As I've shared before, my hairloss is (as far as I know) related to another health issue. 2.5 years ago, I got a rheumatoid arthritis diagnosis but in the last year my symptoms have ramped up, culminating in an ER visit in September, and a host of bizarre symptoms (where I started treatment for Lyme). I finally got into the rheumatologist today, and he gave me a working diagnosis of Lupus and began treating it. I will get labs tomorrow, but he was confident that regardless of the final… Continue

So I was in the shower and thought about this as I was scrubbing my hair. Have you become a bit obsessive about your hair/scalp care?



On days divisible by 4 I wash my hair with a coal tar based shampoo. I've been using it for over 10 years because I have dandruff from hell. I've had it since I was born and had no hair back then either ;-) I really scrub it to because I figure a healthy, stimulated scalp has a better chance of regrowth. If I lose all my hair I will still scrub the… Continue

So on Tuesday, my aunt gave me a few wigs she had on hand and I ordered 2 more...one that will like like my real hair and one that is totally not, lol! I'm not ready to invest in an expensive wig until I know the nature of this, though at this rate it will be gone by Christmas. Yesterday, I spent most of the day with my mom getting her glasses and whatnot, and I wore this all day with fairly good results. Here are a before and after shot.



Before:…

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"This disease must be doing wonders for my appearance, because people keep telling me how good I look."



I saw that on a sight called http://www.butyoudontlooksick.com which is created by a young woman with Lupus. For anyone living with a chronic illness that can't explain it to your friends and family, she has a story called "The Spoon Theory" which you should read. I didn't think I looked sick when I was able to do makeup, etc, just… Continue