Alopecia World
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Eyes don't always see heart
Alopecia does make you a better person at heart i agree with that but it is a pain and brings many hardships to people's lifes especially mine and you do not know if people leave you or do things because of it. Walking around is horrible most of the time because people stare at you wondering if you have cancer and then if you talk to them and tell them they either feel bad for you or treat you different even if it feels to them like they do not they really do. People do not look into other people's eyes when they walk by and see the Heart that people have. Certain people have more heart then others. I really hate this disease though truly i do. I hate the fact that i had hair when i was younger and it fell out. I hate the fact all the things that have happened to me through life. I hate the fact that i know if i had it and everything was like it should be id have tons of girls and maybe just maybe they wouldn't cheat on me. Its hard enough to cope with a hair disease let alone trying to cope with tons of other things. I lastly hate the fact that i cant find a girl that i believe is beautiful because the way i look like i have a scripted destiny. All i know is that not everything can be seen from your eyes and that heart is the main thing.
I probably just babbled a bunch of nonsense and maybe even proved my self wrong in some of this but here's my first blog in a while.
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Comment by Tallgirl on August 3, 2012 at 11:06am
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When I was in high school, people were fairly surfacy. No depth. Where did I end up finding people with "heart?" Believe it or not, at camp, study seminars and travel weeks organized for teens through my church. No, the kids weren't all "churchy," and I developed friendships (teens from other towns in my state) that have lasted since 1967 from those experiences. Plus, I was away from the gossipy high school crowd, and had adult advisors on the trips who would have squelched any rude comments or insensitivity. I got to see parts of my state, explore human conditions like ghettos and alcoholism, went to a U.N./Washington Peace Seminar (first plane trip!), and was delegated to be on a state group of many youth organizations at the state capital, to review anti-smoking literature and videos and make recommendations to the governor for teens. You don't have to limit yourself to high school jokers or your own town, you know. As for dances? I took older guys from camp as my dates, who I knew liked me and who cut a mature image among my friends!
Questions: What do you see in judging which GIRLS are "beautiful?" Are you judging by outside or inside qualities? Would your parents be willing to spend a bit on travel opportunities, clubs, or visits to out-of-town friends for you if it would help your social opportunities and peace-of-mind?
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I'm just saying to not ELIMINATE anyone. Besides, people change. Just wait until your ten-year reunion to see who retained outer beauty and who blossomed, girls and guys both. You are really young.
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Quit sitting at home. Get out there, find your talent, use it, and see how life turns out. By the way...this song could possibly reflect Alopecia World itself for some folk: a sort of home base.
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Comment by Stephanie on August 4, 2012 at 8:13pm
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First of all let me say don't try to find your happiness in someone else. People will always disappoint you..no matter what. Yes, this is a burden but a burden we were chosen to bear because God knows we can handle it. There is so much you can share with the people around. You can be a blessing to everyone by showing them that no matter the circumstances, you can hold your head high and be the best person you can be.
I am 47 yrs old. I have had alopecia since I was 2. I have known known what it's like to have hair. Sometimes I do ask "why me" but why not me" I choose to think that Our Heavenly Father has a plan for me and that I will be blessed if I am a blessing to others.
It is hard. Very hard. There are people out there that can't handle it. I have been told "If I had what you have, I would never leave the house." You cannot imagine the things I have heard. Those people are weak and not worth the time or energy to have them in my life. But I have also been blessed with wonderful friends. I have a wonderful 15 yr old son who is perfectly healthy.
I believe this disease has made me a compassionate person beyond the normal capacity of a person that does not have it. I can see when a person is hurting when oone else sees it. We all have gifts. Find yours.
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Comment by justincase1004 on August 5, 2012 at 2:03am
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I know man. It's sucky. Just gotta get by one day at a time. I promise that one day (it may be a long ways away) you will look back at this point in your life, the feelings you have now, and realize how strong you were and didn't even know it.
Think about, you have this because you ARE strong enough to have it. Just remember that when you are having a hard time. Remember that there are people just like you that are having a difficult time as well. We try to get through it the best we can. Sometimes when I think about others I don't even know in this world going through it I just start to empathize. Know that I do with you as well
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True, people dont look past the outside to get to the inside. Sadly thats the way people work.
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Comment by Amber on August 10, 2012 at 8:01pm
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Girls get less shallow as they get older and (presumably) wiser. You will find an inner and outer beauty to love you in time. In the mean time work on becoming the man you want to be for her.
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