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Derm visit Nov 09
A few months ago I was referred by the dermatologist at my local hospital to a "hair clinic" run by a dermatologist at another hospital. I went yesterday and it was all fairly positive.
She examined my scalp and was very encouraged by the regrowth which she said that she could see in all of the patches. For this reason, she didn't recommend doing any other treatments and that I was to continue using steroid foam once a day. She could see a bit of pigmentation coming through in the patch where the regrowth is white.
It was all quite positive but I still find it hard to hear how unpredictable this condition is. My eyes filled up when she told me that it can reoccur at any point and may never go away completely... of course I already knew this (we all do) but it just knocked me off balance for a little bit. And there was me thinking that I've been dealing with it so much better recently and not letting it upset me...
I mentioned that I was still concerned about the hair loss on my face - not because I wanted to grow a beard but just because it was a reminder that the AA was still active - but there really aren't any treatments available.
I asked for advice on how to cope with this condition and was given a list of websites to visit, and told about support groups. I haven't got them with me but I'll post them later.
Overall, it was mainly positive and I feel that I have been coping so much better with AA over the last month or so. I am focussing on the regrowth and that is keeping me going for now. I hope this lasts as I don't want to go back to the depression or anxious state that I was in before.
She examined my scalp and was very encouraged by the regrowth which she said that she could see in all of the patches. For this reason, she didn't recommend doing any other treatments and that I was to continue using steroid foam once a day. She could see a bit of pigmentation coming through in the patch where the regrowth is white.
It was all quite positive but I still find it hard to hear how unpredictable this condition is. My eyes filled up when she told me that it can reoccur at any point and may never go away completely... of course I already knew this (we all do) but it just knocked me off balance for a little bit. And there was me thinking that I've been dealing with it so much better recently and not letting it upset me...
I mentioned that I was still concerned about the hair loss on my face - not because I wanted to grow a beard but just because it was a reminder that the AA was still active - but there really aren't any treatments available.
I asked for advice on how to cope with this condition and was given a list of websites to visit, and told about support groups. I haven't got them with me but I'll post them later.
Overall, it was mainly positive and I feel that I have been coping so much better with AA over the last month or so. I am focussing on the regrowth and that is keeping me going for now. I hope this lasts as I don't want to go back to the depression or anxious state that I was in before.
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Comment by lynne on November 20, 2009 at 3:19pm
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hey robert thanks for sharin ur news, that was gd to have a positive app at the dermo, i know people dont have alot of them, i will keep my fingers x for u and hope that ur regrowth is here to stay, take care, x
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Comment by Jeff W on November 20, 2009 at 7:57pm
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Robert,
Nice to hear things are going well for you! I've gone through the same depression and anxiety as you and you've dealt with it beautifully. Here's to your continued regrowth and fine spirit!
Jeff
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Comment by JeffreySF on November 23, 2009 at 11:08am
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Hey Robert,
You're doing a grand job at keeping your spirits up.
Cheers to continued growth!
Jeffrey
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Comment by John M. on November 23, 2009 at 2:56pm
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You know that, for better or worse, we're all on this crazy ride togther Robert! We've exchanged enough emails that you know I've been in-step with you in terms of having my share of ups and downs with this stupid thing. Hang tough my friend, and we'll all make it though together. Cheers, and let's go have a pint (or three)!!!!!! :-)
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Comment by rez namra on January 10, 2010 at 1:56pm
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I am glad for you mate, i just started developing it and going through my worst phase of my life. You should be happy that you see some growth, its a positive sign, which means you can grow all your patches eventually. I have a friend who had his left side of face completely blown and a patch on his head, it all recovered and its been 2 years he never got it agan, he didn't get any treatment. So be positive and spread the hope.
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Comment by Robert on January 10, 2010 at 4:16pm
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Thanks Rez. I'm doing a lot better since this blog. I did post a regrowth blog last year also but I do need to do an update soon.
You will get through this...stay strong
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