I recently posted a photo of myself without a hairpiece on my FACEBOOK! The Caption read as follows:
"I am tired of hiding. Some of you know this, some don't... I have Alopecia Universalis. An autoimmune disease involving rapid loss of all hair, including eyebrows and eyelashes. It is the most severe form of alopecia areata, with an incidence of .001% (1 in 100,000). Alopecia Universalis may be acute and short-lived or remain permanently. There is no known cause or cure. I have had this since Beauty College. It has effected me in so many ways (Anxiety, depression, denial, panic, etc.) I have tried so long to hide it. Im tired of it. Under the wigs and makeup... under the lie... this is who I really am. I want to talk about it. I want to be supportive to anyone who might experience this devastating condition or any similar. I am Lynny, and I am proud of who I am. I want to make this a positive and not let it keep ruling my life. Thanks for reading this. ♥"

These are just a few of the responses I got:

"Good for you for coming out and being proud with the hand that u have been dealt...hair or no hair you still look beautiful...think of it this way...you save a shit load on shampoo and conditioner :)"
November 6 at 7:02pm · Unlike · 2 people
"strong words from a strong woman! thats takes real courage!"
November 6 at 7:02pm · Unlike · 1 person
"Beautiful INSIDE and OUT!! ♥"
November 6 at 7:02pm · Like
" you are so beautiful, inside and out. i am so proud to be your friend lynny! you are amazing!"
November 6 at 7:04pm · Unlike · 1 person
" I love you! You are amazing and beautiful!!"
November 6 at 7:06pm · Unlike · 1 person
" proud of you lady. i'm always on your team. you're still ravishing!"
November 6 at 7:07pm · Unlike · 1 person
" I think its sexy and you have such feminine and beautiful features that you could have pulled this off without the condition! I'm happy that you decided not to hide any longer!!!!"
November 6 at 7:23pm · Unlike · 2 people
"I back you chick! You are still just as beautiful!!!!!! don't ever think you are not! Thanks for opening up to the world, you never know who you are educating!"
November 6 at 7:36pm · Unlike · 1 person
" Ive been here since the beginning.. back when we were laughing so hard we were crying on rainy days watching family guy to now.. and i have seen so many people fall all over themselves just to get at you.. you will always be the same beautiful Lynny to me forever"
November 6 at 8:06pm · Unlike · 3 people
" i love you (: your so strong. ♥"
November 6 at 8:08pm · Unlike · 1 person
" hells ya Lynny! your courage is inspiring!"
November 6 at 8:12pm · Unlike · 1 person
" Right on, cousin! You have my love!"
November 6 at 8:35pm · Unlike · 1 person
" ♥♥♥♥♥♥♥♥ SO WOW. You look amazing .. that is all I can say. My words... GONE! =) I am so glad you feel comfortable with yourself enough to share with us this part of who you are. But know this what is on the outside.. no matter how beautiful.. is always brighter with the beauty you have inside. Lemme tell you girl... you could out shine the Sun. =)"
November 6 at 8:47pm · Unlike · 1 person
" YOU ARE THE FUCKING BEST SISTER EVER. SOOOOOO COOOL. I love you TONS and am SO inspired by you. Thanks for being so proud to be you, and as a result, making me want to do the same. I think it looks cool, you know that though."
November 6 at 11:59pm · Unlike · 2 people
"Lynny, you are so beautiful! Im so proud of you and love you so much! The real you! yay!"
Sunday at 12:11am · Unlike · 1 person
" I had no idea you posted this :) I am so unbelievably proud of you and for showing the world the most gorgeous woman I know!! You are gonna now top me in being the most strong and admired woman in our family. As I have always said. THOSE EYES............GORGEOUS!!"
Sunday at 8:01am · Unlike · 1 person
"r Way to go, Lynny! So proud of you for being the amazing person you are... You've always been beautiful."
Sunday at 9:35am · Unlike · 3 people
" How amazing of u too share this! You look fantastic with or without ur wig! Love ya :)"
Sunday at 10:51am · Unlike · 1 person
" We all love you SO much! Thank you for sharing. It takes a lot of courage to be so open & honest about any of our individual struggles & vulnerabilities. "Life is a team sport" & your honesty only allows your friends & loved ones to be that much more connected with you. *much love & hugs*"
Sunday at 2:38pm · Unlike · 2 people
" Lynny, as your brother said it best!!! I am also so F*&^*#% proud of you and think you have now opened the door to feeling happy and content in your life. Anyone who might judge you well, they can go fuck themselves. Much Love, Dad"


I am still riding the high from this! I never imagined that I would find the strength to love myself, let alone allow others to see and love me just the way I am. Its gets better. I NEVER thought I'd be the one to say it, but it gets better. I have opened the dialogue to everyone in my life. Im not in a place where I go out of my home without a hairpiece, but I am going to let myself be proud of me for actually doing this. Another step in the direction of acceptance. <3

Views: 31

Comment by Dominique on November 10, 2010 at 7:27am
Congrats Lyndsey, and what a high too :) Ride the wave of freedom, positive re-inforcment and your own amazingess doll and enjoy every minute of it. You deserve it :)
Comment by Sam G on November 10, 2010 at 4:16pm
I'm so pleased for you Lyndsey. Well done!
Comment by Galvin on November 10, 2010 at 4:56pm
AWESOME! You have some really great people in your life! Congratulations.
Comment by Nicky on November 10, 2010 at 8:18pm
wow! You are soo brave! Congrats~!
Comment by lyndsey tolson on November 10, 2010 at 9:17pm
Thank you everyone for your comments, I didn't know Alopecia World features blogs as I am new to the community, but I'm glad I could be helpful! Love to you all.
Comment by Bald and Fabulous AKA Terri on November 10, 2010 at 9:30pm
WOW you are an incredibly courageous and strong woman.
You have such a beautiful support network of family and friends
Congrats !!!
Comment by Cheryl, Co-founder on November 11, 2010 at 12:50pm
Lyndsey, Congratulations! I know how great it feels be able to be yourself. So I am so glad you took the plunge, to me it is not whether you are wearing a wig or not, but whether you are "hiding" from life. So welcome back to your life!

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