I have had Alopecia Areata since I was four years old and have done everything I can think of to hide it from others. I would often times style my hair put on so much hair spray to keep in place.. making sure that no one can see my spots. It worked when I was younger but as I got older the spots got bigger and were not growing anything. I got my first wig when I was 15 and it was really hard to except, but once again I did everything I could to ensure my secret was kept. Only family and close friends knew. I wore it for a little over year and grew enough hair that I did not need it, but that was a short phase. A year ago (at the age of 20) I had to start wearing a wig again, and I did everything to prevent that and try to grow hair (injections, creams, sprays etc..) Nothing work enough.

So I was to face a hard reality that I was going to get married in a wig. Even though everything worked out, I looked great and no one knew grasping the fact that on one of the most important days of my life I still could not look at myself and be 100% happy. I have always struggled with being open about and telling people who I view as friends. I have many friends who have know idea...and I struggle with being ready to tell them. I know once people find out they look at you differently, even if they don't mean to. My lack of confidence is preventing me from taking that step but I really want to. I know if I tell them I would feel a release, I would feel more comfortable and more myself, but the fears of what they may think and the way they may look at me scares me. I have been very lucky to be blessed with a very supportive family, and to meet a man who does not suffer from Alopecia ( in fact he never heard of it till he met me....which is the general public) but who is fully supportive, understanding, and patient. Regardless of my support system I still cannot cross that threshold of fully embracing, being proud, finally fully excepting this is who I am... and no matter how much hair ( or lack there of) it does not define me.

How can I take the final step and just let go of all hesitations and to know I'm more than hair...no matter what society says.

Views: 6

Comment by Rachel H. on September 6, 2008 at 3:01pm
That's how I MADE myself come to terms with my alopecia, as well. I made it the subject of my final project my first year in college. It was scary, but I did it. It really just takes time. I'm still not 100% comfortable with it, but I am far more comfortable with it now than I have ever been.
Comment by Mandy on September 7, 2008 at 12:02am
Hey darlin. I honestly truly seriously believe that when people say "they'll look at me differently" that that simply is NOT true. You are the one looking at yourself differently. Your friends and family that love you will not care about your hair. Honestly neither will most strangers. I told everyone I knew immediately when I started losing my hair and everyone was fabulous about it - friends, family, work, etc. No one treated me any differently. If anything they respected me more for the bravery of facing the challenge. All that matters is that you are happy and comfortable. If you are more comfortable in a wig that's perfectly fine. The final step to let go is to find acceptance and to love yourself. Simple as that. Ok...for some it's not SIMPLE. But honestly, that's where you need to turn your attention: to finding acceptance and loving yourself for who you are. Once you accomplish this, you will have the confidence you need to tell others. And when you tell others you will see that they will still love you. ;o) I hope this helped in some way.

Hugs,
Mandy
Comment by JeffreySF on March 22, 2010 at 9:01pm
Hi Larisa,

Have you ever been to a NAAF Conference?
I think you would find it very helpful. I know thats how I gained full acceptance with my alopecia.

Jeffrey

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