Ever heard of Clouston Syndrome?

Hello,
Visited with a new Derm yesterday here in CA. I didn’t technically go to see him for my Alopecia – I went to discuss my extremely dry, itchy, cracked palm on my right hand. He told me that I had Keratosis Palmaris, gave me a steroid shot and prescribed me some ointment. He advised me that although they weren’t connected in anyway, the meds may also help the Alopecia.

Naturally, I’ve been reading all I can online and have found a link between this and Alopecia called Clouston Syndrome. Has anyone else had any of these symptoms? http://www.wrongdiagnosis.com/c/clouston_syndrome/symptoms.htm

Would love to hear!

Thanks,
Dana

Views: 140

Comment by Jeff W on July 28, 2009 at 11:54pm
I think Susan is right to not discount the relevance of other autoimune diseases to alopecia. I pointed out to my dermatologist at one point that I had lost a pretty good size path of hair on one of my legs and he said that it was unrelated to the AA on my head. I'm not so sure I believe him since I simultaneously lost pathes of hair on my leg, my face, and scalp, and by the way when the hair on my scalp started coming back, so did the hair everywhere else. I guess the good news is that if treating one autoimmune condition ends up helping another one it's great and it really doesn't matter whether or not the doctor believes they are medically linked.

As far as Clouston Syndrome goes - I had never heard of it, but my quick web scan suggests that it's very rare, genetic, and usually manifests at a very young age. It doesn't seem like something that would suddenly strike you as an otherwise healthy adult.

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