Alopecia World
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A lot of shenanigans
I have only been diagnosed for oh 3 months now with AGA/TE, but one thing that I am finding a bit annoying is the sheer amount of hair loss shenanigans on the internet.
Try doing a search on YouTube for alopecia. I am looking for genuine people telling their stories. I personally find them helpful and inspiring. However what I mostly find are a lot of videos promoting a product or some dermatologist telling the usual treatment options for alopecia.
My favorite headlines:
1. How to prevent hair loss
errr last I checked if you hair starts to fall out...it is pretty hard to stop. Prevent???? Really?
2. Androgenic alopecia treatment
I think the word "treatment" is almost hysterically funny. In less than two months one thing I know is that if you have AGA...at some point it wins. Treatment. There really isn't a treatment just one thing, minoxidil, and it really only works for some people some of the time. Eventually it doesn't work at all.
3. All natural cures for hair loss
Again...it has nothing to do with how "natural" you are. Most serious hair loss is genetic. Unless those products can alter your genes, they are just a waste of money.
Where am I going with this? Well the point is logic is very important when dealing with hair loss. Since we are all in very emotional states, it's very easy to be taken in by false promises. I encourage you to get educated about the type of hair loss you have and understand what it means. If vitamins, shampoos that "prep" your scalp for hair growth, etc. really worked...we wouldn't still have people with no hair.
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Comment by Jennah on December 14, 2011 at 4:03pm
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I have one not from the net but from friends ...."Its only hair"............Its not only hair its my hair!!!!
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Comment by Figarosmom on December 14, 2011 at 4:34pm
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I need to do a blog on common phrases people say when they learn you are loosing your hair. AMEN!! it's MY hair... easy for you to say buster. Or fine, if you feel that way, let's exchange places and you can loose your hair. Strangely my mom is one of the people who said that comment to me.
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Comment by Heather Ramon on December 14, 2011 at 5:40pm
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I can honestly say that it is only with good intentions someone makes that comment; just like 'at least he's a BOY with no hair'. They're just trying to give you a perspective. And though it doesn't make you feel any better, maybe it can give you some insight to their feelings about it. If it was a big deal to them they wouldn't say it. This should give you some relief that they're not seeing you the way you see yourself. Next time just respectfully tell them that that isn't the most comforting phrase and they'll find other ways to tell you how wonderful you are.
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Yeah I know it is coming from a place of trying to make me feel better, but it just doesn't as it is a huge deal for me.
Yea Figarosmom my mum said that to me also, and I do know she hust wants me to feel happy, but I really do wish people would stop saying it is just hair, because to me it isn't just hair it is part of me and makes me feel like me. I know I just need to learn how to try and accept it, any advice on how....anyone?? :)
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Comment by Amy on December 14, 2011 at 7:32pm
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I agree! My last doctor asked me what I was going to do about my hair loss. I said nothing. If something out there worked, none of us would be on this site!
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I am sorta in the place of doing nothing as well. I agree with you Amy if there was something that worked we wouldn't all be out here trying to figure out what works.
And I know Heather you are right. They are trying to help. It's sorta like being at a funeral, people want to help but they are not sure what to say so it comes out awkward.
As for accepting Jennah, I say we need to give ourselves time. While that is happening, we are going to have to look inward at who we are and find our treasure there. I do know that no one here looks any less pretty me. Including you Jennah. You're very pretty and you need to remember that.
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