Comment by Lyndsey Pitchford on August 8, 2014 at 3:43pm

I'm really sorry but one of the worst things about alopecia is it's unpredictability. I have had all my hair come and go 4 times now and some people lose it all whilst others don't. For me, I found shaving what I had once the patches became too bad was the best thing because there was nothing more my alopecia could throw at me (apart from lass and brow loss of course) but I appreciate that is a major thing to even think about let alone decide on but I would say, without trying to be negative, prepare for the worse. I see a lot of people get their hopes up about treatments or regrowth (myself included) just to get beaten down again. The alopeica beats you down even more. There is little you can do to have any control over the hairloss, the only thing you can concentrate on is your way of coping and this is different for everyone but there are a lot of options and advice out there so have a look around. xx

Comment by MamaDavis on August 8, 2014 at 8:34pm

Unfortunately that's all I've found out. There are no answers and that's the most frustrating part. I am almost to the point of just shaving it all off. Its either shave it or continue to watch it fall out, I don't know which is the lesser of 2 evils. I have a great support system but at the end of the day I'm the one standing I the mirror watching this happen and there's not a thing I can do about it. Its progressing very fast in my opinion, but what's the norm.
No body knows, makes me want to laugh and cry at the same time. I starting with patches but is now more like streaks and there's patches coming out on the other side of my head now. :( I'm scared, angry, frustrated, sad, all these different emotions. Its like you said if I just shave my head there's no more alocpecia can do to me. I just don't know...

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