Alopecia World
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Alopecia Awareness Month
I did it... I posted a status on my Facebook telling every one of my friends on there that I have Alopecia. It said:
"In support of Alopecia Awareness Month, I am coming forward to say that I have a form of Alopecia. I want to spread awareness about this as much as I can. maybe one day when another young girl gets diagnosed, she will know she isn't alone. I'd like to say thank you to the people close to me who have given me support over the years! Thank you to the women that have Alopecia who give me inspiration".
I have NO idea if I get any reponses what they will be like. I just wanted to post that so I can maybe spread more awareness one step at a time. I want to feel like I've done my part. I wanted to write more but that was the maximum number of words available. I might get some ignorant responses... oh well! I want to try to do what I can to raise awareness. I'm glad I posted it and maybe I will again next year! :) Happy Alopecia Awareness Month!!
"In support of Alopecia Awareness Month, I am coming forward to say that I have a form of Alopecia. I want to spread awareness about this as much as I can. maybe one day when another young girl gets diagnosed, she will know she isn't alone. I'd like to say thank you to the people close to me who have given me support over the years! Thank you to the women that have Alopecia who give me inspiration".
I have NO idea if I get any reponses what they will be like. I just wanted to post that so I can maybe spread more awareness one step at a time. I want to feel like I've done my part. I wanted to write more but that was the maximum number of words available. I might get some ignorant responses... oh well! I want to try to do what I can to raise awareness. I'm glad I posted it and maybe I will again next year! :) Happy Alopecia Awareness Month!!
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Comment by Amanda on September 1, 2010 at 3:51pm
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I did the same thing. The responses were all positive. I've also decided to post one fact about Alopecia in my status each day for this month. It took a lot to admit to everyone I know on facebook that I have Alopecia, but if it means promoting awareness, and offering encouragement and support to someone else who may not be as strong, then I am glad I took that step. Thanks for being strong, and Happy Alopecia Awareness Month!
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Comment by Suzanne on September 1, 2010 at 4:26pm
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Awesome!
I keep planning on doing this, but I haven't yet. Maybe this will help motivate me. Actually, I've been thinking about posting a note on Facebook, since that gives me more space to write about it.
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Comment by Kathryn Michael on September 1, 2010 at 5:04pm
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Well done you..
I've used facebook as part of way of coming to terms with my alopecia. and venting against the minority that have been hurtful.
Most have been very supportive. It has also got me back in contact with some that I wasn't in regular contact with too.
I have just got round to changing my photo to a wig free one - that was a big step. Most hadn't realised i was wearing a wig!
The more people see and hear about alopecia the better
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Comment by Bald and Fabulous AKA Terri on September 1, 2010 at 9:07pm
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well done ..... I have thinking of doing the same. Although I have invited some of my closest friends to join alopecia world and they have.
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Comment by Mary on September 1, 2010 at 10:12pm
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Great idea! How about also next year everybody posting about International Alopecia Day on August 6?
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Comment by Alliegator on September 2, 2010 at 12:01pm
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Amanda... that is a good idea! I might have to look up some facts & post them also. It took a lot for me to admit it too. I have some friends of friends & people from high school that had no idea. I completely agree. Thank you!
Suzanne... I think you will know when you are ready. I didn't even think about doing a note!
Kathryn... Thank you! I haven't been posting any pictures of me wearing scarfs or wigless but now I am free to do so! Yay! :) The same for me...most couldn't tell I have been wearing a wig. Exactly...I'm trying to raise awareness one person at a time.
Good idea Mary! I'll mark it on my calendar.
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Comment by Bernice Jones Williams on September 2, 2010 at 8:23pm
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I am proud of all of you who are admitting your AA. I can out in the paper and T.V. in 2000 after hiding it from my husband and children for more than 25 years!! My story can be read on my web site if you are interested at hairconnectiontoday.com!! It is so freeing when we finally face the truth, isn't it! I will be posting some bald photos as soon as I get help with my new scanner.
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Yes, Bernice - for me, being who I am is the most freeing feeling.
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Comment by Julie G on September 1, 2011 at 9:25am
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ok, wow..your post inspired me to do the same. I "came out" to my family and some close friends back in March/April of this year and felt liberated after that, but this is totally different and wow..what a feeling to just come out and tell "the world"(well the fb world atleast).
I try and spread awareness every chance I get whenever someone compliments my hair, or mentions my hair. I used to try and hide it, just like I hid my thinning hair for 15 years, but this year I have decided to change that! Thank you so much for your inspiration to help me take a bigger step!!
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Julie G... :) It is a great feeling! I am happy that I told the FB world. I have come to realize that this is my life. Nothing will change in the near future so I am learning to go with the flow, and life my life. I don't want it to upset my life anymore. I have realized this is the way it is and there is no need to let it embarrass or upset me anymore. I just posted a message on FB a minute ago about Alopecia Awareness Month and it feels great. Then I saw your comment and it made me smile. I am so proud. You go girl! We need all the troops we can get out there spreading the word. You're welcome! Thank you for spreading the word!
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