Well I'm happy to say that Jordyn has a Alopecia World page now..so add her as your friend. She is on here also looking for girls her age that she can relate too. We are happy to say she is soo excited and cannot wait for the arrival of her LOL wig. We are also looking for girls or boys in our area that have alopecia. This seems to be a difficult feat. I have yet to find anyone close to our area. I work at the hospital here and I met a mom not too long ago, she brought her son in for labwork and the diagnosis was alopecia..she was and seems devastated over it all and didnt know what to do..she was a nice hispanic woman that spoke barely any english. I tried to explain to her that alopecia is not a bad thing, i think for boys its a little easier than girls, he had the spots of aopecia areata all over his head..I tried to calm her down and tell her her son is not sick its a auto immune disease that affects the hair folicles. Not to say that I'm glad my daughter or anyone has alopecia for that matter, but some people need to be greatful for the fact that it is just a hair loss thing and not something more severe and fatal like cancer. We just lost our boss to her 3 yr fight with breast cancer she was only 41 years old. During her treatments she used to comment to me that she now knew what my daughter Jordyn had to go through having no hair. I have no idea what it is like to have alopecia but I have been there for my daughter since the beginning and I see the stares, comments and other rude things people have to say about her having no hair. People and most of all children can be very rude. I chuckle when Jordyn sees someone staring at her ( now remember she only wears her beanies, no wigs) she is not afraid to ask them what they are staring at. I still remeber the first time she realized that someone was staring at her bald head she must have been about 3-4 years old..she was in the shopping cart at walmart and going down the isle she notices this ADULT woman pointing and staring, Jordyn turns arounds looks the woman in her eye and says "what are you staring at, yes I know I'm bald I have alopecia areata" That had to have been the cutest thing. Needless to say the woman looked alittle embarassed and she should have. So from that point on I knew that my little girl was going to be able to handle this disease that has made her beautiful long curly hair fall out.