Stephanie's Blog (11)

I've been neglecting you all

I know it's been months, literally, since I've even logged on to Alopecia World, and I'm so ashamed of myself.



I switched to the night shift at work, which has been crazy.



As soon as I got adjusted to that, I found out I am pregnant. I'm due in January, and spend most of my free computer time researching baby-related stuff.



My hair grew back this summer, likely from the hormones and prenatal vitamins. I really thought I'd be wearing a wig for the rest of my… Continue

Added by Stephanie on November 11, 2009 at 11:39pm — 5 Comments

Today I cried

I read a story about a little girl in Mass. with Alopecia. Her cheerleading team and all the pop warner football team wore bandanas on their heads or a T on their helmets to support her during a fundraiser. One of the parents (a coach) and a player shaved their heads to support her.



I read this in the latest NAAF newsletter, and got teary-eyed. Then, I read it out loud to my husband and started sobbing. What an amazing group of people. It made me wish I had that kind of community… Continue

Added by Stephanie on February 21, 2009 at 3:14pm — 2 Comments

A lot going on

I don't know if it's a blessing or a bad thing, but over the last several months, I've kinda' put my alopecia in the back of my mind (as much as I could) to focus on the holidays and work... And a bout of stomach flu.

I just haven't had much time to sit and do anything but work.


I got a new wig from Revlon, and I LOVE. It. I'll post pictures soon, I promise.

Added by Stephanie on January 31, 2009 at 1:55pm — No Comments

In my dream...

For someone who portrays the world that she's OK with wearing a wig, I still finding myself having the same dream.



I wake up one morning, just like any other morning and start getting ready for work. I go through the routine of taking out the dog, showering, brushing my teeth, doing my makeup (all with the towel on my head) and them situating my wig before I leave for the office...



But this particular day is different because I have time to kill and notice my hair has… Continue

Added by Stephanie on December 20, 2008 at 4:29pm — 1 Comment

I found a new bald spot

I've been keeping my real hair really short lately... my wig doesn't seem to move on my head so much if my hair is short.



And I noticed the places where I do have hair don't seem to be growing as quickly, and the bald spots that showed up last spring seem to be taking a much longer time to grow back. One is almost completely grown in, and I can feel peach fuzz on the other, but it's taking a long time.



But yesterday, I noticed another bald spot on top, a little to the… Continue

Added by Stephanie on November 21, 2008 at 8:35pm — 3 Comments

My therapy

I made a promise to a professor when I was in college that I would find a way to give back within five years after I graduated.



He made us all pick a cause that was important to us. I said I wanted to help other people struggling with alopecia gain the self confidence it takes to accept its role in their lives.



It's been almost eight years since I graduated from college, and I haven't done anything. But I realized I'm not really in a position to help anyone until I can… Continue

Added by Stephanie on November 16, 2008 at 12:10pm — No Comments

Finding the humor

I come from a family that likes to laugh. We believe that humor can help heal whatever ails you (I don't mean to make my family sound like saints in all my posts, I just love them very dearly).



For a long time it was hard for any of us to find humor in what was happening to me. Here I was 12 years old going bald, crying myself to sleep or getting lost in this horrible spiral of depression.



I remember the day before I got my first wig. I was sitting in the living room at… Continue

Added by Stephanie on October 26, 2008 at 10:40am — 5 Comments

It's been a while

Things at work and with my family have been a little insane the last couple of weeks.



I did have a funny run-in a car door and my wig the other day. It almost fell clean off in front of two co-workers. Thankfully, it was two people I'm rather close to, so we all laughed it off.



It's comforting to work in an environment where nearly everyone knows about my hair.



I've been sharing a lot with my supervisor about this community. She survived a near-fatal bout of… Continue

Added by Stephanie on October 18, 2008 at 2:40am — No Comments

I haven't cried this much in forever

Joe jokes with me that when I find something to obsess over, I put my heart into it. And he's probably right.



I find myself drawn to Alopecia World, eager to see what other people have to say about something I've spent most of my life trying to hide from the world. I'm OK with me and the hand I've been dealt, but such a huge part of me just wants to have hair long enough to put in a ponytail.



I look at pages in this community of beautiful, strong women so confident in… Continue

Added by Stephanie on October 4, 2008 at 12:56am — 5 Comments

Telling a six year old

When I return to my hometown to see my family, I generally spend a lot of my time without my wig on. My parents live on a farm and have no air conditioning, so it's about 900 degrees hotter in the summer than anywhere else in the world.



Most people are used to seeing me without my hair and have little to say about it.



Except my oldest nephew. Ethen is at that inquisitive age where he wants to know the reason for everything. Why my eyes are grey or why Uncle Joe spikes his… Continue

Added by Stephanie on October 2, 2008 at 10:37pm — 7 Comments

My story

I grew up in a loving family with two parents who exuded love everywhere we went and two brothers who eventually grew up to be my mentors, my champions and my best friends.



We were rather poor, but my brothers and I never doubted for a second that our parents loved us and were proud of us. And their love for us was never more clear than when we needed them. My brothers were quite accident prone and spent a lot of our childhood in emergency rooms with sliced open hands or broken… Continue

Added by Stephanie on September 28, 2008 at 3:56pm — 4 Comments

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