I met fellow alopecian,Susan from North Carolina. I hope she reads this and friends me on facebook Linda Fahey Carraway. There were 3 of us on The Navigator of the seas,myself susan and the lady I came with my daughters mother in law. I think our kids are domed to be bald someday. My soninlaw is very close and his brother is there! I had a wonderful time went bald mostly and not one person flinched,I think people are so used to cancer patients they just assume thats who you are. Only 1 person… Continue

I was hoping to find someone in the central florida area having an event, but haven't seen anything posted. I'd love to meet some other people in my area. If your out there and you want to get together email me at mamalc9949@hotmail.comthanks Linda

I would love to have a celebration(july17) somewhere in my neighborhood. Anyone that lives in fla please let me know and we can set something up.

Just wondering if anyone else was a disappointed as I was when I got this issue. One of the headlines was "When the one thing getting thinner is your hair". I thought finally there will be an artical to explain our situation. But when I read the one page artical I was stunned to see most of the page was advertisments for Minoxidil,finasterdie lasers and hair transplants!!! In the first paragragh they state"80% of the time regrowth is possible" they never even mention totalis or areata,they talk… Continue

http://www.cdc.gov/DES/ Is anyone else out there a DES child?? I'm wondering if this has anything to do with my health issues.I have hypothyroidism ,AA and vitalogo None else in my family has these issues except one aunt with hypothyriod.

https://www.youtube.com/watch?v=Rvo3H7r60sI&feature=related

I finally went and bought a wig and shaved what was left.I can't believe how free I feel.I was dreading it and then when it came off I couldn't believe how good I feel. I feel like this is a new chapter in my life and I don't care who looks and what they think. You have all helped me make this choice ,when I look at the pics I can only see the beauty in your faces .Thank you for posting and I will definatly be involved next july . We should try and do something in the melbourne /orlando… Continue

Can you dye a synthetic wig?? I had someone give me one but its way too light,needs to be 3 or 4 shades darker???

My daughters getting married in jan and I would love to have a wig .I don't want to ruin the pics for her. The thing is I don't have any money.I was injured in a car accident in feb and haven't worked since. My hair has all fallin out in the last 2 months. My husbands been out of work for almost three yrs . And on top of that I need a new hip and am waiting on medicare!! We're just getting by and was wondering if anyone knows if there are any organizations that could help me with the cost of a… Continue

Has anyone ever taken this its all natural form of organic sulfur,its says it provides the chemical links needed to form and maintain various tissues and articular cartlilages found in the body including hair. After my hip surgery i was told to take glucosamine but can't take it so I, my brother in law take sMSM for his ( degenerative bone and muscle problems) .SO I started taking it ,all my hair is coming out again BUTT I have stbble which has never happened before it used to be smooth so I'm… Continue