After getting Alieena out of the bath last night, I started to dry her hair and to my surprise on the top of her head to the side along the biggest patch edge, there is new hair growing, and as well as on the big patch on the side behind her ear. I dont know if its the spray we are useing or what but I will get the name of it tonight and post it for everyone along with a picture of the regrowth. Yes I am probably over excited and I know that it might not grow back in that it might just fall out… Continue

Thanks to everyone for your comments. I am VERY proud of Alieena. From day one when we first found out I had a sit down with her and pretty much told her honey, you are very special and no one can change that, and I have explained to her in great detail what it is she has and that it might be a forever thing, and I have told her time and again when she starts getting a little down about her missing hair that she had to be strong and remember she is beautiful and that God made her special. I… Continue

Ok ok, same old question with still not a good enough answer. Why are people ignorant to the unknown? And let me rephrase that I dont mean ignorant to be mean but what I really mean is why do people have to be so cruel? Let me tell you I am a strong person with a very stubborn personality when it comes to my daughter, but what mother isn't? Here are a few of our daily bumps and Im sure you all will agree with me on this. Alieenas AA is getting better but at the same time getting worse. The… Continue