momx2x2
  • Female
  • Needham, MA
  • United States
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  • Ryan
  • NicoleT

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momx2x2 replied to NicoleT's discussion Xeljanz from India
"I ordered in March and then got distracted fir a month. got invoice mid April - sent wire a few weeks later and received my order last week. so maybe I got  in before the problem arose? hopefully fixed soon!"
May 30, 2023
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Ok, that makes me feel so much better. Not that I want you to have spots but glad they come and go for you. I have appointment with Bordone next week to see what she says and I had all my test recently and everything looks in good order, but…"
Oct 23, 2020
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I’ve been on Xeljanz for 16 month, full regrowth. I got a few spots when I started to reduce Dosage and immediately went back up and Spots grew back. but all of a sudden I have two small spots and I’m not sure what to do. my head is…"
Oct 23, 2020
momx2x2 replied to NicoleT's discussion Xeljanz from India
"Im so glad you got your meds. Good news for the rest of us! I’ve ordered from beacon a few times in past but now not getting any response and I’m emailing mouree@beaconmedicare.com.bd although I had previously emailed Shamiul…"
Jul 29, 2020
momx2x2 replied to NicoleT's discussion Xeljanz from India
"Why would you be losing? Did you change anything? This is all so frustrating! I think I might take you up on your offer, do you have any 11 mg extended release?"
May 25, 2020
momx2x2 replied to NicoleT's discussion Xeljanz from India
"I’ll have to check to see how long I can make it , any word on opening  of Beacon or courier?"
May 24, 2020
momx2x2 replied to NicoleT's discussion Xeljanz from India
"Nicole, you were right! With full regrowth,  I went from 15 mg to 10 mg, at first I did complete reduction (maybe 4 weeks) and then I thought I better  alternate days, so I’ve alternated between 15 and 10 for three weeks and i just…"
May 24, 2020
momx2x2 replied to NicoleT's discussion Xeljanz from India
"I’d be interested, I’m in boston sheila "
May 12, 2020
momx2x2 replied to NicoleT's discussion Xeljanz from India
"Thanks for the update on the May 7 opening . I’ve sent them multiple emails and never heard back and I I don’t want to keep emailing them, so wondering if they were going to fill the back orders or if I have to request again once they do…"
May 1, 2020
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nicole,  im dropping from 15 mg to 10, I know you lost hair when you dropped down, how long before you started seeing new spots. I try and go up to 15 every third day or so but I haven’t been very good at tracking. also, I emailed at the…"
Apr 7, 2020
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nicole  woukd you mind sending me contact, I have emailed a few times but no response. I have full regrowth but afraid of running out if I can’t get an order in thank you, you look great in pictures  next time I see Bordone  in…"
Mar 26, 2020
momx2x2 replied to NicoleT's discussion Xeljanz from India
"i have oredered twice from Beacon in the past and got a response within 24 hours, i have emailed twice and also entered a quick order on their web site but NO respsonse. I have a bit of a stock pile of the 5 mg but am looking for the 11mg. any other…"
Mar 9, 2020
momx2x2 left a comment for Ryan
"did you finally get your medicine thru customs, you never responded. Sheila"
Sep 18, 2019
momx2x2 left a comment for Ryan
"did you finally get your medicine thru customs, you never responded. Sheila"
Sep 18, 2019
momx2x2 and Ryan are now friends
Sep 18, 2019
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Me too, I work in town and can lend you a box till you get yours  I’ll bring with me tomorrow  I think there’s a way we can talk direct, just not sure how ? sheila "
Sep 8, 2019

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 12:37am on March 8, 2017, Cheryl, Co-founder said…

Hi Momx2x2,  

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out "10 tips for getting the most out of Alopecia World” which include a few tips to get you started!

Cheryl, co-founder

 
 
 

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