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In the past few weeks, I've really changed. Changed in the sense that I'm not allowing myself to hide that I have alopecia anymore. I'm no longer considering it a 'secret'. I shouldn't be ashamed of it, because alopecia is apart of me, and I will not be ashamed of myself. It was difficult to talk about it before to my family, and even worse when I talked about it to my best friend. I would always end up crying. But recently, I told more of my friends, without a single tear, and they understood. They didn't look at me different, nor did they feel uncomfortable. They accepted me for who I am. And that felt so good, that I think I'm becoming addicted to letting it all out. I want to talk about it, tell people, and have discussions. I also told my boyfriend that I have alopecia, and he said it doesn't change anything. That response, made me feel like for once in my life, alopecia isn't ruining anything. Just because I don't have hair, doesn't mean I don't have true friends. I've been wanting to post this since last week, but it's better late than never. :)
That is so great! I love how you said that you're addicted to letting it all out. I know how that feels. Telling the truth is so freeing and you want more and more of that freedom. Thanks for sharing.
Kudos to you! That's what happened to me, I decided to stop hiding and just let it out. Once I started telling people about it I wanted to talk about it more. It was almost freeing me to talk about it.
im just asking but why is it so inportant to tell everyone? i been living with this problem for the last 22yrs and i still don't tell others my business if they can't do anything about it to help why tell them?
HI JACKIE,THATS THE SPIRIT-I FELT EXACTLY THE WAY U FELT AND SUMTIMES I STILL FEEL SO-BUT YES-MY BOYFRIEND ALSO ACCEPTED ME FOR WHO I AM-WITH HAIR OR THE NOT-IT MAKES ME LVE MYSELF MORE AND HIM...SUMTIMES I JUST FEEL LIKE BEING ALONE AND CRY MY HEART OUT,BUT GOD HEALED ME FROM THAT....WOULD U ADD ME AS A FRIEND PLS?
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Bravo et surtout quelle chance d'avoir ce courage, moi, depuis 2010, je suis toujours aussi mal, bonne continuation
My son is going to be 12. He has had alopecia universalis for over a year and a half. He always says "people are going to be my friend whether I have hair or not, because it is me they like and not my hair!" He has the courage of an adult. Not easy being in 6th grade and being confident, proud and secure in who he is, while being bald.
Check out his youtube video with my daughter. Google Alopecia awareness and you will see his beautiful face!
Jackie, be proud of who you are. If it makes you feel free to discuss it, then by God, do what makes you feel proud and happy. Beauty is in the heart, not in the hair! My son is a living, breathing example of true beauty and happiness!
Congratulations, Jackie. I'm new to this community, but have been living with AA for 29 years. My biggest piece of guidance for people is centered around this very theme of acceptance and focusing energy on building and developing oneself (on the inside).
Yey for you! It's important to let the people get to know who you really are and Alopecia is a part of you.
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