend you contact childrens alopecia project. They are having a camp this August in Michigan. Lots of fun (we will be there) and you and your husband will get the necessary support so you can help your daughter throughout her childhood. And they address sibling concerns too.
Terri
Your daughter is so cute. Thanks for the friend request.
Thanks for the add, your daughter is precious.
Thanks Laura! I just ordered the book on Amazon. I'll let you know how it works out.
How did you make out with the skin test?
My daughter lost her hair around age 4 and it's been on again off again since. Right now she's in a period of shedding again. We used probiotics with a lot of success early but not so much now. We're adjusting the dosage to see if that helps. Other than that, we got wigs from Hair Club for Kids that got us through the worst periods and kept her spirits up. They are actually really nice and high quality - and free. Now that she's older, the wig thing is less attractive to her as she is now concerned about what other kids will say.
Hello and Welcome..Your daughter is adorable. I wanted to suggest you contact the Childrens Alopecia Project to get in their system and no cost. They do a kids camp every summer for a long weekend for the entire family. Support groups are popping up across the country. www.childrensalopeciaproject.org.
Please write if I can help in away. Cindy
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