Comment by Jeff W on April 2, 2009 at 8:10pm

Paula,
Believe me, you are not the only one who feels this way. I think about my hairloss almost constantly. Every time the wind blows. Every time my head itches. I do think since we are in the earlier stages of this the uncertainty makes this so much harder. If I knew for sure my hair was all going to fall out I'd just shave it all off now. But since I still believe it could come back (any day now please!) I'm trying to hold onto what I've got. Of course all it would really take for me to have to shave it all off would be maybe one or two badly placed new spots that I can't cover. While I hope that doesn't happen, I can't help but wonder if maybe that would at least bring some level of closure to this episode. There are a lot of happy good looking bald people here!

Like Rosy said - Hang in there!
Jeff

Comment by Carol Yuen on April 2, 2009 at 9:10pm

Paula,

I feel exactly the same way cause both of our hair loss happened at the same time. I am depressed, I want to cry, but they said stress cause the problem to worsen, and I try to hold my tears. I have been trying everything, mutivitamins, exercise, being lazy at work so I won't be stress out, change shampoos, wear hats to protect my scalp, not brusing my hair because it might tangle. I am thinking about my hair every minute, and I am always noticing other ppls' hair now. I cry even when I look at my old pictures, I don't feel myself anymore. I have dreams where I see myself with all my hair again, then I am so happy in my dream. I feel like sleeping forever, because in my dream, I still have my long black hair. You are trying to telling yourself, is just hair, I am healthy, I can still do all the stuff that I used to do. On the other hand, you miss playing with ur own hair, you miss having the nice smell in your hair after you shampoo your hair. I really understand. I feel like shaving what is left now, because I feel like if I shave it off now, at least I will cry and cry about ONCE and that is it. but at the moment, I still have hope that is going to grow back, but is so hard when you are checking your hair out EVERY single day seeing if anything grow back. Is very tiring. I feel like our emotional state is like having a diagnosis of a terminal disease. But I think trying to smile will make our lives a little bit easier. Lets get through this together

Comment by Pam Fitros on April 3, 2009 at 10:48am

Paula,
I SO get that. Now that I shaved it all off (a year ago last February) and the rest fell out (alopeicia universalis), I'm loving being bald. No more chicken-butt hair, no more worries about the wind blowing. I talk about the positives in my blog (boldlybaldwomen.blogspot.com). And the best part? I never have to think of my hair at all. It's been such a relief.

Comment by Jodi on April 3, 2009 at 12:51pm

Yes Paula, I'm also there with you. While at this point it does not seem that I'm losing a substantial amount more, I know that with this condition that could all change without warning. I find myself almost being angry jealous with women who have beautiful hair (e.g. i watched a movie with penelope cruz in it about a week ago and totally started crying. it was a comedy. my husband thought i'd totally lost it - again.) I am doing EXACTLY what Carol was saying, taking vitamins, working out, pacing myself with the work load to minimize stress. you are not alone. it is exhausting and it's not going to change. the only thing we have control over in this game is our reactions to this stuff.... i'm not exactly sure what that means in terms of a plan of action but i am sure that if we are patient withourselves we will be able to handle this as gracefully as possible. look for courage here. i do whenever i feel most lost and so far i've managed to always find someone on here that makes me think... huh, this isn't so bad. i can handle this... at least i'm not alone.

Comment by Tenille Gee on April 3, 2009 at 7:25pm

My thought is, not only do I wish that I could decide, having a beautiful full head of hair would be fabulous, something that I could cut in whichever way I like and not have huge patches showing. But, now I almost find myself jealous of the beautiful bald women on here because they are so strong and the choice is no longer there whether the choice was their own or not. My concern is not, is it going to grow back in a week and I will have shaved for nothing, it is, if I shave it now are the spots just going to show up that much more visibly because I wont have my other hair there to cover them. Or, worse yet, what if I have an ugly head. lol

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