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Comment by Trish on April 24, 2011 at 12:39pm

Hey Lisa-Lynn...Here it is, the truth, the whole truth and nothing but the truth.....you ready ????

Every single person on here who has this disease feels the exact same way (whether they say so or not). We ALL have those days when you've just seen one too many shampoo commercials and some of us have had many more years of dealing with it, so we know how to "put it away" so to speak, but its our "normal". Thats just the way it is. Pity parties are great. I love 'em and have them often, because who else is gonna feel sorry for you except for you, but dont make them last. Here's the trick....you cant stop your heart from feeling and getting emotional, but you CAN decide how long it will last. And thats what makes all the difference. The beauty of Alopecia is the STRENGTH you will come to know. YOU, are the only thing you can control in this world and you can do it!!!! Hope i didnt step on too many toes with this post. :)

Comment by Petra on April 20, 2011 at 4:03pm

Lisa, here's one of those hugs ((((((((0))))))))). Norm's right, you don't need hair to be fab!

Norm, I don't want to go around scaring people, that's why the hound suit works :-)

Comment by Norm on April 20, 2011 at 12:50pm

Oooh, L-L, hope the meds are helping.... is it just the hair that's causing the depression, or is there something else as well? Think maybe you need an A.W. Group Hug .... hang on while I get a few of the gang together, and we'll be round later to perform the ceremony. And drink beer and wine, and eat cake, and talk rubbish. Whaddya think? :)
By the way, the wigs look good - try getting a few more styles/colours, then you can change with your mood! But, I also think you look pretty cool without 'em, too.... you don't need hair to be fab! xx

Comment by Lisa-Lynn Marini on April 20, 2011 at 12:37pm

Hi Norm,
it's beeen a while since we chatted last year i've gon through quite some turmoil ove this alopecia so i'm on meds for it now to help me deal with it,,i'ts aways a pleasure to hear from you, i hope your doing well :)

Comment by Norm on April 20, 2011 at 12:18pm

Well, Petra, I was gonna suggest a cat-suit, but that's already been done to death... no, I reckon you should do what I told you last year - wear nothing - then no-one'll notice the bald head, oh no :)
Lisa-Lynn.... sorry for hijacking your post, but if girls ask for help, what's a guy to do??? :)

Comment by Petra on April 19, 2011 at 8:00pm

HA HA HA Yeah, the suit is great in the winter but get's way to hot in the summer...me thinks I will have to find something else to wear this summer...any idea's Norm?

Comment by Norm on April 19, 2011 at 6:52pm

Hi Lisa-Lynn.... hey, everyone has ups and downs. But don't beat yourself up over stuff you didn't cause and that you can't do anything about.... there's already enough cr*ap in life!
Do what Petra does - she doesn't like to go out bald, so she puts on her special Hound Suit and goes out like that. In fact, that's a pic of her and her husband next to her comments. :)
Hiya Petra - you OK? Long time no chat.... this is where you delete me from your "Friends" list, methinks.... ;)

Comment by Lisa-Lynn Marini on April 19, 2011 at 5:31pm

petra,
I find your words very encouraging and I certainly hope one day I turn out to be just like you,,YOU GO GIRL!!!

Comment by Petra on April 19, 2011 at 5:21pm

Hey, I still don't have the guts to go au natural in public.....I hope that one of these days I do. I usually wear scarves or hats when out and about and a wig when I go to work. Wearing scarves in public is pretty new to me, I just started doing that last year......I told myself enough is enough. I stopped doing so many things because I didn't want to do them in a wig and my life was just passing me by....I let alopecia control me...not any more though. Yeah, I still get these little anxiety attacks, but I just tell myself I'm O.K. The hell with what other people think...they don't have to live my life.

Comment by Lisa-Lynn Marini on April 19, 2011 at 4:21pm

Thank-you Petra,
I;ll have to keep that in mind, even though it is quite hard as it has only been roughly a year now and to me it still feels like yesterday,
I find my turbands quite cute and comfy but hell, after a while I get sick of it. I want to be all natural but afraid to do so in front of my fammily. Guess it's something i'll have to get over
pleasure to hear from you Petra

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